DonateWith help from supporters like you, Debra of America continues to provide programs and services to people with Epidermolysis Bullosa and their families, and to support EB research.
|The mounting cost of bandages is most often not covered by an EB family's health insurance.||86.4¢ of every dollar donated goes directly to EB patients, families, and research.|
Support & Resources
Debra raises awareness of EB, procures medical supplies direly needed by families, provides access to medical specialists and facilitates international fundraising efforts. Executives and board members travel around the country, and the world, to ensure that the EB message is heard: these patients need care, these families need support, and the breakthrough EB research needs sustainable funding until there is a cure for EB. 89.4 cents of every dollar raised by Debra goes directly to efforts in EB care, research and cure. Debra of America is a national 501(c) 3 registered non-profit organization.
The Debra Nurse Educator
Get live help from a registered nurse experienced in EB care. Services are available in english and spanish.
What is EB and Your Welcoming Classroom DVD
This two-part DVD was developed by the multidisciplinary Epidermolysis Bullosa Team at The Children’s Hospital of Colorado, and is endorsed by Debra of America. It is a guide for making the school experience supportive and academically challenging for students with Epidermolysis Bullosa.
Debra has created 2 x 3.5 inch EB Cards that can be passed out in the community -- to business owners, other parents, neighbors-- quickly explaining what EB is and how it affects you/your child.
Current Research Trials
Researchers from countries around the globe are investigating new therapies. Learn about studies that are currently recruiting patients.
Insurance Issues & Social Security
Important information regarding Insurance and Social Security.
Connect with the Debra Online Community
Interact with members of the Debra community including EB families and supporters.
Access the Resource Store on Amazon
Browse an online store offering items most commonly needed by EB families.
International Debra Organizations
Debra of America is actively involved in the international community. Debra of America can refer those outside of the United States to Debra organizations in their respective countries.
Debra of America supports the Make-A-Wish Foundation
Some of our Butterfly children may be eligible to have their wishes granted through the Make-A-Wish Foundation.
Información en Español
Recibir información sobre EB en español.
Debra’s Website & Newsletter
Provides current information on EB resources to patients, caregivers and health professionals. Also, shares family stories, news articles, supporter led events happenings, ways to get involved and Debra merchandise.
Return to "Family Center"
Contact the Nurse Educator
Contact Debra of America
What is EB?
Read Questions Previously Asked to the Nurse Educator