| Thread Name | Messages | Last Message |
| Suggestions needed! | 5 | 05-Feb-03 |
| PLS. HELP - NEED "ACTION" PHOTOS FOR EB | 2 | 05-Feb-03 |
| questions about driving | 3 | 04-Feb-03 |
| Anyone in Missouri with EB? | 2 | 04-Feb-03 |
| Gift Basket for New EB Baby Need Suggest | 16 | 03-Feb-03 |
| ask me, (rey aka da truth) anything you | 10 | 03-Feb-03 |
| Urology visit | 2 | 03-Feb-03 |
| Questions about epsom salts | 12 | 03-Feb-03 |
| i need some to talk to | 3 | 03-Feb-03 |
| Hi im 16 I have EB and want to talk | 4 | 02-Feb-03 |
| MEETING CANCELED for EBPhilly - Feb 1st | 1 | 30-Jan-03 |
| Anybody in PA with EB | 14 | 30-Jan-03 |
| 5 year old with eb simplex | 2 | 30-Jan-03 |
| Im gonna be in NY | 3 | 30-Jan-03 |
| Eating problems | 10 | 29-Jan-03 |
| AGENT ORANGE CORRELATION? | 4 | 28-Jan-03 |
| Pierced ears | 3 | 28-Jan-03 |
| JAY IF YOU ARE OUT THERE PLEASE RESPONDE | 1 | 28-Jan-03 |
| Itching | 1 | 26-Jan-03 |
| 19 years old with RDEB and nothing stops | 41 | 26-Jan-03 |
| Treatment of Irritable Bowel Syndrome in | 9 | 26-Jan-03 |
| customizing shoes | 6 | 25-Jan-03 |
| Native American EB suffers | 6 | 22-Jan-03 |
| Emu Oil | 11 | 21-Jan-03 |
| Im a 14 year old boy with EB | 8 | 20-Jan-03 |
| WANT T0 FIND FRIENDS FROM DISNEY TRIP | 3 | 19-Jan-03 |
| i have EB SIMPLEX and..... | 8 | 19-Jan-03 |
| Social Security For infants.. Please hel | 11 | 16-Jan-03 |
| NY Support Group Revisited | 3 | 16-Jan-03 |
| Samantha Thomas 17yrs | 1 | 15-Jan-03 |
| Getting Pregnant with EB! | 6 | 15-Jan-03 |
| EB Doc's in USA - NEED THIER INFO! | 4 | 14-Jan-03 |
| HAND SURGERY | 1 | 14-Jan-03 |
| diahrea | 2 | 13-Jan-03 |
| EB doctors in Canada, too, please... | 2 | 13-Jan-03 |
| QUESTION - Vaseline | 11 | 13-Jan-03 |
| New York Support Group? | 47 | 11-Jan-03 |
| Pacifier? | 6 | 11-Jan-03 |
| Social Security | 3 | 10-Jan-03 |
| EB Book - Ethnic Representation? | 7 | 10-Jan-03 |
| EB Book Update re Liza Rineer | 2 | 08-Jan-03 |
| Breast or Bottle?? | 23 | 08-Jan-03 |
| Photos & Drawings for EB Book? | 7 | 07-Jan-03 |
| EB Group-Metro Philly-Meeting Feb 1st | 1 | 07-Jan-03 |
| VERY soft diapers! | 2 | 06-Jan-03 |
| Some shoe information for older EB folks | 1 | 06-Jan-03 |
| Information for everyone here..... | 2 | 06-Jan-03 |
| Very strange question.... | 9 | 06-Jan-03 |
| So. California Support Groups | 4 | 06-Jan-03 |
| Quick update from my "very strange quest | 4 | 06-Jan-03 |
| Do not use Coban!!! Something much bette | 8 | 06-Jan-03 |
| Is there anyone in the Seattle area with | 7 | 04-Jan-03 |
| TINY WHITE SPOTS? | 14 | 03-Jan-03 |
| huggies diapers | 13 | 03-Jan-03 |
| I have homemade diapers I can't use anym | 4 | 29-Dec-02 |
