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DonateWith help from supporters like you, Debra of America continues to provide programs and services to people with Epidermolysis Bullosa and their families, and to support EB research.Thank You. |
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The mounting cost of bandages is most often not covered by an EB family's health insurance. |  |
89.4¢ of every dollar donated goes directly to EB patients, families, and research. |
Get Involved
Register as a Volunteer
Learn about volunteer opportunities with Debra
Debra Ambassador Program
Launched in 2009, the mission of the Ambassadors Program is to educate speakers all over the United States to raise EB awareness. Although still in the early stages of actualization, Debra hopes to establish a working pilot that could then be refined and replicated. Upon completion of training, Debra’s first group of dedicated volunteers will begin to visit local organizations, hospitals and birthing centers to spread greater understanding about the disease.
Learn More About the Citizen Ambassador Program
Raise Awareness Online
Encourage your friends, family and co-workers to use their social networks and communities to support Debra's fundraising efforts.
Engage Local Media
Letters-to the-editor are extremely effective for alerting the media about Debra and Epidermolysis Bullosa. Journalists have a significant role in educating the public about EB and publicizing
major research efforts.
See Sample Letters
Debra Advocacy Program
There are many ways to help those affected by Epidermolysis Bullosa. One of the most effective ways is to make our community better for those affected by Epidermolysis Bullosa in the long term is legislative advocacy on their behalf. Quite simply, this means supporting laws and policies that are good for those affected by Epidermolysis Bullosa and opposing ones that aren’t.
Local Goverment Office Directory & Learn More
Plan a Local Debra Event
Special events help raise needed funds for care and support of families affected by EB. To plan an event, inquire about an upcoming event or purchase tickets for an event, visit the Plan A
Local Event page.
Plan a Local Event
Show You Care
Proudly wear your Debra merchandise to show your commitment to helping Debra reach their goal, a cure for EB.
Bracelets and Merchandise
Support Debra at Work
Many employers offer a dollar-for-dollar matching gift or a percentage match when you give to your favorite charity. Contact your human resources representative for more information.
Learn More!
Go Back
Return to "Take Action"
Related Information/Links
Read about EB in Greater Depth
Donate
Attend an Event
Understanding EB
Debra has partnered with America's Charities which makes it easy and convenient to make a donation.
Any contribution, large or small, helps
EB patients and families and makes
continued research possible.
DebRA's 2012
Patient Care Conference
Countdown to a Cure
Patient Care Conference
Countdown to a Cure
July 30, 2012 - August 2, 2012
Register Now
What is EB? helps teachers and students
understand the issues facing children with
dystrophic EB in the classroom.
of every dollar donated goes to EB
patients, families, and research.
