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TEAM DEBRA is for marathon runners, cyclists, and everything in-between. What unites TEAM DEBRA is our commitment to spread EB awareness and raise funds to find a cure and treatment for EB. Click here to learn more about TEAM DEBRA and to see the events we are partnered with.
Thank you to our sponsors, donors, and volunteers who supported the 20th Annual debra of America Benefit, which was held on October 25 at Guastavino’s in New York City. Click here for more details on this evening of honors and celebrations.
The 2018 debra Care Conference was held at the Sheraton Grand at Wild Horse Pass: A Phoenix Family Resort in Chandler, AZ from July 22-25, 2018. Thank you to the 650 people who attended, including our speakers, sponsors, and volunteers who helped make the event possible. |
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Epidermolysis Bullosa (EB) is a rare genetic connective tissue disorder in which children do not produce a vital protein to allow their skin to adhere to itself. 1 out of every 20,000 births in the United States are affected by the disease. Children with EB are often referred to as "Butterfly Children" because their skin is extremely fragile and can blister or tear from any friction. Internal organs can also be seriously affected by the disease. EB is painful, often debilitating, and is in some cases lethal. There is no treatment or cure. Daily wound care, pain management, and protective bandaging are the only options available. Click to learn more. | ||||
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