DonateWith help from supporters like you, Debra of America continues to provide programs and services to people with Epidermolysis Bullosa and their families, and to support EB research.
|The mounting cost of bandages is most often not covered by an EB family's health insurance.||89.4¢ of every dollar donated goes directly to EB patients, families, and research.|
Patient Care Conference 2008
June 19-22, 2008
Renaissance Denver Hotel
3801 Quebec Street
Every two years Debra's PCC provides the opportunity to gather and attend educational sessions about various medical issues in EB and to ask questions of the expert presenters. It is also a great way to meet and reunite with friends in the EB community.
More than 300 people visited Denver for Debra’s 2008 Patient Care Conference (PCC) entitled “New Heights, New Hopes”. Denver, the capital of Colorado, played host to the free biennial conference that featured presentations from leading authorities on Epidermolysis Bullosa (EB). Denver was chosen as the 2008 venue due to its strong connection to the EB community through the EB Clinic at Colorado Children’s Hospital.
Mary Sprague, the Executive Director of Debra, opened the conference with a welcome to all families and medical professionals that traveled to attend this one-of-a-kind meeting of families and doctors from around the nation. The four-day conference provided the unique opportunity for experts in the field and families to come together to share information and an open forum to ask questions. It also allows families to meet in person and share their experience and suggestions with each other.
The agenda covered topics including wound care, nutrition, research, physical therapy, entering the schools, stem cell treatment, dental care and pain management among many others. National Rehab generously offered to record the sessions and have made them available to the EB community.
While the adults were immersed in the sessions, the children had the opportunity to spend time together working on projects and playing in the Kid’s Room. It is due to the amazing volunteers. Their time and seemingly limitless amounts of energy kept the room filled with laughter and the children entertained.
The PCC is free to all attendees and was supported in part, through the generosity of Title Sponsor Hollister Woundcare. Support provided by Gold Sponsor Molnlycke Healthcare and Silver Sponsor National Rehab also helped to make this conference possible. In addition, the conference received general support from Byram Healthcare, Direct Medical, Mr. & Mrs. Mark McCaughtry, Pedors, Smith & Nephew, The Brotman Foundation and Wayne Westland Friends of EB.
The next Patient Care Conference will be held in 2010 with the date and location to be determined. Details will be shared as they are available.
This Conference would not have been possible without all of the Doctors, Nurses, and other wonderful medical professionals and volunteers who worked so closely with us to make this year’s Patient Care Conference happen . We will never be able to thank you enough.
PCC Conference DVD Available Now - DebrRA of America's 2008 Patient Care Conference was filmed by National Rehab in collaboration with Debra. National Rehab is a specialist in advanced wound care supplies and service. National Rehab has had a long standing commitment to the EB community. If you would like to receive a copy of Debra's 2008 Conference DVD, please click here.