Epidermolysis Bullosa (EB) News - 2014

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Yahoo! Parenting (WWW)
Baby With the 'Worst Disease You’ve Never Heard Of'
December 19, 2014


SYRACUSE.COM (WWW)
Community mourns loss of CNY eighth-grader with rare disorder
December 9, 2014


TEVANSVILLE COURIER & PRESS (WWW)
Walk Sunday will educate and raise research money for rare skin tissue disorder
October 30, 2014


CNYCentral / WTVH-TV (TV)
'Hope for Baby Easton' meet a 12-year old with the same skin disease
October 30, 2014


THE VALLEY BREEZE (WWW)
Help raise awareness of rare disease
October 29, 2014


THE FREDERICK NEWS POST (WWW)
'Disease you've never heard of' does not stop 10-year-old and family seek better treatment, cure
October 28, 2014


WCBD-TV MT. PLEASANT, SC (TV)
Living with EB: The worst disease you've never heard of
October 28, 2014


Casper Star Tribune (WWW)
Playwrights earn national recognition
October 25, 2014


FOX 59 (TV)
Central Indiana family of ‘Butterfly Kid’ raising awareness about disorder
October 20, 2014


LOCAL 8 NOW KNOXVILLE, TN (TV)
Show your volunteer spirit for two year old with rare skin disorder
October 17, 2014


The State Journal Register (WWW)
Letter: Support research for rare skin disorder
October 13, 2014


Xconomy (WWW)
Orphan Drug From Scioderm Aims to Treat Rare Skin Disease
October 7, 2014


Tennis World Magazine
Living with the Worst Disease you’ve never heard of – Mats Wilander’s story
October 1, 2014


I LOVE THE UPPERWESTSIDE (WWW)
“Hidden Jewel”- The #1 Rated Art Studio in NYC Hosts 10th Year Anniversary Event and Fundraiser
September 9, 2014


Forest Hills Times (WWW)
EB Fundraiser returns to West Side
August 20, 2014


Tennis Panorama (WWW)
The 2nd Annual Mats Wilander Foundation Tennis Pro-Am
August 18, 2014


TENNIS WORLD (WWW)
Mats Wilander to host charity event in August to support Epidermolysis Bullosa
August 13, 2014


Edge of the City (WWW)
The 2nd Annual Mats Wilander Foundation Tennis Pro-Am
August 11, 2014


TODAY Health (WWW)
Healing the 'butterfly children': Treatment offers hope for rare skin disease
August 7, 2014


The Modesto Bee (WWW)
Gustine boy to get his wish
July 26, 2014


CNY Central (WWW)
National 'awareness' award coming for Baby Easton's family
July 25, 2014


NY TENNIS MAGAZINE (WWW)
West Side Tennis Club to Host 2nd Annual Mats Wilander Foundation Tennis Pro-Am
July 23, 2014


THE WALL STREET JOURNAL (WWW)
Fibrocell Science Takes Active Role to Support Dystrophic Epidermolysis Bullosa Patient Advocacy Group
July 23, 2014


CNY CENTRAL (WWW)
Baby Easton’s Remarkable Progress
July 22, 2014


KETK-NBC (TV)
E. Texas boy dances for rare skin disease awareness
July 22, 2014


NY Daily News (WWW)
Justin Timberlake sends limo, front-row concert tickets to Long Island boy with rare disease
July 11, 2014


NBC Montana (WWW)
Man with rare disease takes extra precautions in heat
July 9, 2014


NBC 11 Alive (WWW)
Cobb Co. baby born with rare skin blister disease
July 9, 2014


York Daily Record (WWW)
'Butterfly child' leaves behind many local memories
July 7, 2014


NY TENNIS MAGAZINE
2nd Annual Mats Wilander Foundation Tennis Pro-Am
July 2014


The New York Daily News (WWW)
Long Island boy’s ‘bucket list’ tapers down to one item as he prepares for surgery
June 17, 2014


Mark Sardella (WWW)
Rare Disease Focus of Documentary
June 14, 2014


Daily News (WWW)
Girl can't hug parents because rare skin condition causes her to blister when touched
June 12, 2014


Yahoo Finance (WWW)
Scioderm Names Ronald Nardi, Ph.D. Chief Scientific Officer
June 12, 2014


10sBalls (WWW)
The 2nd Annual Mats Wilander Foundation Tennis Pro-Am benefiting debra of America
June 4, 2014


HUFFINGTON POST (WWW)
Father's Day Heroes
May 30, 2014


KUTV-CBS (TV)
Utah Family Builds Family of Adopted Children with Rare Condition
May 26, 2014


NY Daily News (WWW)
Robbie Twible with Epidermolysis Bullosa meets METS third baseman David Wright and Hopes to Meet Ellen DeGeneres Next
May 22, 2014 - May 27, 2014


GRIDS LIFE (WWW)
debra of America Office in Second Life
May 16, 2014


ATLANTA’S POWER 96.1 FM (RADIO)
Butterfly Wishes For Ellie
May 15, 2014


KANSAS FIRST NEWS (TV)
King For A Day
May 14, 2014


ABC NEWS (WWW)
Baby Born With Rare 'Butterfly' Skin Condition
May 13, 2014


Winston-Salem Journal (WWW)
Son’s rare genetic condition makes every day a blessing for family
View Photo Gallery
May 11, 2014


NEWSDAY (WWW)
Butterfly Children
May 9, 2014


Housatonic Community College: Horizon’s Newspaper
EB: The Quiet Struggle of Butterfly Children (Page 13)
May 2014


North Ridgeville Press (WWW)
Love of Lucas: Family raises more than $50,000 over the years to help those battling EB
April 23, 2014


HUFFINGTON POST (WWW)
Texas Spitfire Abbie Evans Fights Epidermolysis Bullosa In Cary Bell's "Butterfly Girl"
April 16, 2014


BIZ JOURNALS (WWW)
Scioderm close to fully developing new treatment for connective tissue disorder
April 2, 2014


FOX-8 CLEVELAND (TV)
Local Child Star Shares ‘Heaven Is For Real’ Memories
April 2, 2014


NEW DAY CLEVELAND (TV)
Heaven Is For Real Fundraiser Screening
April 2, 2014


PR Newswire (WWW)
Scioderm Completes Enrollment of Phase 2b Study of SD-101, a Novel Topical Therapy for Patients with Epidermolysis Bullosa
April 1, 2014


North Ridgeville Press (WWW)
Love for Lucas fundraiser to show prescreening of ‘Heaven Is for Real’
March 27, 2014


WTOV-9 (TV)
Local Family Raises Awareness For Rare Skin Disease
March 17, 2014


Miller Place Rocky-Point Patch (WWW)
Rocky Point High's Kelly McCauley Raises Funds for Butterfly Children
March 17, 2014


Cullman Times (WWW)
Eubanks family grapples with 4-year-old son’s rare skin condition
February 5, 2014


PR NEWSWIRE (WWW)
Scioderm Initiates Phase 2B Study of SD-101, A Novel Topical Therapy, for Patients with Epidermolysis Bullosa
January 6, 2014

 


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