Support & Resources

Debra raises awareness of EB, procures medical supplies direly needed by families, provides access to medical specialists and facilitates international fundraising efforts. Executives and board members travel around the country, and the world, to ensure that the EB message is heard: these patients need care, these families need support, and the breakthrough EB research needs sustainable funding until there is a cure for EB. 89.4 cents of every dollar raised by Debra goes directly to efforts in EB care, research and cure. Debra of America is a national 501(c) 3 registered non-profit organization.


The Debra Nurse Educator
Get live help from a registered nurse experienced in EB care. Services are available in english and spanish.

Contact the Debra Nurse Educator

What is EB and Your Welcoming Classroom DVD

This two-part DVD was developed by the multidisciplinary Epidermolysis Bullosa Team at The Children’s Hospital of Colorado, and is endorsed by Debra of America. It is a guide for making the school experience supportive and academically challenging for students with Epidermolysis Bullosa.

Learn More

EB Cards
Debra has created 2 x 3.5 inch EB Cards that can be passed out in the community -- to business owners, other parents, neighbors-- quickly explaining what EB is and how it affects you/your child.

Order a FREE set of 30 or download and print as many as you need

Current Research Trials
Researchers from countries around the globe are investigating new therapies. Learn about studies that are currently recruiting patients.

View Current Reseach Trials

Insurance Issues & Social Security
Important information regarding Insurance and Social Security.

Insurance and Social Security Related Resources

Connect with the Debra Online Community
Interact with members of the Debra community including EB families and supporters.

Connect with others Online

Access the Resource Store on Amazon
Browse an online store offering items most commonly needed by EB families.

Visit the EB Store for Families

International Debra Organizations
Debra of America is actively involved in the international community. Debra of America can refer those outside of the United States to Debra organizations in their respective countries.

Find a Debra Organization in Your Country

Debra of America supports the Make-A-Wish Foundation
Some of our Butterfly children may be eligible to have their wishes granted through the Make-A-Wish Foundation.

Learn More

Información en Español
Recibir información sobre EB en español.

Visitar Debra en Español

Debra’s Website & Newsletter
Provides current information on EB resources to patients, caregivers and health professionals. Also, shares family stories, news articles, supporter led events happenings, ways to get involved and Debra merchandise.

Sign up for our Newsletter

Go Back
Return to "Family Center"

Related Information/Links
Contact the Nurse Educator
Contact Debra of America
What is EB?
Read Questions Previously Asked to the Nurse Educator