1000 Laces - Let's End EB!

100 Laces - Let's End EB


We're selling 1,000 purple shoelaces to bring awareness to EB, a currently incurable skin disease.

Ellie Tavani is an 9-year-old girl who was born with Epidermolysis Bullosa (EB).  EB is a devastating, painful and disfiguring skin disease that affects children from birth. Ellie's skin is bandaged daily in order to prevent new blistering.

In 2011 Ellie's father, aunt & uncles started 1000 Laces to raise awareness for this horrible disease. They ran the NY Marathon that year as well as in 2013 & 2014. The plan was to sell 1,000 pairs of brightly colored shoelaces for $10 in order to raise at least $10,000 to help end EB. They raised close to $50,000 total!

Starting in 2016, 1000 laces will continue to raise money by selling bright colored shoelaces.  However, we hope to provide an even greater opportunity for Ellie’s community to participate in. See below for the ways in which you can participate:

1. Make a donation of $10 and receive a pair of purple shoe laces to help raise awareness for EB.

2. Make a donation of $35 and receive a pair of purple shoe laces and a purple 1,000 laces running (moisture wicking technical) shirt. (Shirts will ship in March).

3. Run the Georgia Half Marathon or Marathon on March 20th 2016 and help raise awareness for EB.  Register at http://www.atlantatrackclub.org/2016-publix-georgia.  Choose 1000 Laces as your charity and enter code CH1L16 to get a $10 discount on registration. 

4. If you own a business and would like to consider sponsoring the 2016 1000 Laces running shirt, contact Dusty Cahill at dcahill [at] mcgriff [dot] com for more details.

All of the money raised will go directly to debra of America so that Ellie and others suffering from EB can lead better lives.

To learn more about Ellie, visit www.butterflywishesforellie.com

Ellie Tavani