Debra of America and Epidermolysis Bullosa featured on

CNN Health logoA child's struggle inspires drive for cure

Rafi Kopelan  EB

Rafi Kopelan is a typical 5-year-old. She's mastered Candyland. She's learning to read. Given a choice, she'd spend hours on the swings at the playground.

But unlike her classmates, Rafi's body is covered in blisters from her scalp to her feet. Her corneas are scratched. Her toes are fused together. And her esophagus is lined with so much scar tissue that she can barely swallow. Click here to read more.

By Erin Blakeley | Published February 23, 2013 |