2014 Patient Care Conference Speakers

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Kaycie Artus
Physical Therapist
Director, Camp Spirit Colorado

Kaycie Artus has worked with children with Epidermolysis Bullosa for over 30 years. She has a special place in her heart for this population. She was the physical therapist in the Children's Hospital Colorado EB Multi-specialty Clinic until her retirement in 2012. She continues to run the EB Winter Adventure Camp for Children with Recessive Dystrophic EB.

Kaycie Artus


Marita Black, PT, DPT, PCS
Assistant Head Physical Therapist
Morgan Stanley Children's Hospital of New York

Marita Black is the Assistant Head Physical Therapist at Morgan Stanley Children's Hospital of New York. Along with working in the Neonatal Intensive Care Unit and treating outpatients, she also functions as the primary Physical Therapist for the Epidermolysis Bullosa (EB) clinic at Columbia University Medical Center. Marita has ten years of experience as a Physical Therapist, including more than seven years in pediatrics. She has worked with children of all ages who are diagnosed with EB and has been involved in research after bone marrow transplants. Marita is a Pediatric Certified Specialist. She received her Transitional Doctorate of Physical Therapy from Temple University, a Physical Therapy Master's degree from Boston University, and a Bachelors of Science degree in Psychobiology from Binghamton University.

Marita Black


John C. Browning, MD
Assistant Professor of Pediatrics and Dermatology
Baylor College of Medicine and Children's Hospital of San Antonio

Dr. John Browning is an assistant professor at Baylor College of Medicine where he is Chief of Dermatology at the Children's Hospital of San Antonio. He directs the epidermolysis bullosa clinic at that site. Dr. Browning is chair of the American Academy of Dermatology's Camp Discovery Program, which provides summer camp free of charge for children with skin disorders. He is the founding dermatologist of Camp Dermadillo (Camp Discovery - Texas) where he continues to volunteer his time every summer.

John Browning


Anna L. Bruckner, MD
Associate Professor of Dermatology and Pediatrics
Co-Director, Epidermolysis Bullosa Clinic
University of Colorado School of Medicine, Children's Hospital Colorado

Dr. Bruckner is a pediatric dermatologist at Children's Hospital Colorado and a faculty member of the University of Colorado School of Medicine. She has been committed to EB since her dermatology residency. In her former position at Stanford University, she directed the monthly multidisciplinary EB clinic, and she spearheaded the formation of the EB Clinical Research Consortium (EBCRC). She co-directs the EB clinic at Children’s Hospital Colorado now. Her research on EB includes bone health in EB, clinical trials, using EBCRC data to study outcomes of EB, and the cooperative development and validation of an outcomes measure for EB.

Anna Bruckner


Mark L Cannon, DDS
Associate Professor Feinberg School of Medicine
Northwestern University

Dr. Mark L. Cannon received his Doctorate of Dental Surgery from the University of Nebraska, then attended Northwestern University for his Masters of Pediatric Dentistry. He completed his residency at Children’s Memorial Hospital and received his Diplomate status by the American Board of Pediatric Dentistry.  After completing his hospital residency and obtaining his Masters in the specialty of Pediatric Dentistry, Dr. Cannon was asked to stay as a Faculty member of Northwestern University Dental School. He has kept up teaching as clinical Associate Professor of the Feinberg School of Medicine, and is the Research Coordinator for the Pediatric Dental Program at the Ann and Robert Lurie Children’s Hospital of Chicago. Dr. Cannon has been involved in research for many years, developing new products and techniques for dentistry and obtaining patents. In addition to maintaining a large private practice in the suburbs of Chicago, he has lectured at many national and international meetings, often as the keynote speaker. He has presented to a number of state and local dental societies.

Mark Canon


Roger Cornwall, MD
Director of Hand and Upper Extremity Center
Cincinnati Children's Hospital Medical Center

Dr. Cornwall has been a full time pediatric hand surgeon for 10 years, after completing his education and training at Stanford University, Columbia University, Mount Sinai Hospital, Harvard University, and the Children’s Hospital of Philadelphia. However, the vast majority of Dr. Cornwall’s education in the care of EB comes from the children and families he has encountered since joining the Cincinnati Children's Epidermolysis Bullosa Clinic 5 years ago. In keeping with that perspective, Dr. Cornwall’s research has been the first to study patient-reported measures of hand function in EB, as well as the impact of hand surgery on those measures.



Susan K. DeClercq
Assistant United States Attorney
United States Attorney's Office - Eastern District of Michigan

Susan K. DeClercq is an Assistant United States Attorney in Detroit, Michigan specializing in civil rights cases, including fair housing, police misconduct, equal employment, and disability law. Prior to joining the U.S. Attorney’s Office in 2004, Ms. DeClercq was a litigation associate at the law firm of Skadden, Arps, Slate, Meagher, & Flom, LLP in Washington, DC and served as a law clerk to U.S. District Court Judge Avern Cohn.



