Message from Madeline Weiner, RN :: DebRA :: Dystrophic Epidermolysis Bullosa Research Association of America ::

Dear Friends,

After over a decade of working with EB on more than a full time basis, I have decided to take a bit of a break. I am thankful to DebRA of America for providing me with the means and opportunity to do the work I love so much. It has been an honor to represent our organization and you, our patients, families and members.

My intention is to remain a helpful force to the EB population and to continue to support DebRA of America. I am hoping my personal and family commitments will be more manageable with a part-time schedule.

I will be consulting on a couple of exciting EB projects. National Rehab, Inc., DebRAs long time sponsor and friend, wishes to enhance the services and support it offers its EB clients, as well as others in the EB community. They have asked me to work with them to build an educational (EB) website and to help educate insurance companies about the special needs of people with EB. RegeneRx Biopharmaceuticals, Inc. has contracted with me to provide consulting services as they take their new EB wound healing drug, Thymosin Beta 4, through clinical trials. Ill be balancing my 3-4 days a week work schedule between these two projects, and spending time with my family.

I wish to extend my gratitude and warm wishes to each of you. Please welcome the new DebRA Nurse Educator to our family. I ask you to offer the support and assistance youve always given me. This will afford her the same opportunity Ive had for a successful, rewarding work and life experience.

With kind regards and much love,

Madeline Weiner