Local Events

Check out a list of our Upcoming Local Events below!

Nothing close to you? We also have online fundraisers:

Interested in an event of your own?

Looking for a debra event?


Connecticut

Paint Nite
Friday, March 6th, 2015 (7:00 PM)
Old St. Andrews Church (59 Tariffville Rd)
Bloomfield, CT

Old Saint Andrews is proud to continue supporting team "Racing for Ryan" and debra.  Please join us for a fun paint nite while we remember Ryan David Scott.  Feel free to bring a bottle of wine for you and your friends as well as some snacks to make the evening complete.  We hope to see you there! All proceeds from “Paint Nite” benefit Rafi’s Run, debra of America, and research to lead to a cure for Epidermolysis Bullosa, (EB).

CLICK HERE TO REGISTER


NEW YORK

4th Annual Rafi’s Run
Celebrating Rafi Kopelan
Sunday, March 8, 2015 (10AM)
Riverside Park, at 103rd Street, Upper West Side, NYC

The cost of doing nothing is too great.

Success is in the doing.

So we organized Rafi’s Run.

Rafi’s Run was created because there is NO CURE or TREATMENT for Rafi, a 6 year old girl from New York City who lives in pain. Knowing this, a group of friends got together to make a difference. Rafi’s Run was started to raise money for the research to find a cure for all children who suffer from EB, the “worst disease you’ve never heard of.” Since the inception of Rafi’s Run, strides in research have been tremendous and hope for a cure is stronger than ever. Please join us this year as we continue the fight. All proceeds from the “4th Annual Rafi’s Run” benefit debra of America and its programs/services including its search for treatments (making them commercially viable and available), and research to lead to a cure for Epidermolysis Bullosa, (EB).

CLICK HERE TO REGISTER
For more information please visit: http://www.rafisrun.com/
For questions please email: contact [at] rafisrun [dot] org


Kentucky

"What Were We Talking About?"
Saturday, March 21st, 2015 (6:00PM)
Gardencourt Louisville Seminary
Louisville, KY

"What Were We Talking About” is an original play written by Linda Stoval, Gretchen Wheeler, Gale Alexander, and Vickie Cawthra, a.k.a the Wyoming Magnolias, and founders of Magnolia Productions. It debuted at the Stage III Community Theatre in Casper, Wyoming, to rave reviews. Now, we are bringing their show to Louisville. Directed and produced by Elizabeth Huling, founder of Emerging Artist Group, the play features 4 of Louisville's favorite actresses! All proceeds benefit debra of America and its programs/services including its search for treatments (making them commercially viable and available), and research to lead to a cure for Epidermolysis Bullosa, (EB).

Click here for more info and to purchase tickets!


North Carolina

Dig Up a Cure for EB
Saturday, March 21st, 2015
North Davidson High School (7227 Old US Highway 52)
Lexington, NC

Join us for an afternoon of family fun and community solidarity as we play to benefit an organization that brings joy, cheer, and respite to children with Epidermolysis Bullosa and their families. It will be a volleyball tournament. Each team can have six or more players. You MUST come up with a team name. I will have two separate brackets. One for the more experienced teams, and one for the not so experienced but still want to participate. You do not have to actually play to participate or get involved. Any donations will be appreciated just as much as anything else. All proceeds from “Dig Up a Cure for EB” benefit debra of America and its programs/services including its search for treatments (making them commercially viable and available), and research to lead to a cure for Epidermolysis Bullosa, (EB).

CLICK HERE TO REGISTER OR DONATE

For questions please contact: events [at] debra [dot] org or (212) 868-1573 x104


Mississippi

Cyndi’s Wish for a Cure
Saturday, April 11th, 2015 (6:00 AM – 12:00 PM)
17729 Hwy 613
Miss Point, MS

Stop on by this Garage Sale in support of the EB Community! Whether you need baby items, toys, or household items, you’ll find something at this sale. All proceeds from “Cyndi’s Wish for a Cure” benefit debra of America and its programs/services including its search for treatments (making them commercially viable and available), and research to lead to a cure for Epidermolysis Bullosa, (EB).


GEORGIA

9th Annual Butterfly Wishes for Ellie Benefit and Silent Auction
In Honor of Ellie Tavani
Thursday, May 7th, 2015
The Park Tavern
Atlanta, GA

Butterfly Wishes for Ellie is an annual event in honor of Ellie Tavani, a beautiful little girl who was born in April 2006 with Epidermolysis Bullosa (EB). Our 9th Annual Butterfly Wishes For Ellie Benefit and Silent Auction will be held on Thursday, May 7, 2015 at The Park Tavern in Midtown Atlanta. SAVE THAT DATE! With your help, we will break last years record fundraising event where we raised almost fifty thousand dollars to benefit the Dystrophic Epidermolysis Bullosa Research Association of America (debra). All proceeds from the “9th Annual Butterfly Wishes for Ellie” benefit debra of America and its programs/services including its search for treatments (making them commercially viable and available), and research to lead to a cure for Epidermolysis Bullosa, (EB).

Check back soon for Registration Information!

For questions please contact: events [at] debra [dot] org or (212) 868-1573 x104


North Carolina

4th Annual Jogging for Jonah
In Honor of Jonah Williams
Saturday, May 9, 2015 (8AM)
Tanglewood Park (4061 Clemmons Rd)
Clemmons, NC

Please join us for the 4th Annual Jogging for Jonah 5K and Fun Run. Walkers are welcome for both! In addition to the 5K and Fun Run, we'll have a great raffle, music, face painting, inflatables, food and beverages, and more! All proceeds from the “4th Annual Jogging for Jonah” benefit debra of America and its programs/services including its search for treatments (making them commercially viable and available), and research to lead to a cure for Epidermolysis Bullosa, (EB).

Check back soon for Registration Information!

For more information please call: 212-868-1573 ext. 104 or
email joggingforjonah [at] gmail [dot] com


Nationwide

Little Sweet Pea Closet : Shop for EB!

Visit littlesweetpeacloset.com and shop for EB! Little Sweet Pea Closet is donating a portion of all sales to debra of America. Stock up on adorable children's accessories, including headbands, tutus, pacifier straps, and mitten clips. All proceeds from the “Little Sweet Pea Closet: Shop for EB!” sales benefit debra of America and its programs/services including its search for treatments (making them commercially viable and available), and research to lead to a cure for Epidermolysis Bullosa, (EB).

Click Here to Shop     Click Here to Donate

For questions, please contact Rebecca at rebeccahbeck [at] littlesweetpeacloset [dot] com


TENNESSEE

Valley Vintage Creations Lockets for EB
15% of sales benefit debra
Signal Mountain, Tennessee

Jewelry designer, Kelsey Hill Worley’s antique brass filigree lockets are handcrafted in the Tennessee Valley. Purchase one today and 15% of each sale will go to support Epidermolysis Bullosa and debra of America. You can specify your charm of choice: key, butterfly, or jeweled ball.

Click here to visit Valley Vintage Creations.

15% of each sale on Kelsey’s website benefits debra of America and its programs/services including its search for treatments (making them commercially viable and available), and research to lead to a cure for Epidermolysis Bullosa, (EB).

For more information, please contact: events [at] debra [dot] org

Butterfly Locket for DebRA


Click Here for Past DebRA Local Events



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