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ATTEND AN EVENT
The 19th Annual debra of America Benefit will be held on Thursday, October 26 from 6:00pm to 10:00 pm at Guastavino’s in New York City. Click here for more details on this evening of honors and celebrations.
Sign up today and enjoy a day of golf, food and drink, a post-golf reception, and the chance to win a car and 1 million dollars!
TEAM DEBRA is for marathon runners, cyclists, and everything in-between. What unites TEAM DEBRA is our commitment to spread EB awareness and raise funds to find a cure and treatment for EB. Click here to learn more about TEAM DEBRA and to see the events we are partnered with.
The 2018 debra Care Conference (formerly the PCC) will be held just outside Phoenix at the Grand Sheraton Wild Horse Pass from July 22-25, 2018 (with hotel stay until the 26th). Click here to find out more! |
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Epidermolysis Bullosa (EB) is a rare genetic connective tissue disorder in which children do not produce a vital protein to allow their skin to adhere to itself. 1 out of every 20,000 births in the United States are affected by the disease. Children with EB are often referred to as "Butterfly Children" because their skin is extremely fragile and can blister or tear from any friction. Internal organs can also be seriously affected by the disease. EB is painful, often debilitating, and is in some cases lethal. There is no treatment or cure. Daily wound care, pain management, and protective bandaging are the only options available. Click to learn more. | ||||
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