| eb and speech problems?? | 14 | 28-Dec-02 |
| junctional non herlitz? | 1 | 27-Dec-02 |
| Looking Doctor or Ped in Hunting Beach, | 3 | 26-Dec-02 |
| Something to be cautious of.....forgot t | 4 | 23-Dec-02 |
| Blisters - When do they appear? | 10 | 22-Dec-02 |
| GRIEF SUPPORT FOR PARENT OF CHILD LOSS T | 5 | 19-Dec-02 |
| VERY Important EB Book Update! | 2 | 19-Dec-02 |
| looking for Viktoria | 4 | 17-Dec-02 |
| How to protect infant who started rollin | 5 | 16-Dec-02 |
| anyone try a waterbed? | 4 | 14-Dec-02 |
| Looking for a dentist for my son | 5 | 14-Dec-02 |
| Thank you to all | 1 | 13-Dec-02 |
| Am I the only mom of an EB baby who crie | 12 | 13-Dec-02 |
| STORIES BEING SENT ON DISK - PLEASE READ | 1 | 12-Dec-02 |
| To Shae of Mississippi | 2 | 11-Dec-02 |
| EB Book - Volunteer For Cover Artwork | 16 | 11-Dec-02 |
| EB Book Nearing Completion | 7 | 11-Dec-02 |
| medical id necklaces | 20 | 11-Dec-02 |
| Birthcontrol and EB | 4 | 11-Dec-02 |
| Sarna anti-itch lotion | 13 | 09-Dec-02 |
| EB INFO CARDS | 26 | 09-Dec-02 |
| My son has a g tube | 7 | 06-Dec-02 |
| penpal | 13 | 06-Dec-02 |
| Saw clip about EB on MSNBC last Thursday | 6 | 04-Dec-02 |
| need help 3 week old with eb and acc | 17 | 03-Dec-02 |
| 7 day old born w/ EB 1st time parents | 27 | 03-Dec-02 |
| Anyone with Junctional? | 6 | 03-Dec-02 |
| for Lucilla | 4 | 03-Dec-02 |
| Dad seeking advise | 5 | 28-Nov-02 |
| ANY TEXAS SUPPORT MEETINGS OUT THERE?? | 2 | 25-Nov-02 |
| socual security disability | 2 | 25-Nov-02 |
| any military families w/ eb? | 6 | 25-Nov-02 |
| EBSDM & Group A Strep Infections | 2 | 23-Nov-02 |
| Any doctors In Oklahoma | 6 | 23-Nov-02 |
| Hi Everyone | 6 | 22-Nov-02 |
| anyone tried a chiropractor | 5 | 21-Nov-02 |
| Eb in Birmingham, Alabama | 5 | 21-Nov-02 |
| To Jay from Alabama | 2 | 21-Nov-02 |
| looking for Scott Watkins | 3 | 21-Nov-02 |
| Attention NEW ENGLANDERS planning a meet | 2 | 21-Nov-02 |
| Have subject of EB on Oprah | 24 | 21-Nov-02 |
| Mom charging dad of eb child with child | 9 | 20-Nov-02 |
| oral surgery | 3 | 17-Nov-02 |
| Sue C | 2 | 16-Nov-02 |
| Vaccines | 5 | 16-Nov-02 |
| Genetics | 4 | 16-Nov-02 |
| looking someone who speaking polish | 2 | 14-Nov-02 |
| Message for Bruce | 5 | 14-Nov-02 |
| Searching for Lillian Sparks | 2 | 14-Nov-02 |
| Has anyone tryed a holistic doctor??? | 27 | 13-Nov-02 |
| Is PRK Laser Eye Surgery OK for Web-Cock | 5 | 13-Nov-02 |
| Help with feeding an infant - which bott | 9 | 12-Nov-02 |
| My son has no blisters now. | 3 | 11-Nov-02 |
| Geneotyping | 3 | 11-Nov-02 |
| Message for Sandy | 4 | 11-Nov-02 |
| To bandage or not to bandage..... | 23 | 10-Nov-02 |
