Support a Local Event

Organize a Local Event in your community to raise EB awareness and funds for debra of America.

Visit Plan Local Events. For more information, contact us at (212) 868-1573 or events [at] debra [dot] org

Attend a Debra Hosted Event.


Kansas

Bailey's Bash!
Friday, April 25th, 2014
Challenger Intermediate School
Wichita, KS

Come on out for hours of fun at Bailey's Bash, organized by the students and staff at Challenger Intermediate School! There will be bouncy houses, minute to win it games, a raffle, pie throwing, a dunk tank, and more. All proceeds from "Bailey’s Bash" benefit DebRA of America and its programs/services including its search for treatments (making them commercially viable and available), and research to lead to a cure for Epidermolysis Bullosa, (EB).

Check back soon for Registration Information!

For questions please contact: events [at] debra [dot] org or (212) 868-1573 x104


Nationwide

Second Life Charity Week
April 28-May 5, 2014

Always wanted to attend a debra event, but haven’t been able to make it? Now’s your chance! Attend a week of virtual concerts and sales in support of debra of America in Second Life; the online virtual world. Listen to special tribute concerts, purchase debra merchandise, and enjoy a guest appearance by Jodi Champagne, the author of “Courage Under Wraps.” All proceeds from the “Second Life Charity Week” benefit DebRA of America and its programs/services including its search for treatments (making them commercially viable and available), and research to lead to a cure for Epidermolysis Bullosa, (EB).

For more information, contact: events [at] debra [dot] org

A big thank you to our current Supporters:

Cerise Emor - For pulling this event together in support of EB and debra of America!

NatashaAngelfire - Second Life Blogger for donating her time to help plan this event.

Ray Burdeyna - Owner of Burdeyna Islands private island rentals for donating the property. http://www.slvirtualland.com.

Sera Bellic - Owner and creator of   LICK Sim & Set Design for donating the sim design.

Trunkztomorrow2011  - From Blue Buddah Club Supplies for donating donation boxes.

HauteCoutureDesign - for creating an EB sculpture for the event.

luv2 Brandi - Owner of Definitive Rock Concerts and Pirate Metal Productions for donating a tribute concert to be held at the event.

Participating Vendors:
Apparence Skins and Shapes
Style by Kira
Dulce Secrets
Punky Chicks
Phunk
Instinct Clothing for Man
Lyrical B!zzare
RueMorgue
Peponi's
LunaSea
HauteCouture Design
Glitterati by Sapphire
Dirty Little Secret
Glow Designs
HOLY SHiRT
Citrus
22769
ShadowMoon
Wetherby's
Snowpaws
Cubic Cherry
.twenty13.
Amarelo Manga
LivGlam
Stars!
Designs by Sebastian
GDit Jewelry
FuLo
RnB Designs Furniture
Senzafine
Divalicious Designs
Spellbound Hair
Rumina
KaTink
nDisPose
Something New


North Carolina

3rd Annual Jogging for Jonah
In Honor of Jonah Williams
Saturday, May 10th, 2014 (8AM)
Tanglewood Park (4061 Clemmons Rd)
Clemmons, NC

Please join us for the 3rd Annual Jogging for Jonah 5K and Fun Run. Walkers are welcome for both! In addition to the 5K and Fun Run, we'll have a great raffle, music, face painting, inflatables, food and beverages, and more! All proceeds from the "3rd Annual Jogging for Jonah" benefit DebRA of America and its programs/services including its search for treatments (making them commercially viable and available), and research to lead to a cure for Epidermolysis Bullosa, (EB).

Click here to Register!

