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ATTEND AN EVENT
The 18th Annual debra of America Benefit will be held on Monday, October 24 from 6:00pm to 10:00 pm at Gotham Hall in New York City. Click here for more details on this evening of honors and celebrations.
The 2016 debra Care Conference (formerly the PCC) was held just outside Dallas at the Gaylord Texan Resort & Convention Center in Grapevine, Texas from July 24-27, 2016. Thank you to the 550 people who attended, including our speakers, sponsors, and volunteers who helped make the event possible.
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Epidermolysis Bullosa (EB) is a rare genetic connective tissue disorder in which children do not produce a vital protein to allow their skin to adhere to itself. 1 out of every 20,000 births in the United States are affected by the disease. Children with EB are often referred to as "Butterfly Children" because their skin is extremely fragile and can blister or tear from any friction. Internal organs can also be seriously affected by the disease. EB is painful, often debilitating, and is in some cases lethal. There is no treatment or cure. Daily wound care, pain management, and protective bandaging are the only options available. Click to learn more. | ||||
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