2012 Patient Care Conference Speakers

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Kaycie Artus
Camp Spirit

Kaycie Artus has been a Physical Therapist at Children's Hospital Colorado for 30 years. She was Clinical Coordinator and specialized in Abnormal Development and Abnormal Biomechanics. She has been treating children with EB for over 30 years, starting at Denver Health prior to Children’s Hospital Colorado. Kaycie has a special place in her heart for children with EB, and when Children’s started a multi-specialty clinic for patients and families she became the Physical Therapy Specialist. In 2005 she started Camp Spirit, a Winter Adventure Camp for children with Recessive Dystrophic EB.

Kaycie Artus


Richard G. Azizkhan, MD, PhD
Co-Director of Epidermolysis Bullosa Center
Cincinnati Children's Hospital

Dr. Richard Azizkhan is the Surgeon-in-Chief at the Cincinnati Children's Hospital Medical Center since 1998. He occupies the Lester W. Martin Chair in Pediatric Surgery and is also Professor of Surgery and Pediatrics at the University of Cincinnati, College of Medicine. He is founding Co-Director of the Cincinnati Children’s Epidermolysis Bullosa Center. Dr. Azizkhan's innovations and contributions to the management of childhood cancer, neonatal anomalies, chest wall deformities, vascular malformations, EB and esophageal disorders and have led to international recognition and numerous awards. He is currently the President of the World Federation of Associations of Pediatric Surgeons. For 20 years, Dr. Azizkhan has been actively involved in International Medical Education and medical humanitarian activities throughout the world.

Richard G. Azizkhan


Marita Black, PT, DPT, PCS
Assistant Head Physical Therapist
Morgan Stanley Children’s Hospital of New York

Marita Black is the Assistant Head Physical Therapist at Morgan Stanley Children's Hospital of New York. Along with working in the NICU and treating outpatients, she also functions as the primary Physical Therapist for the Epidermolysis Bullosa Clinic at Columbia University Medical Center. Marita has eight years’ experience as a Physical Therapist, including more than five years in pediatrics. She has worked with children of all ages who are diagnosed with EB and has been involved in research after bone marrow transplants. Marita is a Pediatric Certified Specialist. She received her Transitional Doctorate of Physical Therapy from Temple University, a Physical Therapy Master's degree from Boston University, and a Bachelors of Science degree in Psychobiology from Binghamton University.

Marita Black


Anna Bruckner, MD
Associate Professor of Dermatology and Pediatrics
Children’s Hospital Colorado

Dr. Anna Bruckner was born and raised in Colorado and then attended Northwestern University for her undergraduate education and medical school. She returned to Colorado for training in pediatrics and dermatology, and then completed a Pediatric Dermatology fellowship at the University of California, San Francisco. Dr. Bruckner was on the faculty in the Department of Dermatology at Stanford University from 2004-2011 before returning to Colorado. She currently directs the EB clinic at Children's Hospital Colorado. Her academic interests are improving clinical care and outcomes for patients with genetic skin disorders, particularly Epidermolysis Bullosa.

Anna Bruckner


Mei Chen, PhD
Professor and Director of Research
University of Southern California

Dr. Chen obtained a Ph.D. in Cell Biology, Virology and Molecular Biology at Albert Einstein College of Medicine in New York. After postdoctoral training in Cell and Developmental Biology at Memorial Sloan-Kettering Cancer Center and Cornell University Medical College, Dr. Chen joined the faculty of the Dermatology at Northwestern University Medical School and then the University of Southern California where she is currently Professor and Director of USC Laboratories for Investigative Dermatology. Dr. Chen’s research has focused on developing various therapeutic approaches including cell therapy, protein therapy and gene therapy for Dystrophic Epidermolysis Bullosa. Her research programs have been continuously supporting by NIH grants for the last twenty years.

Dr. Mei Chen


Angela M. Christiano, PhD
Professor of Dermatology and Genetics & Development
Columbia University

Dr. Angela M. Christiano obtained her BA in Biology from Rutgers University, and her MS and PhD in Microbiology and Molecular Genetics at Rutgers University/UMDNJ. Her postdoctoral training was in the Department of Dermatology at Jefferson Medical College. She joined the Faculty of Dermatology at Columbia University in 1995, and is currently the Richard and Mildred Rhodebeck Professor of Dermatology and Genetics & Development and Vice-Chair for Basic Science Research in Dermatology. She is the Director of the Center for Human Genetics and Co-Director of the Center for Skin and Mucosal Biology in the School of Dental Medicine. Dr. Christiano was instrumental in defining the molecular basis of epidermolysis bullosa. Her lab is now pursuing the use of bone marrow derived cells to treat skin disorders, and is carrying out translational research in collaboration with Dr. Mitchell Cairo at Columbia University.

Angela Christiano, PhD


Mark de Souza, PhD
President and CEO
Lotus Tissue Repair, Inc.

Mark is a founder of Lotus Tissue Repair and serves as its President and Chief Executive Officer. Prior to founding Lotus, he was Vice President of Business Development at Dyax Corp, a biopharmaceutical company which discovered, developed and commercializes KALBITOR®, its lead product in hereditary angioedema, an orphan genetic disease. He joined Dyax in 2001. Since 2003, he led the business development team, which was responsible for licensing Dyax’s phage display technology and products, generating >$200 million from 50+ licensing transactions. Prior to joining Dyax, he led an academic research lab at the University of California, Berkeley.