| Message for Madeline | 2 | 10-Nov-02 |
| any one needs suplies | 2 | 10-Nov-02 |
| baggy satin pajamas | 2 | 10-Nov-02 |
| Itching where bandaged | 11 | 09-Nov-02 |
| found new shoe company | 2 | 08-Nov-02 |
| Need Input Please | 9 | 08-Nov-02 |
| SWIMMING POOL? PLEASE RESPOND ASAP | 10 | 07-Nov-02 |
| Blister Prevention | 13 | 06-Nov-02 |
| diaper choices | 15 | 03-Nov-02 |
| Apligraf v. CCS? | 4 | 03-Nov-02 |
| Disability approved in four months | 6 | 02-Nov-02 |
| EB Group-Metro Philly-Meeting August 17t | 3 | 02-Nov-02 |
| has anyone tried elidel cream | 5 | 01-Nov-02 |
| downs syndrome | 44 | 01-Nov-02 |
| Miami Derm wants EB Wound Care Info | 2 | 31-Oct-02 |
| WHAT SHOES WORK FOR EBS-DM? | 58 | 31-Oct-02 |
| Question about RDEB. | 6 | 30-Oct-02 |
| EB Support-Philly-Save the Date! Nov. 23 | 2 | 30-Oct-02 |
| Update on Paula and little Dylan - Texa | 8 | 27-Oct-02 |
| Brenden | 5 | 27-Oct-02 |
| To Kermitt from Debi & NIck | 2 | 26-Oct-02 |
| Book of Personal Stories/Resources - HEL | 3 | 24-Oct-02 |
| HELP TO BUILD A CHILDRENS HOME | 3 | 24-Oct-02 |
| hand surgery | 12 | 24-Oct-02 |
| Dentistry question | 3 | 24-Oct-02 |
| Insurance Company | 11 | 21-Oct-02 |
| Anyone need a pair of shoes? | 3 | 17-Oct-02 |
| Baby on the way! | 32 | 15-Oct-02 |
| 14 year old girl with eb | 1 | 13-Oct-02 |
| special needs insc in texas | 1 | 10-Oct-02 |
| Working to find a cure for RDEB and JEB | 14 | 09-Oct-02 |
| Ladies 15 and up with RDEB please read | 18 | 08-Oct-02 |
| Share your personal story..... | 4 | 08-Oct-02 |
| EB book | 3 | 06-Oct-02 |
| 16 yr old with RDEB in Pennsylvania | 4 | 06-Oct-02 |
| IVIG Treatments & EB | 4 | 05-Oct-02 |
| talking and mouth sores | 4 | 04-Oct-02 |
| Sara | 2 | 04-Oct-02 |
| S.D. baby had biopsy want info from you | 8 | 04-Oct-02 |
| Saltwater and Epsom salt baths | 24 | 03-Oct-02 |
| penpals wanted please*S | 46 | 01-Oct-02 |
| Granulation tissue appearance | 11 | 30-Sep-02 |
| Please anweser as soon as possable | 16 | 30-Sep-02 |
| To Marleen in NJ | 6 | 29-Sep-02 |
| Anyone near Toledo Ohio?? | 4 | 26-Sep-02 |
| EB BOOK INFO-NEED VOLUNTEERS | 1 | 26-Sep-02 |
| Some comfort for Jaquiline | 3 | 25-Sep-02 |
| Pediatrician in NJ | 8 | 24-Sep-02 |
| Writing EB book/personal accounts... | 2 | 23-Sep-02 |
| tetracyline and atarax | 5 | 23-Sep-02 |
| Looking for Shawn | 1 | 20-Sep-02 |
| To Terry/hand surgery | 3 | 20-Sep-02 |
| Signs of internal blistering | 10 | 17-Sep-02 |
| Educating the Doctors | 1 | 17-Sep-02 |
| Anyone in Texas With EB? | 31 | 15-Sep-02 |
| To Lauara in Plano TX | 4 | 15-Sep-02 |
| 16 mo. old with DDEB | 5 | 14-Sep-02 |
| Found this book on amazon.com....might b | 5 | 13-Sep-02 |
