 |
DonateWith help from supporters like you, Debra of America continues to provide programs and services to people with Epidermolysis Bullosa and their families, and to support EB research.Thank You. |
 |
The mounting cost of bandages is most often not covered by an EB family's health insurance. |  |
89.4¢ of every dollar donated goes directly to EB patients, families, and research. |
DebRA Announcements
Press Contact: casey [at] debra [dot] org
Proceeds benefitted EB Research for a cure and our supportive programs.
Thank you to our supporters and sponsors for a successful benefit!
1st Annual DebRA & Lilly Pulitzer Shop & Share Event – May 10, 2012
Apply For The New DebRA Capital One® Platinum Visa® Credit Card – April 2012
By using this card, DebRA receives: $50 after your first purchase, 2% donation on gas and grocery purchases, 1% donation on all other purchases, and up to 10% of purchases made at select merchants. This Visa Platinum credit card makes it easier than ever to support our cause.
DebRA of America gets a donation - and you get to spread the word about our cause - with every swipe!
Patient Reported EB Registry – February 2012
DebRA launches the first patient reported EB registry.
Proceeds benefitted EB Research for a cure and our supportive programs.
Thank you to our supporters and sponsors for a successful benefit.
DebRA Announces The Contest Winner – August 2011
DebRA is pleased to announce the winner of the Depict eb Relate Artistically contest!
$26 million To Fund DEB Research – June 2011
Lotus Tissue Repair, Inc. announced a $26 million financing to develop the recombinant collagen type VII technology of Dr. David Woodley and Dr. Mei Chen (University of Southern California) as protein replacement therapy for Dystrophic Epidermolysis Bullosa (DEB).
Shire Acquires Advanced BioHealing – June 28, 2011
Shire PLC acquired Advanced BioHealing for $750 million, which makes Dermagraft bio-engineered skin patches in San Diego, CA. As part of Shire's Specialty Pharmaceuticals business, the company will "leverage biologic manufacturing expertise from Shire's Human Genetic Therapies business. Kevin Rakin, CEO of Advanced BioHealing, will continue to lead this business within the Shire organization." The organization is planning a clinical trial for EB.
Research Funding Announcement – March 2011
Intercytex and DebRA announce the start of a Phase II trial with the Intercytex therapy ICX-RHY to treat skin erosions in patients suffering from the severe Recessive Dystrophic Epidermolysis Bullosa (RDEB).
EB Awareness T-Shirt Sale – February 2011
For her senior capstone project, Michelle Navarre, who also has EB, is promoting EB Awareness by selling t-shirts which she has designed. All profits from the t-shirt sale will go to DebRA.
DebRA Partners With Wilander On Wheels (WOW) – October 2010
WOW is co-founded by tennis legend Mats Wilander and his business partner Cameron Lickle. 50% of the proceeds from the sale of Signed Memorabilia in the WOW store will be donated to DebRA.
The long-awaited early results of the first clinical trial of bone-marrow transplant in children with Recessive Dystrophic Epidermolysis Bullosa (RDEB), carried out at the University of Minnesota in the USA, have now been published. It is still very early following the transplantation treatment, and the full results with the long-term outcomes for these pioneering patients and their families may take a long time, possibly years, to become clear.
DebRA Board Member Testifies In Front Of Senate Committee – July 2010
DebRA Board of Trustees member Alex Silver testified in front of the Senate Committee on Health, Education, Labor, and Pensions. The hearing was held in Washington, DC, on Wednesday July 21, 2010 and focused on treating rare diseases and promoting the development of treatments and cures.
Social Security Announces 38 Additional Compassionate Allowance Conditions – February 2010
Social Security Commissioner Michael Astrue announced this morning the expansion of Social Security's "Compassionate Allowances" program, which provides expedited review of disability applications from people with severely disabling conditions. The announcement was made in a NORD press release.
Go Back
Return to Home
Related Information/Links
Read about EB in Greater Depth
Donate
Attend an Event
Understanding EB
