Get Involved

VolunteerRegister as a Volunteer
Learn about volunteer opportunities with debra

Learn More about Volunteer Opportunities / Sign Up to Volunteer


Join the Young Leadership Committeedebra Young Leadership Committee
We are excited to announce the launch of our Young Leadership Committee. This program aims to increase and promote EB awareness by training and mobilizing volunteers around the United States to educate others about the disease. The Young Leadership Committee is an affiliate group of debra of America, comprised of individuals 35-and-under who host and participate in debra Supporter Led Events across the country and whose mission is to fundraise and spread awareness of Epidermolysis Bullosa (EB) – The Worst Disease You've Never Heard Of.™
Learn More About the Young Leadership Committee

Raise Awareness onlineRaise Awareness Online
Encourage your friends, family and co-workers to use their social networks and communities to support debra's fundraising efforts.

Will you #FlutterForEB? People with EB have very fragile skin like a butterfly’s wing and must be bandaged for protection. Wear butterfly wings for an hour - or just a few moments - to raise awareness about Epidermolysis Bullosa. Post a photo of you (and friends!) in wings to Facebook or Instagram. Learn More


Engage Local MediaEngage Local Media
Letters-to the-editor are extremely effective for alerting the media about debra and Epidermolysis Bullosa. Journalists have a significant role in educating the public about EB and publicizing
major research efforts.
See Sample Letters

Write your Governmentdebra Advocacy Program
There are many ways to help those affected by Epidermolysis Bullosa. One of the most effective ways is to make our community better for those affected by Epidermolysis Bullosa in the long term is legislative advocacy on their behalf. Quite simply, this means supporting laws and policies that are good for those affected by Epidermolysis Bullosa and opposing ones that aren’t.
Local Goverment Office Directory & Learn More

Plan a Local debra EventPlan a Local debra Event
Special events help raise needed funds for care and support of families affected by EB. To plan an event visit:
Plan A Supporter Led Event

debra Internship ProgramInternship Program
An internship at debra of America allows you to work for an inspiring mission as you gain real-world experience at the only national non-profit dedicated to funding research and providing services and programs for those with Epidermolysis Bullosa. Our year-long program focuses on our annual events, programs and services, policy research, social media campaigns, communications and press, and fundraising.
Learn More

debra Merchandise Show You Care
Proudly wear your debra merchandise to show your commitment to helping debra reach their goal, a cure for EB.
Bracelets and Merchandise

Support debra at workSupport debra at Work
Many employers offer a dollar-for-dollar matching gift or a percentage match when you give to your favorite charity. Contact your human resources representative for more information.
Learn More!

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Related Information/Links
Read about EB in Greater Depth
Attend an Event
Understanding EB