Join TEAM DEBRA in Events Across the Nation in 2019

TEAM DEBRA is for marathon runners, cyclists, and everything in-between. What unites TEAM DEBRA is our commitment to spread EB awareness and raise funds to find a cure and treatment for EB. Click here to learn more about TEAM DEBRA and to see the events we are partnered with.

Save the Date!
21st debra of America Benefit
October 21, 2019

We are thrilled to announce that the 21st Annual debra of America Benefit will be held on Monday, October 21, 2019 at Tribeca 360° -- a premier event venue with 360 degrees of uninterrupted and breathtaking views of Manhattan. More details to come!

Epidermolysis Bullosa (EB) is a rare genetic connective tissue disorder in which children do not produce a vital protein to allow their skin to adhere to itself. 1 out of every 20,000 births in the United States are affected by the disease. Children with EB are often referred to as "Butterfly Children" because their skin is extremely fragile and can blister or tear from any friction. Internal organs can also be seriously affected by the disease. EB is painful, often debilitating, and is in some cases lethal. There is no treatment or cure. Daily wound care, pain management, and protective bandaging are the only options available. Click to learn more.