Attend a Supporter Led Event

Check out a list of our upcoming events below!

Nothing close to you? We also have online fundraisers:

Interested in hosting your own event?

Looking for a debra of America event?

Supporter Led Events 2015


Nationwide

Directions Luxury Travel LLC Gives Back!
In Honor of Andy Burgy

A portion of all sales at Directions Luxury Travel LLC for cruises 5 nights or longer with any cruise line will be donated to debra of America. Reservations must be made between 3/1 and 3/31 2017. For more information please contact:

Directions Luxury Travel LLC
www.directionsluxurytravel.com
352-732-7849


North Carolina

6th Annual Jogging for Jonah
In Honor of Jonah Williams
Saturday, April 1, 2017 (2:30-5 pm)
Pinedale Christian Church
Winston-Salem, NC

Introducing "Laps for a Cure"! This year we will be combining our 5K and Fun Run into one fun-filled running (and walking!) event: Laps for a Cure!
How does it work? "Laps for a Cure" allows participants to choose however many laps they'd like to run/walk and raise money per lap completed. Each lap is about 1/4 of a mile. Complete four laps as an equivalency to the Fun Run, 12 laps for a 5K, 24 laps for a 10K, or as many as you can or want to run/walk in a one hour timeframe! Set a goal ahead of time and recruit donors to sponsor you per lap on your personal fundraising page!
Learn More

For questions please contact: events [at] debra [dot] org or (212) 868-1573 x101


Georgia

11th Annual Butterfly Wishes for Ellie Benefit and Silent Auction
In Honor of Ellie Tavani
Thursday, May 4th, 2017 (6:30-10:30 pm)
The Park Tavern
Atlanta, GA

Butterfly Wishes for Ellie is an annual event in honor of Ellie Tavani, a beautiful little girl who was born in April 2006 with Epidermolysis Bullosa (EB). Our 11th Annual Butterfly Wishes For Ellie Benefit and Silent Auction will be held on Thursday, May 4, 2017 at The Park Tavern in Midtown Atlanta. All proceeds from the “11th Annual Butterfly Wishes for Ellie” benefit debra of America and its programs/services including its search for treatments (making them commercially viable and available), and research to lead to a cure for Epidermolysis Bullosa, (EB). Learn More

For questions please contact: events [at] debra [dot] org or (212) 868-1573 x101


Nationwide

The Give Back Project - Shop for EB!

Visit hilariousmom.com and shop for EB! The Give Pack Project was started by Desiree Nguyen, an EB advocate. The butterfly is not perfect in it’s pattern, it has signs of being torn and broken down, but it is still beautiful and it is strong. Those who have EB deserve a cure. The deserve to live without excruciating pain. They deserve a cure. By purchasing this design YOU will be making a donation to debra.org as I will donate 50% of my profits! YOU will also RAISE AWARENESS every time you wear this design, share this design or use an item with this design on it.

View the "Beautiful Blue Butterfly" Design & Shop

Click Here to Donate

Click Here to Contact the Artist


Nationwide

Rebecca Yount's EB Bandage Bag Fundraiser

Visit Rebecca Yount's fundraising page to sponsor a bandage bag for a new EB family! Rebecca, a grandmother to a young boy with EB is hosting a very special fundraiser to directly benefit new EB families. Rebecca is raising funds in order to supply new families with a bandage bag to hold all of the wound care that they may need - at home or on the go. These bags will be distributed through debra of America's New Family Advocate Program.

Click Here to Support This Fundraiser Today!


Cross-Country

The Big Ride for EB

In early 2018, Robb Freed will begin his 7,000 mile bike tour across the United States in honor of his son, Drake, who lost his battle with EB 8 years ago at the age of 13 months. Robb will be riding to raise money for those with EB, as well as spread EB awareness across the country.

Click Here to Learn More or Donate


Nationwide

Little Sweet Pea Closet : Shop for EB!

Visit littlesweetpeacloset.com and shop for EB! Little Sweet Pea Closet is donating a portion of all sales to debra of America. Stock up on adorable children's accessories, including headbands, tutus, pacifier straps, and mitten clips. All proceeds from the “Little Sweet Pea Closet: Shop for EB!” sales benefit debra of America and its programs/services including its search for treatments (making them commercially viable and available), and research to lead to a cure for Epidermolysis Bullosa, (EB).

Click Here to Shop     Click Here to Donate

For questions, please contact Rebecca at rebeccahbeck [at] littlesweetpeacloset [dot] com


Click Here for Past debra Supporter Led Events



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Related Information/Links
Read about EB in Greater Depth
Donate
Understanding EB