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DonateWith help from supporters like you, Debra of America continues to provide programs and services to people with Epidermolysis Bullosa and their families, and to support EB research.Thank You. |
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The mounting cost of bandages is most often not covered by an EB family's health insurance. |  |
89.4¢ of every dollar donated goes directly to EB patients, families, and research. |
Family Stories
Warren entered into this world on February 4th, 1970. The doctors told us that Warren was born with Epidermolysis Bullosa. He also said that children born with this disease only live to around 15 years old.
I am writing to you in honor of a beautiful butterfly. My daughter Grace Catherine Peshkur was born on March 29, 2002. Grace was born with denuded skin on her feet, hands and mouth. She was unable to take a bottle and cried constantly.
I sit here and talk...as you sit there and gaze.
It feels like I'm talking to a brick wall that will
never drop. It makes me feel so different...as if I'm not human
or something.
I was born September 29, 1977 in Poughkeepsie, NY. My father has Dominant Dystrophic Epidermolysis Bullosa, and a day or so after my birth it was evident that I too, had EB.
Like many of you, my husband, Matt, and I had never heard of Epidermolysis Bullosa (EB). That is, not until February 27, 2009 when our son, Jonah, was born. Jonah was born missing the skin on his elbows, hands, and from his knees down.
My name is Monique Elena Mori McKissick, married to a wonderful husband, own my own home, work full time at a utilities company and I have Recessive Dystrophic Epidermolysis Bullosa. Aside from my parents and my husband, EB is greatly responsible for shaping the person I’ve become today
Maria Oliveira, Making Every Minute Count, Amidst All the Pain
Simply put, living with EB hurts, but as cliché as it may sound you need to take the good with the bad. My daughter, Sarah, was born with Recessive Dystrophic Epidermolysis Bullosa (RDEB).
Bruce Gunn, Overcoming an Obstacle
During high school, my classmates were getting ready to take their driving tests and permits. I really wasn't focused on that during high school and I knew I wasn't ready. I have Recessive Dystrophic Epidermolysis Bullosa - Herlitz (RDEB-H) and there are a lot of things I wasn’t able to do.
Recessive Dystrophic Epidermolysis Bullosa (RDEB) is a relentless disease that does not stop at just compromising the skin. Sadly, it also affects mucosal membranes like the mouth, throat and esophagus which makes eating and EVEN drinking a chore.
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Return to "Understanding EB"
Related Information/Links
Read about EB in Greater Depth
What is EB?
Living with EB
Frequently Asked Questions
Medical Research
Any contribution, large or small, helps
EB patients and families and makes
continued research possible.
What is EB? helps teachers and students
understand the issues facing children with
dystrophic EB in the classroom.
of every dollar donated goes to EB
patients, families, and research.
