Understanding EB

Patient with Epidermolysis BullosaEpidermolysis Bullosa (EB) is a rare genetic disease characterized by the presence of extremely fragile skin and recurrent blister formation, resulting from minor mechanical friction or trauma. This condition is not contagious. An estimated 1 out of every 20,000 live births are affected with some type of EB. The disorder occurs in every racial and ethnic group throughout the world and affects both sexes equally.


What is EB?
Read about what Epidermolysis Bullosa (EB) is and what causes it.
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Living With EB
Find out what life is like for those living with EB. The daily routine involves constant treatment of wounds, bandaging, pain management, and family support.
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Frequently Asked Questions
Is it contagious? What are the odds my child could be born with EB? Get straightforward answers to the most commonly asked questions.
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Family Stories
Read true stories about patients' courageous and heartbreaking daily struggle to treat and live through Epidermolysis Bullosa.
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Medical Research
While there's no cure yet, Debra is actively supporting research to find one. Learn about the strides debra and the EB community are making in the area of research.
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