Support a Local Event

Check out a list of our Upcoming Local Events below!

Nothing close to you? We also have online fundraisers:

Interested in an event of your own?

Looking for a debra event?


Tennessee

2nd Annual Knoxville 5k
Benefitting debra of America
Saturday, August 15th, 2015 (8AM)
Victor Ashe Park (4901 Bradshaw Rd)
Knoxville, TN

In this crazy world it is easy for people to rush by and take for granted a hug from a family member, a kiss from their parents, or holding the hand of a loved one, never knowing just how lucky they truly are. That’s why this 5k was organized in honor of Asa Madden, who struggles just to stand and walk every day. The money earned from this event will go to support research, provide supplies, and help to Asa and families like him. All proceeds from the “2nd Annual Knoxville 5K” benefit debra of America and its programs/services including its search for treatments (making them commercially viable and available), and research to lead to a cure for Epidermolysis Bullosa, (EB).

CLICK HERE to Register

For more information or if you would like to help, please email events [at] debra [dot] org or call 212-868-1573.


OHIO

2nd Annual Butterfly 5K
In Honor of Hannah Blake
Saturday, September 12th, 2015 (10AM)
Salt Fork State Park (14755 Cadiz Rd)
Lore City, OH

We organized the Butterfly 5K in honor of a brave girl with EB. Hanna Blake, was born on August 24, 1999 with no skin on her feet and right leg. This will be a fun, family centered event with music, food and raffles. We greatly appreciate your support for our 2nd year. Whether you are a business or an individual, there is something you can do! Even if it is to start training so that you can participate in the race or simply educating yourself about EB by visiting debra.org. Please help us to make this event a great one that will continue for many years to come! Raising awareness about EB and showing our support for families affected by this disease is such an honor and a wonderful cause to be a part of.

The race course is paved so strollers and wheelchairs are welcome! All participants will receive a tee shirt, and there will be medals/trophies for placing. The park is beautiful and overnight accommodations including camping, cottages or rooms at the lodge are available by calling 740-439-2751, or visiting www.ohiostateparks.org. If you plan to stay, please make reservations as soon as you can as the park anticipates this will be a busy time for them and spaces may fill up quickly throughout the upcoming year. All proceeds from the “First Annual Butterfly 5K” benefit debra of America and its programs/services including its search for treatments (making them commercially viable and available), and research to lead to a cure for Epidermolysis Bullosa, (EB).

CLICK HERE to Register

For more information or if you would like to help, please call (740)491-0396 or email abbyroberts93 [at] yahoo [dot] com.


MARYLAND

Epidermolysis Bullosa Quarter Auction
Saturday, September 26th, 2015 (6:00 PM)
VFW Chesapeake City (304 Basil Ave)
Chesapeake City, MD

Join us on Saturday, September 26th for the Epidermolysis Bullosa Quarter Auction! Bid on exciting items donated by local vendors, enjoy a variety of food and beverages, and have fun, all in the name of a great cause.  Advanced Tickets are $7 for 2 paddles, and tickets at the door are $9 for 2 paddles. All proceeds from the “Epidermolysis Bullosa Quarter Auction” benefit debra of America and its programs/services including its search for treatments (making them commercially viable and available), and research to lead to a cure for Epidermolysis Bullosa, (EB).

To Register, or for questions, call Carolyn at (443) 655-7816


Nationwide

Little Sweet Pea Closet : Shop for EB!

Visit littlesweetpeacloset.com and shop for EB! Little Sweet Pea Closet is donating a portion of all sales to debra of America. Stock up on adorable children's accessories, including headbands, tutus, pacifier straps, and mitten clips. All proceeds from the “Little Sweet Pea Closet: Shop for EB!” sales benefit debra of America and its programs/services including its search for treatments (making them commercially viable and available), and research to lead to a cure for Epidermolysis Bullosa, (EB).

Click Here to Shop     Click Here to Donate

For questions, please contact Rebecca at rebeccahbeck [at] littlesweetpeacloset [dot] com


TENNESSEE

Valley Vintage Creations Lockets for EB
15% of sales benefit debra
Signal Mountain, Tennessee

Jewelry designer, Kelsey Hill Worley’s antique brass filigree lockets are handcrafted in the Tennessee Valley. Purchase one today and 15% of each sale will go to support Epidermolysis Bullosa and debra of America. You can specify your charm of choice: key, butterfly, or jeweled ball.

Click here to visit Valley Vintage Creations.

15% of each sale on Kelsey’s website benefits debra of America and its programs/services including its search for treatments (making them commercially viable and available), and research to lead to a cure for Epidermolysis Bullosa, (EB).

For more information, please contact: events [at] debra [dot] org

Butterfly Locket for DebRA


Click Here for Past DebRA Local Events



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Related Information/Links
Read about EB in Greater Depth
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Understanding EB