Save the Date: 3rd Annual debra Celebrity Golf Classic
May 20, 2019

The 3rd Annual debra of America Birdies Fore Butterflies Celebrity Golf Classic will be held on Monday, May 20, 2019! We will be returning to award-winning course, TPC Sugarloaf in Duluth, Georgia, which is home to the Mitsubishi Electric Classic held in April. The course has been completely redone and will be in tournament shape just in time for our event!

Join us for a day of golf, prizes, refreshments, and a post-golf reception! More details--including celebrity guests--to come.

Join TEAM DEBRA in Events Across the Nation in 2019

TEAM DEBRA is for marathon runners, cyclists, and everything in-between. What unites TEAM DEBRA is our commitment to spread EB awareness and raise funds to find a cure and treatment for EB. Click here to learn more about TEAM DEBRA and to see the events we are partnered with.

20th debra of America Benefit

Thank you to our sponsors, donors, and volunteers who supported the 20th Annual debra of America Benefit, which was held on October 25 at Guastavino’s in New York City. Click here for more details on this evening of honors and celebrations.

Epidermolysis Bullosa (EB) is a rare genetic connective tissue disorder in which children do not produce a vital protein to allow their skin to adhere to itself. 1 out of every 20,000 births in the United States are affected by the disease. Children with EB are often referred to as "Butterfly Children" because their skin is extremely fragile and can blister or tear from any friction. Internal organs can also be seriously affected by the disease. EB is painful, often debilitating, and is in some cases lethal. There is no treatment or cure. Daily wound care, pain management, and protective bandaging are the only options available. Click to learn more.