 |
DonateWith help from supporters like you, Debra of America continues to provide programs and services to people with Epidermolysis Bullosa and their families, and to support EB research.Thank You. |
 |
The mounting cost of bandages is most often not covered by an EB family's health insurance. |  |
89.4¢ of every dollar donated goes directly to EB patients, families, and research. |
PERSONAL DONATIONS |
CORPORATE DONATIONS |
GIVE YOUR TIME |
|
 |
|
|
Epidermolysis Bullosa (EB) is a group of rare genetic connective tissue disorders that is present in 1 out of every 20,000 live births in the United States. It causes the skin to be so fragile that the slightest friction can cause severe blistering - inside and outside the body. EB can occur in every racial and ethnic group, and affects both sexes equally. Severe forms of EB cause patients to live with constant pain and scarring. The worst forms of EB lead to eventual disfigurement, disability and often early death. There is no cure, and the research is on-going. Click to learn more. |
Sign up here for the first EBCare Patient Reported Registry — a resource for individuals and families affected by all forms of Epidermolysis Bullosa (EB) and qualified researchers. The confidential information collected is used to promote research, support policy initiatives and increase awareness. |
|
|
|
|
 
 
|
Donate NowClick to Donate |
Site Map News Photos Contact DebRA Privacy Policy |
To all our donors, |