Privacy Policy

Dystrophic Epidermolysis Bullosa Research Association of America (debra of America) is committed to protecting the privacy of donors and visitors to our website. The following information discloses our information gathering and dissemination practices for this website: debra of America,

Each Internet browser has a feature called "cookies" which store small amounts of data on your computer about your visit to We use cookies to tell us how and when pages in our site are visited, what users’ technology preferences are (such as what video player they use) and whether our site is functioning properly. In the future, cookies may be used to deliver content specific to your interest.

Aggregate Traffic Data
Each time a visitor comes to, we automatically gather certain usage information, such as the frequency of visitors to the site. This information may include which URL you just came from, which URL you next go to, what browser you are using, and your Internet Protocol (IP) address. We use software to keep track of traffic to our site and acquire such information as the location from which the traffic originates and which particular pages within are being viewed and for how long. We may know for instance, that we had 20,000 hits and 4,000 individual visitors to our website today, but we do not know their names, home or business addresses, or other personal information.

Third Parties
Your name or other information will not be shared with third parties unless you have specifically requested to do so or granted us permission to do so.

debra of America’s website contains links to other websites. debra of America is not responsible for the privacy practices or the content of such websites.

We care about the security of your transactions and use standard industry practices to safeguard your credit card information. We use high-grade encryption and secure https protocol to communicate with your browser software, which is a safeguard against interception of the credit card information you give us.

Our site uses forms for visitors to request information, products, and services. We collect contact information (like e-mail address), and financial information (like account or credit card numbers). Contact information from the forms is used to ship products, deliver services, and to send information about our organization. Users may opt-out of receiving future mailings by sending an e-mail to staff [at] debra [dot] org or sending a letter to the following postal address:

debra of America
75 Broad Street, Suite 300
New York, NY 10004

Contacting debra of America
If you have any questions about this privacy statement, the practices of this site, or your dealings with this website, you may contact staff [at] debra [dot] org.