Debra of America and Epidermolysis Bullosa featured on ABC NEWS

ABC logoPeople with 'Butterfly' Skin Condition Triumph Through Pain

Megan Barron EB

Life isn't easy for children and adults whose skin is so fragile that the tiniest friction can tear it away. They're called "butterfly children," and they have a range of genetic connective tissue disorders called epidermolysis bullosa, which means they can't properly make the protein that anchors skin in place.

But they aren't all children and they're tougher than your average butterfly.
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By Sydney Lupkin | Published February 22, 2013 |