Epidermolysis Bullosa (EB) News - 2015

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Hartford Courant (WWW)
Stafford Springs Teenager Facing Rare Skin Disease Receives Support
December 27, 2015


CBS-4 INDY (WWW)
'Butterfly Baby' ready for first Christmas, fights rare medical condition
December 24, 2015


TENNIS.COM (WWW)
Mats Wilander: My Son and John O'Shea
December 16, 2015


TENNIS.COM (WWW)
Mats Wilander: My Son and John O'Shea
December 16, 2015


WTNH NEWS 8 (WWW)
Dream comes true for teenager with rare skin disorder
December 4, 2015


Hilliard Northwest News (WWW)
Hilliard family shares EB journey with Darby students
December 2, 2015


KSAT ABC NEWS 12 (WWW)
Easing the pain of butterfly children; new drug may offer hope
November 13, 2015


EXAMINER (WWW)
Celebrity moms on raising gifted children: Ballerina Julie Kent (Part #1)
November 2, 2015


Western Pennsylvania Healthcare News (WWW)
McKesson Patient Care Solutions Inc. Sponsors Family Day with DebRA of America for Epidermolysis Bullosa (EB) Patients and Families
October 22, 2015


FOX NEWS (WWW)
Family of NYC girl with skin-blistering condition sees hope in new drug
July 28, 2015


KATV ABC - ARKANSAS (TV)
9-year-old raises $47,000 for best friend with rare skin disease
July 23, 2015


The Daily Statesman (WWW)
Local family deals with newborn's rare condition
June 26, 2015


Skintifique (WWW)
Interview of Alexia, 35, Who Suffers From Epidermolysis Bullosa: "You Need To See the Positive Sides As Much As Possible"
April 7, 2015


NEW YORK FAMILY (WWW)
SoulCycle For An EB Cure
March 21, 2015


TRIANGLE BUSINESS JOURNAL (WWW)
Scioderm launches Phase 3 trial for drug to help treat rare skin disease that impacts children
March 19, 2015


RARE DISEASE REPORT (WWW)
Phase 3 Registration Trial Begins for Scioderm’s Epidermolysis Bullosa Treatment
March 19, 2015


No Hands But Ours (WWW)
Binding Her Wounds: Adopting a Child with Epidermolysis Bullosa (EB)
March 12, 2015


Cincinatti Mom's Blog (WWW)
The Worst Disease You've Never Heard Of
February 28, 2015


THE DISPATCH (WWW)
NDHS senior plans benefit for boy
February 16, 2015


The Auburn Citizen (WWW)
Painters turn out in Baby Easton Friedel's hometown to support epidermolysis bullosa research
February 1, 2015


WITN NBC – Greenville, NC (WWW)
Butterfly girl: Rare and painful skin disorder doesn't stop Washington teen
January 29, 2015


CNN MONEY (WWW)
Fibrocell Science to Present at Biotech Showcase 2015 Conference
January 7, 2015


PR NEWSWIRE (WWW)
Scioderm to Present at 33rd Annual J.P. Morgan Healthcare Conference
January 2, 2015


THE AMERICAN ACADEMY OF PEDIATRICS JOURNAL
Case report: rapidly healing epidermolysis bullosa wound after ablative fractional resurfacing
January 2015

 


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