Local Events

Organize a Local Event in your community to raise EB awareness and funds for debra of America.

Visit Plan Local Events. For more information, contact us at (212) 868-1573 or events [at] debra [dot] org

Attend a Debra Hosted Event.


Butterfly Project
One Direction Concert #ButterflyProject

August 24th, 2014
One Direction Concert (AT&T Stadium)
Dallas, TX

Kate and Emily are two debra of America Young Ambassadors who were very excited when Harry Styles of their favorite band, One Direction, tweeted a special message to our colleagues at DEBRA Ireland. This inspired them to start their very own #EBawareness project here in the United States.

The plan: To attend the “Where We Are Tour” One Direction concert on August 24, 2014 at AT&T Stadium in Dallas, Texas.

What to wear: Anything and everything red. Especially red bandanas.

What to bring: Posters that say, One Direction “Release Your Butterfly” for debra of America

Follow on Twitter: WWADallas_2014

For more information, visit: http://katethegreat497.blogspot.com/2014/01/butterfly-project-update.html

one direction butterfly project


First Annual Butterfly 5K
In Honor of Hannah Blake
Saturday, September 20th, 2014 (10AM)
Salt Fork State Park (14755 Cadiz Rd)
Lore City, OH

We organized the Butterfly 5K in honor of a brave girl with EB. Hanna Blake, was born on August 24, 1999 with no skin on her feet and right leg. This will be a fun, family centered event with music, food and raffles. Since this is our first year, we really need your support. Whether you are a business or an individual, there is something you can do! Even if it is to start training so that you can participate in the race or simply educating yourself about EB by visiting debra.org. Please help us to make this event a great one that will continue for many years to come! Raising awareness about EB and showing our support for families affected by this disease is such an honor and a wonderful cause to be a part of.

The race course is paved so strollers and wheelchairs are welcome! All participants will receive a tee shirt, and there will be medals/trophies for placing. The park is beautiful and overnight accommodations including camping, cottages or rooms at the lodge are available by calling 740-439-2751, or visiting www.ohiostateparks.org. If you plan to stay, please make reservations as soon as you can as the park anticipates this will be a busy time for them and spaces may fill up quickly throughout the upcoming year. All proceeds from the "First Annual Butterfly 5K" benefit DebRA of America and its programs/services including its search for treatments (making them commercially viable and available), and research to lead to a cure for Epidermolysis Bullosa, (EB).

To Register, please visit: http://debra.kintera.org/Butterfly5K

For more information or if you would like to help, please call (740)491-0396 or email at abbyroberts93 [at] yahoo [dot] com.


Valley Vintage Creations Lockets for EB
15% of sales benefit DebRA
Signal Mountain, Tennessee

Jewelry designer, Kelsey Hill Worley’s antique brass filigree lockets are handcrafted in the Tennessee Valley. Purchase one today and 15% of each sale will go to support Epidermolysis Bullosa and DebRA of America. You can specify your charm of choice: key, butterfly, or jeweled ball.

Click here to visit Valley Vintage Creations.

15% of each sale on Kelsey’s website benefits DebRA of America and its programs/services including its search for treatments (making them commercially viable and available), and research to lead to a cure for Epidermolysis Bullosa, (EB).

For more information, please contact: events [at] debra [dot] org

Butterfly Locket for DebRA

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Related Information/Links
Read about EB in Greater Depth
Understanding EB