DonateWith help from supporters like you, Debra of America continues to provide programs and services to people with Epidermolysis Bullosa and their families, and to support EB research.
|The mounting cost of bandages is most often not covered by an EB family's health insurance.||86.4¢ of every dollar donated goes directly to EB patients, families, and research.|
BUTTERFLY GIRL | The Story of Abbie Evans
Butterfly Girl is the feature documentary film about Abbie Evans, a 18-year-old girl living with Epidermolysis Bullosa.
Visit Butterfly Girl at iTunes to purchase or rent the documentary Butterfly Girl in HD or SD. Share with friends to raise awareness for Epidermolysis Bullosa.
At first glance, it is not obvious that Abbie Evans lives with a life-threatening skin disease. She is a typical teenager: moody, rebellious, irreverent, and is also strikingly beautiful. But her life is the antithesis of normal. Abbie grew up in hospitals, cared for by her protective mother and father. She then came into her own in honky tonks, selling merchandise for her father’s band. But just like any other 18 year-old, Abbie yearns for a life of her own. Butterfly Girl charts Abbie’s journey towards a new understanding of how she must balance her past with her future, her parents with her independence, and her disease with her desires. But what price must she pay for that freedom? Visit: butterflygirlmovie.com to learn more.
“A moving docu portrait… a celebration of life.”
THE HOLLYWOOD REPORTER
THE HUFFINGTON POST
“Abbie is a spitfire who says what she means… with a constant twinkle in her eye.”
“Paints a human portrait of survival” and “Truly gripping”
“Butterfly Girl is a heart warming coming of age story”
“Roars out of the gates… intense… emotional…”