Dr. Mark de Souza


Faye Dilgen, PT
Doctor of Physical Therapy, PT Supervisor
Harkness Center for Dance Injuries

Dr. Dilgen is the Supervisor of Dance Physical Therapy at the Harkness Center for Dance Injuries, NYU Hospital for Joint Diseases. She received her graduate PT education and DPT from Long Island University, where she served on the faculty as Adjunct Professor of Cardiopulmonary Function. Dr. Dilgen has also served on the faculty at College of Staten Island. In addition, Dr. Dilgen is the mom of 9 year old John Hudson, who has RDEB. When John Hudson was born, she along with Cathy Twible and Michele Disco started a support group in NY for families affected by EB.

Faye Dilgen


Ravindhra Elluru, MD, PhD
Associate Professor
Cincinnati Children’s Hospital

Dr. Elluru is a Pediatric Otolaryngologist at Cincinnati Children’s Hospital. In addition to treating general ears, nose, and throat diseases, he specializes in the treatment of disorders of the larynx and trachea. He has worked with the EB Center at Cincinnati Children’s Hospital to treat children with airway involvement. He is sincerely and passionately interested in helping children with EB and their families enjoy the best quality of life possible.

Dr. Ravindhra Elluru


Michael K. Farrell, MD
Chief of Staff
Cincinnati Children's Hospital

Dr. Michael Farrell graduated from Jefferson Medical College, and served in Navy for 3 years. He completed a Residency and Fellowship at Cincinnati Children’s Hospital. Currently, he is Professor of Pediatrics UC College of Medicine and Chief of Staff at Cincinnati Children’s Hospital. His interests are general pediatric gastroenterology and nutritional issues in chronic disease.  Dr. Farrell has worked with EB patients last ten years.

Dr. Michael K. Farrell


Sharon A. Glick, MD
Director, Pediatric Dermatology
SUNY Downstate Medical Center

Dr. Sharon A. Glick is an Associate Clinical Professor of Dermatology and Pediatrics at the State University of New York (SUNY) Downstate Medical Center at Brooklyn, NY. She is a board-certified dermatologist and pediatric dermatologist, and a fellow of the American Academy of Dermatology and the American Academy of Pediatrics. Dr. Glick received her MD from Albert Einstein College of Medicine and completed residencies in dermatology and pediatrics at Yale New Haven Hospital. She earned an MS degree in human genetics from Sarah Lawrence College. Her clinical and research interests include Epidermolysis Bullosa, infantile hemangiomas, acne, atopic dermatitis and the genodermatoses. She currently serves on the Scientific Advisory Board of DebRA.

Dr. Sharon Glick


Michelle Graham
Insurance Consultant
National Rehab (NR)

Michelle Graham has served as the NR EB Advocate Team’s insurance expert for six years. She has 15 years’ experience navigating the complex health insurance landscape. She works tirelessly to help find answers to even the most difficult insurance questions. Michelle first learned about EB while assisting one of the first children to undergo BMT. Michelle understands the importance of having wound care supplies covered by insurance. Prior to NR, she helped people who have hemophilia obtain much needed medication through their insurance.

Michelle Graham


Lynne D. Hubbard
Specialist Dietitian in Epidermolysis Bullosa
St. Thomas' Hospital, London

Lynne Hubbard began her dietetic career in 1985 and spent 19 years caring for adults and children with burn injury at the Regional Burns Unit in Birmingham. She completed her MPhil in 2005 on causes of faltering growth in children after burn injury. Lynne Hubbard joined the adult EB team at St. Thomas’ Hospital, London in 2005 and has been able to use her past experience in burn injury to work with people who have EB and their families, helping them maintain good nutrition and enjoy food as a positive part of life.

Lynne Hubbard


Arturo Kantor, MD
Director, Cornea Service
Fundación Oftalmológica Los Andes (Andes Ophthalmological Foundation)

Dr. Arturo Kantor is the Director of Cornea Service at Fundación Oftalmológica Los Andes (Andes Ophthalmological Foundation) in Santiago, Chile.  In 1995, he received the award for Best Graduate Training Program in Ophthalmology from the Chilean Society of Ophthalmology and Alcon Laboratories. He has taught at Universidad de Chile, Universidad de los Andes, the University of Iowa, and taught graduate courses in the Chilean Society of Ophthalmology. He has presented at international congresses, both in Chile and abroad.  He was the first physician to perform a successful Keratoprosthesis (replacing damaged/diseased cornea with an artificial one) in a child with EB.

Dr. Arturo Kantor


Alfred Lane, MD, MA
Professor of Dermatology and Pediatrics
Stanford University Medical School.

Dr. Alfred T. Lane is a Professor of Dermatology and Pediatrics at Stanford University Medical School. Al joined the faculty in 1990, and was Chair of the Department of Dermatology from 1995 till 2010. His clinical practice is limited to pediatric dermatology. Al currently works with a Stanford research team focusing on developing protein therapy, gene therapy, and stem cell therapy for EB and other genetic skin diseases. In the process of preparing for gene therapy clinical trials, he completed a Masters of Arts in Religious Studies (Spirituality) at Santa Clara University. He has tried to focus his education in the areas of moral decision-making in medical care, specifically on genetic research on children with severe life threatening diseases.

Dr. Alfred Lane


Anne Lucky, MD
Pediatric Dermatologist
Cincinnati Children’s Hospital

Dr. Anne Lucky practices Pediatric Dermatology at Cincinnati Children’s Hospital and at Dermatology Associates of Cincinnati. She received her AB degree from Brown University in 1966 and MD degree from the Yale University School of Medicine in 1970. She completed training in Pediatrics at Boston Children’s Hospital, Human Genetics at Yale, Endocrinology at the National Institutes of Health, and Dermatology at Yale. Anne is a member of the Society for Pediatric Dermatology and served for 10 years on the American Board of Dermatology, being past-president of both organizations. She is one of the founders and serves as a Co-Director of Cincinnati Children’s Epidermolysis Bullosa Center.

Dr. Anne Lucky
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