EB Medical Referrals

debra of America’s Acting EB Nurse Educator Shawn Tavani is available by phone or email to provide referrals to health care professionals who have experience with patients with Epidermolysis Bullosa.

Services are available via phone or email Monday through Friday, 9:00 a.m. to 5:00 p.m. Eastern Standard Time:

Phone: 212-868-1573 or (866) DEBRA76 (866-332-7276)

Email: nurse [at] debra [dot] org


Medical Referral Guide Coming Soon!

In an effort to increase access to the best care for the entire EB Community, we are creating an online tool that will make it easy to search for health care providers who know how to treat those with EB. The tool will allow you to search by specialty and geographic region.

We are asking you to share with us the names of specialists and institutions & their respective contact information. This will help to expand the medical referral guide and connect our Community with great care providers. If you are interested in contributing or would like to receive more information, please email our EB Nurse Educator, Shawn Tavani, at nurse [at] debra [dot] org.