Ravi Elluru MD, PhD
Associate Professor
Cincinnati Children's Hospital/ Division of Pediatric Otolaryngology; University of Cincinnati College of Medicine, Department of Otolaryngology

Dr. Elluru is a pediatric otolaryngologist at Cincinnati Children's Hospital, and has been in practice for 11 years. He completed medical school at UT Southwestern Medical Center in Dallas, Texas and a residency in otolaryngology head and neck surgery at Washington University School of Medicine in St. Louis, Missouri. He completed specialized training in pediatric Otolaryngology at Cincinnati Children's Hospital. Dr. Elluru has been part of the EB Center at Cincinnati Children's Hospital for the last 5 years, helping the EB team manage ENT issues in patients with EB. Of all the different children he sees in his daily work life, he is most passionate regarding the care he deliver to children with EB. Most of the "real" learning he has had on this disease processes has come from the parents of the children he treats. Dr. Elluru consider this opportunity to talk with them one of the biggest honors in his life.

Ravi Elluru


Michael K. Farrell, MD
Chief of Staff - Cincinnati Children's Hospital Medical Center
Professor of Pediatrics - University of Cincinnati College of Medicine
Cincinnati Children's Hospital Medical Center

Dr. Farrell is a Pediatric Gastroenterologist with thirty-five years of experience. He completed his pediatric residency and fellowships at Cincinnati Children's. He is Chief of Staff at Cincinnati Children's and Professor of Pediatrics at the University of Cincinnati College of Medicine. He is a member of the multi-disciplinary EB team. His interests are general gastroenterology and clinical nutrition.

Michael K. Farrell


Kenneth R. Goldschneider, MD, FAAP
Director, Cincinnati Children's Pain Management Center
Cincinnati Children's Hospital Medical Center

Kenneth Goldschneider, MD, FAAP, is professor of Clinical Anesthesia and Pediatrics and is Director of the Pain Management Center and is a leading expert in treating complex chronic pain conditions in infants, children and young adults. He can be found mostly commonly at work, having fun adventures with his family, riding on the nearby bike trail or playing music (so a meeting in Music City is OK by him!)

Kenneth R. Goldschneider


John Lynn Jefferies, MD, MPH, FACC, FAHA
Director, Advanced Heart Failure and Cardiomyopathy
Cincinnati Children's Hospital Medical Center

Dr. Jefferies, an associate professor pediatric cardiology and adult cardiovascular diseases, is the Director of Advanced Heart Failure / Cardiomyopathy with The Heart Institute at Cincinnati Children’s Hospital Medical Center.  He completed his combined pediatric and adult cardiology training at the Baylor College of Medicine in Houston, Texas at the Texas Children’s Hospital and the Texas Heart Institute.  He has authored or co-authored over 100 peer-reviewed manuscripts and book chapters on cardiomyopathy, cardiovascular genetics, and adults with congenital heart disease.

John Lynn Jefferies


Al Lane, MD
Professor of Dermatology and Pediatrics, Emeritus
Stanford University

Dr. Alfred T. Lane is a Professor of Dermatology and Pediatrics (Emeritus) at Stanford University Medical School. Al joined the faculty of Stanford University Medical School in 1990 and in 1996 he was promoted to Professor of Dermatology and Pediatrics and became Chair of the Department of Dermatology until 2010. Al’s clinical practice has been focused exclusively to clinical research since 2010. Al currently works with a Stanford research team focusing on developing protein therapy, gene therapy and stem cell therapy for Epidermolysis Bullosa and other genetic skin diseases. He has been concerned about ethical issues in treating children in clinical trials. In the process of preparing for gene therapy clinical trials, he completed a Masters of Arts in Religious Studies (Spirituality) at Santa Clara University in 2004 He has tried to focus his education in the areas of moral decision-making in medical care and specifically on genetic research on children with severe life threatening diseases. He currently is the Co-Chair of the Ethics Committee of Lucile Packard Children’s Hospital.

Al Lane


Anne W. Lucky, MD
Medical Director, Cincinnati Children's EB Center
Cincinnati Children's Hospital

Dr. Lucky is the Medical Director of the Cincinnati Children's Epidermolysis Bullosa Center in Cincinnati, OH. She has had over 30 years of experience caring for children and adults with EB. Her training has been in Pediatrics and Pediatric Dermatology at the Yale University School of Medicine, New Haven CT and the Boston Children's Hospital, Boston, MA. She is author of over 200 peer reviewed scientific papers. She is currently an Adjunct Professor of Dermatology and Pediatrics at the University of Cincinnati College of Medicine.


Anne W. Lucky, MD


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