DonateWith help from supporters like you, Debra of America continues to provide programs and services to people with Epidermolysis Bullosa and their families, and to support EB research.
|The mounting cost of bandages is most often not covered by an EB family's health insurance.||89.4¢ of every dollar donated goes directly to EB patients, families, and research.|
Join the Young Leadership Committee
Become a member of the debra Young Leadership Committee.
We are excited to announce the launch of our Young Leadership Committee. This program aims to increase and promote #EBawareness by training and mobilizing volunteers around the United States to educate others about the disease. The Young Leadership Committee is an affiliate group of debra of America, comprised of individuals 35-and-under who host and participate in debra Local Events across the country and whose mission is to fundraise and spread awareness of Epidermolysis Bullosa (EB) – The Worst Disease You've Never Heard Of.™
Some of the goals and responsibilities include:
- Organizing a fundraiser with friends and family (“Plan a Local Event”)
- Sharing debra's Facebook and Twitter posts
- Distributing EB informational pamphlets to spread awareness
- Promoting Epidermolysis Bullosa Awareness Week (October 25-31, 2014)
- Contacting local press (newspaper, radio, TV, blogs) (“Sample Letter”)
- Raising money for EB research by selling debra Awareness Bracelets
- Corresponding with EB children
- Inviting guests to national debra Events, including our annual Benefit Gala
We hope these ideas excite you and encourage a desire to give back. This program provides opportunities to learn more about Epidermolysis Bullosa and help make a difference in the lives of thousands of children and families who suffer daily. debra is grateful for our Young Leadership Committee members – we could not do it without their commitment.
We encourage our Young Leadership Committee members to set an annual fundraising goal of $100. We help you reach this goal by supporting and assisting you with organizing a Local Event in your community. We are here for you every step of the way. Members of our Young Leadership Committee are also invited to our annual Benefit Gala in New York City with a special discounted ticket of $100 (general admission tickets are $250). This is just another way to give back and support debra of America’s mission.
Click here to register to join our Young Leadership Committee.
For more information or to join today, please call 212-868-1573 or email events [at] debra [dot] org. For other volunteer opportunities, click here.
Return to Get Involved