Join the Young Leadership Committee!

Members of the Young Leadership Committee

The EB YLC is comprised of young professionals who host and participate in debra of America events across the country and whose mission is to fundraise and spread awareness of Epidermolysis Bullosa (EB), the worst disease you’ve never heard of.


EB YLC initiatives include event planning, advocacy, fundraising, and strategic partnerships. Members fulfill these functions in the following ways:

  • Inviting guests and sponsors to debra of America events, including our annual Benefit.
  • Organizing a fundraiser or awareness event with friends and family. See examples here.
  • Raising EB awareness:
    • Sharing debra of America's Facebook and Twitter posts
    • Distributing EB informational pamphlets. Download here
    • Promoting Epidermolysis Bullosa Awareness Week. (October 25-31, 2015)
    • Contacting local press (newspaper, radio, TV, blogs) & telling them about EB & debra of America
  • Soliciting donations and sponsorships on behalf of debra of America.
  • Recruiting new EB YLC members!


debra of America is so grateful for our EB YLC members – their support makes a huge difference in the lives of thousands of children and families who suffer with EB daily!


For more information or to join the EB YLC, please call 212-868-1573 or email events [at] debra [dot] org.

Members of the Young Leadership Committee at the 2014 debra annual benefit

Members of the Young Leadership Committee

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