Attend a Supporter Led Event
Check out a list of our upcoming events below!
Nothing close to you? We also have online fundraisers:
Interested in hosting your own event?
Looking for a debra of America event?
NATIONWIDE
The Big Ride for EB 2019-2.0
Starting Aprll 16, 2019
On April 16, Robb Freed begins his second Big Rider for EB, a 7-month, 8,700-mile cycling bike tour across the United States in honor of his son, Drake, who lost his battle with EB 9 years ago at the age of 13 months. Robb will be riding to raise money for those with EB, as well as spread EB awareness across the country. Robb’s journey starts in Yorktown, VA and will end in Seattle, WA.
LAKE FOREST, IL
5th Annual dash4debra
Sunday, June 9, 2019 (8:00-10:30 am)
Lake Forest Academy
1500 Kennedy Road
Lake Forest, IL 60045
Join the dash4debra team as they race towards the finish line for EB on Sunday, June 9 in the 5th Annual dash4debra! This 1Mile, 5K,10K run/walk promises a fun experience for the entire family. Can't make it to Lake Forest? No problem! dash4debra is offering a virtual runner option for participants around the country! Sign up online and run/walk in your neighborhood, your favorite trail, or even at the gym.
For questions please contact: jason [at] debra [dot] org or (212) 868-1573 x102
Nationwide
Hania: Shop for EB!
October 25, 2018 - March 31, 2019
Visit Hania New York and shop for EB!
5% of the gross profits from these collections are proudly donated to debra of America, to help raise awareness and find a cure for EB, “the worst disease you’ve never heard of”.
Nationwide
The Give Back Project - Shop for EB!
Visit hilariousmom.com and shop for EB! The Give Back Project was started by Desiree Nguyen, an EB advocate. The butterfly is not perfect in it’s pattern, it has signs of being torn and broken down, but it is still beautiful and it is strong. Those who have EB deserve a cure. The deserve to live without excruciating pain. They deserve a cure. By purchasing this design YOU will be making a donation to debra.org as I will donate 50% of my profits! YOU will also RAISE AWARENESS every time you wear this design, share this design or use an item with this design on it.
View the "Beautiful Blue Butterfly" Design & Shop
Click Here to Contact the Artist
Nationwide
Rebecca Yount's EB Bandage Bag Fundraiser
Visit Rebecca Yount's fundraising page to sponsor a bandage bag for a new EB family! Rebecca, a grandmother to a young boy with EB is hosting a very special fundraiser to directly benefit new EB families. Rebecca is raising funds in order to supply new families with a bandage bag to hold all of the wound care that they may need - at home or on the go. These bags will be distributed through debra of America's New Family Advocate Program.
Click Here to Support This Fundraiser Today!
Nationwide
Little Sweet Pea Closet : Shop for EB!
Visit littlesweetpeacloset.com and shop for EB! Little Sweet Pea Closet is donating a portion of all sales to debra of America. Stock up on adorable children's accessories, including headbands, tutus, pacifier straps, and mitten clips. All proceeds from the “Little Sweet Pea Closet: Shop for EB!” sales benefit debra of America and its programs/services including its search for treatments (making them commercially viable and available), and research to lead to a cure for Epidermolysis Bullosa, (EB).
Click Here to Shop Click Here to Donate
For questions, please contact Rebecca at rebeccahbeck [at] littlesweetpeacloset [dot] com
Click Here for Past debra Supporter Led Events
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