DonateWith help from supporters like you, Debra of America continues to provide programs and services to people with Epidermolysis Bullosa and their families, and to support EB research.
|The mounting cost of bandages is most often not covered by an EB family's health insurance.||89.4¢ of every dollar donated goes directly to EB patients, families, and research.|
Insurance Issues & Social Security
Medicaid Waivers are state-run programs that use federal and state funds to pay for health care for individuals with certain health conditions. Each state has different Waivers with different eligibility requirements or services. Two Medicaid statutes are currently waivered: 1915 and 1115.
To find out your state’s Waiver programs go to www.cms.hhs.gov/medicaid/waivers/waivermap.asp.
Social Security and Social Security Disability Income
The official website of the Social Security Administration can provide you with a wealth of information relations to Social Security Disability Income (SSDI) such as:
- How to start and,
- The Disability Planner explains how to qualify for SSDI and the benefits you will receive
- Help you find your local Social Security Office
To find out more information about Social Security go to www.ssa.gov
To find out more information about Social Security Disability Income go to www.socialsecurity.gov/ssi/index.htm
If your insurance company has denied your claim for certain treatment, including wound care coverage, the following sample letter can be used and edited and sent to an insurance company or your state insurance commissioner. These letters are only intended as an example.
- Sample Complaint Letter to State Insurance Commission
- Sample Letter to Insurance Company Contesting A Denial of Coverage
Family and Medical Leave Act (FMLA)
The following information is presented as a guideline. Individual state laws may affect your eligibility and rights. Please consult the Department of Labor in your state for more information.
You are entitled to take up to 12 weeks of unpaid leave for three reasons:
The birth or adoption of a child
To care for a child, spouse or parent with a serious health condition, and
If you have a serious health condition
A serious health condition may include chronic conditions that require periodic and continuing treatments, such as epidermolysis Bullosa.
While on leave, your employer must maintain your benefits, but you must continue to pay your portion.
You retain the right to return to the same or equivalent position, pay and benefits upon returning from leave.
You are “eligible” to take FMLA leave if:
You have worked for the same employer for at least 12 months and have worked at least 1,250 hours in the past year, and
Your employer employs 50 or more employees within 75 miles of your worksite, and
You provide 30 day advance notice to your employer for foreseeable events.
For more information about the Family and Medical Leave Act go to www.dol.gov/whd/fmla/index.htm