| Respite? | 7 | 13-Sep-02 |
| hair dye | 12 | 12-Sep-02 |
| penpal wanted | 20 | 12-Sep-02 |
| Looking for a Dermatologist in South Dak | 1 | 11-Sep-02 |
| I have posted this before, but is there. | 7 | 10-Sep-02 |
| 15 with eb | 4 | 10-Sep-02 |
| Friend and EB Mom in Texas Needs Help | 3 | 10-Sep-02 |
| Opportunity for Awareness | 6 | 10-Sep-02 |
| To Laura in Plano, TX | 2 | 09-Sep-02 |
| To Debi, Sylvia, Sue Chapman etc. | 6 | 09-Sep-02 |
| someone tell me something to help my son | 21 | 08-Sep-02 |
| My daughter has EB; I need a friend who. | 9 | 08-Sep-02 |
| throat problems | 12 | 08-Sep-02 |
| Aquaphor | 14 | 06-Sep-02 |
| Educating Dr's - Some success | 3 | 06-Sep-02 |
| CCS | 7 | 05-Sep-02 |
| What does everyone do regarding rude sta | 27 | 04-Sep-02 |
| New member of the EB family | 11 | 04-Sep-02 |
| Looking for information in Colorado | 9 | 04-Sep-02 |
| Wow, such great information | 3 | 04-Sep-02 |
| Looking for people in WI that suffer fro | 4 | 03-Sep-02 |
| craddle cap | 5 | 03-Sep-02 |
| Bathing with baking soda | 10 | 03-Sep-02 |
| My son starts daycare other parents are | 6 | 02-Sep-02 |
| Texans - are you there? | 2 | 01-Sep-02 |
| what form of ebs does my child have??? | 7 | 29-Aug-02 |
| To Amanda | 2 | 28-Aug-02 |
| hi laura from texas | 1 | 27-Aug-02 |
| hi amy and mason | 1 | 27-Aug-02 |
| silverized antimicrobial wound dressings | 6 | 27-Aug-02 |
| Breast Reduction | 5 | 27-Aug-02 |
| LOOKING FOR DR. LEVEY | 4 | 26-Aug-02 |
| Difficult decision | 8 | 26-Aug-02 |
| HERE ARE SOME EBS SITES | 1 | 25-Aug-02 |
| FOUND SOME SITES ABOUT EBS | 1 | 25-Aug-02 |
| Need info about Medicaid | 13 | 25-Aug-02 |
| EB and AFP (Alpha Fetal Proteins) | 11 | 25-Aug-02 |
| A message for Jennifer and Ernie Lytinsk | 1 | 23-Aug-02 |
| A MESSAGE FOR ALLYSON | 5 | 22-Aug-02 |
| Looking for Linnet | 5 | 22-Aug-02 |
| Hi, Sue from Maine, have a question, don | 2 | 22-Aug-02 |
| Create Media Attention | 2 | 22-Aug-02 |
| want to talk to people with ebs | 6 | 22-Aug-02 |
| Moccasins - GREAT PRICE FOUND | 7 | 22-Aug-02 |
| we need very inportant information pleas | 6 | 22-Aug-02 |
| brushing teeth | 3 | 20-Aug-02 |
| Share info. on use of Desitin | 4 | 19-Aug-02 |
| Soccer,rough sports, and EB | 11 | 19-Aug-02 |
| Anyone try Ultrase for IBS& digestive pr | 3 | 19-Aug-02 |
| It worked well for us - Epsom Salts | 1 | 17-Aug-02 |
| Please help and E-Mail Montel...... | 6 | 15-Aug-02 |
| Anyone in the Arkansas area? | 3 | 15-Aug-02 |
| webbing | 4 | 15-Aug-02 |
| Using a localized pain medicine? | 12 | 15-Aug-02 |
| Have caught media attention re: EB - Hel | 2 | 14-Aug-02 |
| EB in North Carolina | 2 | 14-Aug-02 |
