Tickets Now Available!
21st debra of America Benefit
October 21, 2019

The 21st Annual debra of America Benefit will be held on Monday, October 21 from 6:00pm to 10:00 pm at Tribeca 360° in New York City. The evening of honors and celebrations will feature cocktails and hors d'oeuvres, a silent auction, and a seated dinner. We are thrilled to announce our Benefit honorees!

Click here for details and to purchase tickets.

Proceeds from the Benefit will go directly towards supporting people living with Epidermolysis Bullosa (EB), a painful, often fatal, and always debilitating rare genetic disease. Click here to learn more.

For questions or for more information, please email events [at] debra [dot] org or call 212-868-1573.

Join TEAM DEBRA in Events Across the Nation in 2019

TEAM DEBRA is for marathon runners, cyclists, and everything in-between. What unites TEAM DEBRA is our commitment to spread EB awareness and raise funds to find a cure and treatment for EB. Click here to learn more about TEAM DEBRA and to see the events we are partnered with.

Epidermolysis Bullosa (EB) is a rare genetic connective tissue disorder in which children do not produce a vital protein to allow their skin to adhere to itself. 1 out of every 20,000 births in the United States are affected by the disease. Children with EB are often referred to as "Butterfly Children" because their skin is extremely fragile and can blister or tear from any friction. Internal organs can also be seriously affected by the disease. EB is painful, often debilitating, and is in some cases lethal. There is no treatment or cure. Daily wound care, pain management, and protective bandaging are the only options available. Click to learn more.