For those with Epidermolysis Bullosa (EB), the eyes are an area that are prone to having issues.

This is a photo of a young girl with Epidermolysis Bullosa (EB).

At the 2018 debra Care Conference, Pediatric Ophthalmologist Vicki M. Chen, MD presented on eye care strategies to prevent blistering, scarring, and vision loss. 

Her presentation covered the following questions: 

  1. What EB related problems can occur in the eye?
  2. How can we prevent these problems?
  3. Can we do more to reduce pain and vision loss?
  4. Is research for EB related eye problems moving forward?


Dr. Chen is a pediatric ophthalmologist who has been caring for children with Epidermolysis Bullosa (EB) for the past 10 years. Her interest in research began when she learned that patients with severe eye disease had limited treatment options. In 2015, she initiated scientific investigation of mice with Dystrophic EB to discover how absence of collagen VII affects the eyes. This led to collaboration with Stanford University to test human collagen VII eye drops. She most recently conducted a national survey to understand how much eye problems impact patients and families with Epidermolysis Bullosa (EB). Her ultimate goal is to develop safe and effective therapies for EB.

Click below to view the entire set of slides from her 2018 DCC presentation, “Eye Care for Epidermolysis Bullosa Patients.” 

Credit: Vicki M. Chen, MD, Assistant Professor of Ophthalmology, New England Eye Center, Tufts Medical Center / Floating Hospital for Children, Boston, MA. This information was presented at the 2018 debra Care Conference.

Anterior-segment spectral domain optical coherence tomography in epidermolysis bullosa

Dr. Vicki Chen's article Anterior-segment spectral domain optical coherence tomography in epidermolysis bullosa (published in 2020) describes a new method for determining severity of eye disease in Epidermolysis Bullosa (EB). This method could help in drug development to prove therapies are working in the eyes. 

Read the article

Related Resources

This is a photo of a smiling family with a baby with Epidermolysis Bullosa (EB). EB Nurse Educator Program

Our EB Nurse Educator is available to provide sound advice for those with and caring for someone with EB.

Learn More
This is a group photo of 2018 DCC attendees. debra Care Conference

The debra Care Conference (DCC) brings together the world’s leading Epidermolysis Bullosa experts with individuals and families affected by EB for 4 days of learning, sharing and fun.

Learn More
This is a photo of a young boy with Epidermolysis Bullosa (EB). About EB

EB is a rare connective tissue disorder with many genetic & symptomatic variations. All forms of EB share the prominent symptom of extremely fragile skin that blisters & tears with any friction.

Learn More

*Please note that all medical information given by debra of America is for informational purposes only. Our information is not intended to substitute the care and guidance given by a qualified physician. All regimens of care should be discussed with the patient's doctor. Always check with your physician prior to starting any medications or treatment regimens.