DonateWith help from supporters like you, Debra of America continues to provide programs and services to people with Epidermolysis Bullosa and their families, and to support EB research.
|The mounting cost of bandages is most often not covered by an EB family's health insurance.||89.4¢ of every dollar donated goes directly to EB patients, families, and research.|
DebRA and Grace Peshkur’s family and friends would like to make you smile.
WHAT IS THE SMILE FUND?
Grace Catherine Peshkur was born on March 29, 2002 with Recessive Dystrophic Epidermolysis Bullosa. She lost her battle to this awful disease on May 17, 2009. We will cherish her memories and her smile forever. To learn more about Grace, please read her Family Story.
“In honor of Grace and her heroism, we have started the Smile Fund. This program will grant mini wishes for EB children who need some happiness. These smiles will not only benefit the butterfly child but will allow the family some memories they can keep close to their heart such as a family portrait, a birthday party or a webcam to Skype with family or classmates. These heroes deserve smiles with all the pain they must endure each moment of each day. Keep sharing their stories and fighting for a cure. Let's support each other and together we can create smiles.”
-Karen Peshkur, mother of Grace Peshkur
REQUEST A SMILE
HOW IT WORKSIf you or someone you know has EB, you can submit an application to DebRA following the guidelines below. All requests will be considered by a committee, and one per month will be selected for granting. Depending on the nature of the request, it may take some time to receive. When you are notified that your request has been chosen you will be informed of a time frame.
Please read the following criteria carefully to determine if you qualify
- Applicant has EB, or is applying on behalf of someone with EB
- EB patient has not received an award from any other wish granting organization
- EB patient resides in the United States
- The request is unattainable without assistance from the Smile Fund
HOW TO APPLY/REFER
Fill out the application form and submit it to DebRA by mail/fax/email by the first of the month. If your application is received AFTER the first it will be considered for the following month (e.g. an application received October 3rd is eligible to win in November). If you are not selected to receive a smile, the Smile Fund will keep your application open for 3 months before you need to reapply.
Have questions? Contact us at smile [at] debra [dot] org or by phone at (212) 868-1573 x 101.
WHAT TO WISH FOR
Are you having trouble deciding what to wish for? Take a look at our list of suggestions:
- Video game system
- Birthday party
- Graduation party
- Sports Event
- Shopping Spree
- Art Supplies
You can also contact the DebRA office at (212) 868-1573 x 101 or email smile [at] debra [dot] org to sponsor or contribute to a smile.