debra of America's 14th Annual Mats Wilander Tennis & Golf Benefit - HONOREES

PHILIP REILLY, MD, JD
Venture Partner, Third Rock Ventures
Board Member, Lotus Tissue Repair
Trustee, Cornell University

Philip Reilly VENTURE PARTNER, THIRD ROCK VENTURES Philip Reilly is the champion of the world’s largest, single investment into EB research. Mr. Reilly is focused on nurturing transformational companies dedicated to breakthrough treatments for genetic disorders. He is an accomplished entrepreneur, author, teacher and scholar. Philip is a Cornell University Trustee and has twice served (2000 & 2003) as President of the American Society of Law, Medicine and Ethics. He is a founding fellow of the American College of Medical Genetics, the author of six books, and frequently speaks about genetics, the future of medicine, and bioethics. He has held numerous teaching positions at Tufts University School of Medicine, Harvard Medical School, Cornell University and has served as adjunct professor of both legal studies and biology at Brandeis University. Mr. Reilly holds an MD from Yale University, a JD from Columbia University and is a member of the Massachusetts Bar and is board certified in internal medicine and clinical genetics.

COURTNEY ROTH
Mother of Tripp Roth
Learn more about Courtney

Courtney Roth-Mother OF TRIPP ROTH May 14, 2009 was the happiest day in Courtney Roth's life. Tripp, her first child, was born. Unfortunately, that day was also when her life changed forever. Tripp was diagnosed with Junctional-Herlitz EB and Courtney was told by the physicians that he wouldn’t live a year. Tripp was strong, meticulously cared for by Courtney (a trained LPN), and had an incredible support system. However, two years and eight months later on January 14, 2012, Tripp lost his battle with EB. In Tripp’s short life, Courtney became a single stay-at-home mom, an author of a very popular blog, winner of awards, and an inspiration to thousands, including Kevin Clash, the creator of Elmo. Her poignant and emotionally gripping writings of life with Tripp and the struggle of EB garnered national attention and 8 million page views on her blog "EB"ing a Mommy, over 16,000 Facebook followers, her story on ABC television and a profile in Readers Digest.


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