| Epsom salt soaks/baths | 1 | 13-Aug-02 |
| ebs and social security income??? | 5 | 12-Aug-02 |
| TO SUE IN MAINE - FROM LIZA | 2 | 12-Aug-02 |
| Doctors not familiar with EB - help them | 2 | 11-Aug-02 |
| FALLYN RAICHEAL 4-16-2002 | 4 | 10-Aug-02 |
| Protection for knees and elbows | 3 | 10-Aug-02 |
| Family Members - when they have our kids | 6 | 09-Aug-02 |
| EB and Lupus? Organ problems with EB? | 2 | 05-Aug-02 |
| HELLO EBS TEXANS | 1 | 04-Aug-02 |
| E-Mail Addresses/ Keeping in Touch | 1 | 04-Aug-02 |
| Australian National Camp/Conference. | 1 | 04-Aug-02 |
| THANKS to all who helped write and e-mai | 1 | 03-Aug-02 |
| hey yall I want to meet ebs people from | 2 | 03-Aug-02 |
| Write to Readers Digest............ | 1 | 02-Aug-02 |
| clothes for 1 year old girl | 2 | 01-Aug-02 |
| my 3 yr old has ebs. any one want to tal | 13 | 01-Aug-02 |
| writing EB baby book | 2 | 01-Aug-02 |
| Trying to find parents of EB child...... | 1 | 31-Jul-02 |
| My son has EB on hands and feet he his 6 | 6 | 28-Jul-02 |
| message for Michelle from TX | 2 | 28-Jul-02 |
| A few questions regarding exercising my | 6 | 28-Jul-02 |
| My world just shrunk... Mary Trotter any | 2 | 26-Jul-02 |
| Jessica's special tretment "picc-line" | 5 | 25-Jul-02 |
| How to keep dressings on legs | 10 | 23-Jul-02 |
| has anyone tried moccasins? there GREAT! | 9 | 22-Jul-02 |
| Tricia Howe's Family Thanks You | 1 | 21-Jul-02 |
| Need reccomendation Doctor/Hospital Wisc | 15 | 21-Jul-02 |
| looking for a friend | 7 | 20-Jul-02 |
| Esophageal Dilitation Dr.s in NY area. | 1 | 19-Jul-02 |
| DR. FINE & MADELINE WEINER CO-AUTHORED P | 1 | 19-Jul-02 |
| Tongue release | 3 | 19-Jul-02 |
| Oral Surgeon in San Antonio Tx | 3 | 17-Jul-02 |
| reply to Debi | 1 | 17-Jul-02 |
| swimming and G-tubes | 6 | 16-Jul-02 |
| ebmommas | 3 | 16-Jul-02 |
| EB Group-Metro Philly-Meeting August 17t | 1 | 16-Jul-02 |
| Bec | 5 | 15-Jul-02 |
| teeth | 16 | 15-Jul-02 |
| Message for Wendy | 6 | 06-Jul-02 |
| Wonderful help in Cincinatti, Oh | 1 | 06-Jul-02 |
| any adults with eb from IL or MO ? | 10 | 04-Jul-02 |
| a message for Gavin | 10 | 04-Jul-02 |
| RDEB with Eye Problems, are we the only | 12 | 29-Jun-02 |
| A message for Christine in Philly | 2 | 25-Jun-02 |
| Questionable skin biopsy | 8 | 25-Jun-02 |
| Message For Lucilla | 3 | 23-Jun-02 |
| EB Georgia Group Meeting For JUNE | 2 | 21-Jun-02 |
| i feel like i did this to my son gave hi | 10 | 17-Jun-02 |
| eb people that lives in Conneticut | 1 | 15-Jun-02 |
| International Travel w/EB | 7 | 11-Jun-02 |
| vacuum therapy | 1 | 08-Jun-02 |
| Blisters under callouses on feet | 16 | 07-Jun-02 |
| throat opening | 7 | 06-Jun-02 |
