Growing up, living with EB Simplex was hard. All my friends would be hanging out in the summer sun, walking miles, and I had to sit back and watch. Luckily, I was a swimmer and could stay active without having to worry about my feet.
Years later, I’m now studying to become a physical therapist. I’ve taken control of my EBS and have not let it define me. I’m able to do the activities I love, like running, and actually enjoy them. I’m currently training for a half marathon, and I’m proud that I haven’t let this disorder define who I am. I want to speak to everyone with EBS and tell them: get out there and push your limits, because you CAN!
I still struggle with blisters, or "hot spots," on my feet when doing the things I enjoy. I’ve been taking steps to manage them, including using Body Glide foot balm, Injinji toe socks, and thin running shoes. I also make sure to listen to my body when it hurts. Incorporating cross-training, like swimming, along with my running routine has helped. There are so many ways to avoid letting this condition limit me, and I’m taking every opportunity I can.
I wish more people knew about this disease. With greater awareness and education, I hope people stop viewing us as fragile. We are incredibly strong, and this diagnosis does not define us.
debra has been a powerful advocate for this community. I’ve seen the lives they’ve impacted, and I’m grateful for the difference they’re making.
- Taylor Dean