For more information please call : 212-868-1573 ext. 104 or email joggingforjonah [at] gmail [dot] com


Georgia

8th Annual Butterfly Wishes for Ellie Benefit and Silent Auction
In Honor of Ellie Tavani
Thursday, May 22nd, 2014
The Park Tavern
Atlanta, GA

Butterfly Wishes for Ellie is an annual event in honor of Ellie Tavani, a beautiful little girl who was born in April 2006 with Epidermolysis Bullosa (EB). Our 8th Annual Butterfly Wishes For Ellie Benefit and Silent Auction will be held on Thursday, May 22, 2014 at The Park Tavern in Midtown Atlanta. SAVE THAT DATE! With your help, we will break last years record fundraising event where we raised forty-seven thousand dollars to benefit the Dystrophic Epidermolysis Bullosa Research Association of America (DebRA). All proceeds from the "8th Annual Butterfly Wishes for Ellie" benefit DebRA of America and its programs/services including its search for treatments (making them commercially viable and available), and research to lead to a cure for Epidermolysis Bullosa, (EB).

Click here to Register

Click here to Donate

For questions please contact: events [at] debra [dot] org or (212) 868-1573 x104

Texas

Butterfly Project
One Direction Concert #ButterflyProject

August 24th, 2014
One Direction Concert (AT&T Stadium)
Dallas, TX

Kate and Emily are two debra of America Young Ambassadors who were very excited when Harry Styles of their favorite band, One Direction, tweeted a special message to our colleagues at DEBRA Ireland. This inspired them to start their very own #EBawareness project here in the United States.

The plan: To attend the “Where We Are Tour” One Direction concert on August 24, 2014 at AT&T Stadium in Dallas, Texas.

What to wear: Anything and everything red. Especially red bandanas.

What to bring: Posters that say, One Direction “Release Your Butterfly” for debra of America

Follow on Twitter: WWADallas_2014

For more information, visit: http://katethegreat497.blogspot.com/2014/01/butterfly-project-update.html

one direction butterfly project


Ohio

First Annual Butterfly 5K
In Honor of Hannah Blake
Saturday, September 20th, 2014 (10AM)
Salt Fork State Park (14755 Cadiz Rd)
Lore City, OH

We organized the Butterfly 5K in honor of a brave girl with EB. Hanna Blake, was born on August 24, 1999 with no skin on her feet and right leg. This will be a fun, family centered event with music, food and raffles. Since this is our first year, we really need your support. Whether you are a business or an individual, there is something you can do! Even if it is to start training so that you can participate in the race or simply educating yourself about EB by visiting debra.org. Please help us to make this event a great one that will continue for many years to come! Raising awareness about EB and showing our support for families affected by this disease is such an honor and a wonderful cause to be a part of.

The race course is paved so strollers and wheelchairs are welcome! All participants will receive a tee shirt, and there will be medals/trophies for placing. The park is beautiful and overnight accommodations including camping, cottages or rooms at the lodge are available by calling 740-439-2751, or visiting www.ohiostateparks.org. If you plan to stay, please make reservations as soon as you can as the park anticipates this will be a busy time for them and spaces may fill up quickly throughout the upcoming year. All proceeds from the "First Annual Butterfly 5K" benefit DebRA of America and its programs/services including its search for treatments (making them commercially viable and available), and research to lead to a cure for Epidermolysis Bullosa, (EB).

To Register, please visit: http://debra.kintera.org/Butterfly5K

For more information or if you would like to help, please call (740)491-0396 or email at abbyroberts93 [at] yahoo [dot] com.


TENNESSEE

Valley Vintage Creations Lockets for EB
15% of sales benefit DebRA
Signal Mountain, Tennessee

Jewelry designer, Kelsey Hill Worley’s antique brass filigree lockets are handcrafted in the Tennessee Valley. Purchase one today and 15% of each sale will go to support Epidermolysis Bullosa and DebRA of America. You can specify your charm of choice: key, butterfly, or jeweled ball.

Click here to visit Valley Vintage Creations.

15% of each sale on Kelsey’s website benefits DebRA of America and its programs/services including its search for treatments (making them commercially viable and available), and research to lead to a cure for Epidermolysis Bullosa, (EB).

For more information, please contact: events [at] debra [dot] org

Butterfly Locket for DebRA


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