| Bruce's Website | 16 | 06-Jun-02 |
| someone that knows about g-tube please | 8 | 06-Jun-02 |
| My infint son has EB please lisson | 6 | 05-Jun-02 |
| Help with 2 year old w/severe stomach pr | 1 | 02-Jun-02 |
| Just Me | 4 | 02-Jun-02 |
| skin changes during pregnancy | 2 | 30-May-02 |
| FUN TIME AT DISNEY/2002 | 12 | 29-May-02 |
| need to vent | 25 | 28-May-02 |
| To Patricia from Sue | 1 | 25-May-02 |
| New DebRA Nurse | 10 | 24-May-02 |
| Nurse Mom of RDEB Teen | 1 | 23-May-02 |
| RDEB who has had a blood transfusion | 6 | 23-May-02 |
| student doing research | 6 | 21-May-02 |
| Looking for (step-parents) Support | 31 | 20-May-02 |
| Long Lasting Fever? | 14 | 19-May-02 |
| RDEB and Kidney Transplant | 4 | 18-May-02 |
| Gum Infections! | 4 | 17-May-02 |
| New DebRA staff | 2 | 15-May-02 |
| convaid stroller-when the tootsie's are | 3 | 14-May-02 |
| nail clipping | 5 | 12-May-02 |
| EB Simplex Weber Cockayne | 8 | 11-May-02 |
| Loosing skin on legs like sunburn but no | 2 | 09-May-02 |
| LOOKING FOR CARLY AND HER MOM FROM DISNE | 1 | 01-May-02 |
| Allwyn cream | 7 | 30-Apr-02 |
| By to DebRA | 2 | 26-Apr-02 |
| rheumatoid arthritis | 11 | 26-Apr-02 |
| Circumsions on EB Kids | 2 | 24-Apr-02 |
| leg muscle pain | 4 | 23-Apr-02 |
| EB Group-Metro Philly-Meeting April 27th | 1 | 22-Apr-02 |
| Sunblock and bug spray ????? | 4 | 19-Apr-02 |
| pen pal wanted | 9 | 18-Apr-02 |
| new EB pt in Kansas City | 6 | 16-Apr-02 |
| Volunteers Needed - Border of MI and IN | 1 | 16-Apr-02 |
| schools that don't understand | 43 | 13-Apr-02 |
| bathing | 16 | 11-Apr-02 |
| throat problems | 14 | 10-Apr-02 |
| ALGUIEN CON RDEB,QUE HABLE ESPANOL | 2 | 10-Apr-02 |
| To Laura in Plano,TX | 5 | 09-Apr-02 |
| experiment to toughen skin | 30 | 09-Apr-02 |
| Biometics | 6 | 09-Apr-02 |
| Babies Born in the Year 2000 | 29 | 09-Apr-02 |
| bowel movements | 22 | 08-Apr-02 |
| Kermitt.....CAMP | 3 | 08-Apr-02 |
| To Jessica R's mommy | 7 | 04-Apr-02 |
| dowling meara w/a fever = no blisters | 15 | 04-Apr-02 |
| Alipgraft | 1 | 03-Apr-02 |
| Insurance Exception Wordage | 8 | 02-Apr-02 |
| excess mucous | 22 | 31-Mar-02 |
| 40 Year Old Feet | 5 | 28-Mar-02 |
| Argentina EB. Need someone speak spanish | 4 | 28-Mar-02 |
| some 20-30 with eb simplex | 12 | 27-Mar-02 |
| kellys passing | 4 | 27-Mar-02 |
| Stevies Purple Wheelchair | 3 | 27-Mar-02 |
| Make-A-Wish for Lizie | 6 | 27-Mar-02 |
| LOOKING FOR A GUY NAMED MATT FROM DISNEY | 3 | 26-Mar-02 |
| Need to Know | 3 | 26-Mar-02 |
| Dear Sandy | 2 | 24-Mar-02 |
| Suggestions for wound cleansing? | 12 | 22-Mar-02 |
| EB in WI | 8 | 22-Mar-02 |
| New Family in Arlington Texas needs help | 2 | 21-Mar-02 |
