Support a Local Event

Check out a list of our Upcoming Local Events below!

Nothing close to you? We also have online fundraisers:

Interested in an event of your own?

Looking for a debra event?


GEORGIA

9th Annual Butterfly Wishes for Ellie Benefit and Silent Auction
In Honor of Ellie Tavani
Thursday, May 7th, 2015
The Park Tavern
Atlanta, GA

Butterfly Wishes for Ellie is an annual event in honor of Ellie Tavani, a beautiful little girl who was born in April 2006 with Epidermolysis Bullosa (EB). Our 9th Annual Butterfly Wishes For Ellie Benefit and Silent Auction will be held on Thursday, May 7, 2015 at The Park Tavern in Midtown Atlanta. SAVE THAT DATE! With your help, we will break last years record fundraising event where we raised almost fifty thousand dollars to benefit the Dystrophic Epidermolysis Bullosa Research Association of America (debra). All proceeds from the “9th Annual Butterfly Wishes for Ellie” benefit debra of America and its programs/services including its search for treatments (making them commercially viable and available), and research to lead to a cure for Epidermolysis Bullosa, (EB).

CLICK HERE to Register or Donate

For questions please contact: events [at] debra [dot] org or (212) 868-1573 x104


North Carolina

4th Annual Jogging for Jonah
In Honor of Jonah Williams
Saturday, May 9, 2015 (8AM)
Tanglewood Park (4061 Clemmons Rd)
Clemmons, NC

Please join us for the 4th Annual Jogging for Jonah 5K and Fun Run. Walkers are welcome for both! In addition to the 5K and Fun Run, we'll have a great raffle, music, face painting, inflatables, food and beverages, and more! All proceeds from the “4th Annual Jogging for Jonah” benefit debra of America and its programs/services including its search for treatments (making them commercially viable and available), and research to lead to a cure for Epidermolysis Bullosa, (EB).

CLICK HERE to Register or Donate

For more information please call: 212-868-1573 ext. 104
or email joggingforjonah [at] gmail [dot] com


Illinois

Dash 4 debra
Sunday, June 7, 2015 (8:30AM)
Lake Forest Academy (1500 West Kennedy Rd)
Lake Forest, IL

Please join us on Sunday, June 7th, by running to support those afflicted with EB. The money raised for this event will go to support research, provide medical supplies to families and patient access to specialists. Many patients with EB travel out of state for care and support, and many insurances do not cover the supplies needed for these patients' care. All proceeds from "Dash 4 debra" benefit debra of America and its programs/services including its search for treatments (making them commercially viable and available), and research to lead to a cure for Epidermolysis Bullosa, (EB).

CLICK HERE to Register or Donate

For questions please contact: events [at] debra [dot] org or (212) 868-1573 x104


Washington

Bayleigh’s Walk for a Cure
In Honor of Bayleigh Templeton
Saturday, June 27th, 2015
Pierce County Park, Nathan Chapman Memorial Trail (14201 86th Ave. East)
Puyallup, WA

Join us for an afternoon of family fun and community solidarity as we walk together to support those with Epidermolysis Bullosa (EB) - The Worst Disease You've Never Heard Of. Enjoy a walk along the Nathan Chapman trail; a paved trail passing through woods and wetlands, raffles, and refreshments! All proceeds from “Bayleigh’s Walk for a Cure” benefit debra of America and its programs/services including its search for treatments (making them commercially viable and available), and research to lead to a cure for Epidermolysis Bullosa, (EB).

CLICK HERE to Register

For questions please contact: events [at] debra [dot] org or (212) 868-1573 x104


Nationwide

Little Sweet Pea Closet : Shop for EB!

Visit littlesweetpeacloset.com and shop for EB! Little Sweet Pea Closet is donating a portion of all sales to debra of America. Stock up on adorable children's accessories, including headbands, tutus, pacifier straps, and mitten clips. All proceeds from the “Little Sweet Pea Closet: Shop for EB!” sales benefit debra of America and its programs/services including its search for treatments (making them commercially viable and available), and research to lead to a cure for Epidermolysis Bullosa, (EB).

Click Here to Shop     Click Here to Donate

For questions, please contact Rebecca at rebeccahbeck [at] littlesweetpeacloset [dot] com


TENNESSEE

Valley Vintage Creations Lockets for EB
15% of sales benefit debra
Signal Mountain, Tennessee

Jewelry designer, Kelsey Hill Worley’s antique brass filigree lockets are handcrafted in the Tennessee Valley. Purchase one today and 15% of each sale will go to support Epidermolysis Bullosa and debra of America. You can specify your charm of choice: key, butterfly, or jeweled ball.

Click here to visit Valley Vintage Creations.

15% of each sale on Kelsey’s website benefits debra of America and its programs/services including its search for treatments (making them commercially viable and available), and research to lead to a cure for Epidermolysis Bullosa, (EB).

For more information, please contact: events [at] debra [dot] org

Butterfly Locket for DebRA


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Related Information/Links
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Understanding EB