Family Stories

Andrew Conrad's Blog
Andrew Conrad is 27 years old and was born with Recessive Dystrophic EB. He is currently an assistant vice president of commercial banking for Heartland Bank and Trust in the greater Chicago area. He grew up in central Illinois and graduated from the University of Illinois with a bachelors in economics in 2009. In 2011, he moved to Chicago where he continues to reside. Andrew is an avid crossfitter and runner. He also loves to travel and has plans of touching all 7 continents by age 30.

Read More


Warren Lee Abeyta Story
Warren entered into this world on February 4th, 1970. The doctors told us that Warren was born with Epidermolysis Bullosa. He also said that children born with this disease only live to around 15 years old.

Read More


Grace’s Story
I am writing to you in honor of a beautiful butterfly. My daughter Grace Catherine Peshkur was born on March 29, 2002. Grace was born with denuded skin on her feet, hands and mouth. She was unable to take a bottle and cried constantly.

Read More


Jack Hartmann
I sit here and talk...as you sit there and gaze.
It feels like I'm talking to a brick wall that will
never drop. It makes me feel so different...as if I'm not human
or something.

Read More


Melissa’s Story
I was born September 29, 1977 in Poughkeepsie, NY. My father has Dominant Dystrophic Epidermolysis Bullosa, and a day or so after my birth it was evident that I too, had EB.

Read More


Patrice and Matthew Williams
Like many of you, my husband, Matt, and I had never heard of Epidermolysis Bullosa (EB). That is, not until February 27, 2009 when our son, Jonah, was born. Jonah was born missing the skin on his elbows, hands, and from his knees down.

Read More


Monique's Story
My name is Monique Elena Mori McKissick, married to a wonderful husband, own my own home, work full time at a utilities company and I have Recessive Dystrophic Epidermolysis Bullosa. Aside from my parents and my husband, EB is greatly responsible for shaping the person I’ve become today

Read More


Maria Oliveira, Making Every Minute Count, Amidst All the Pain
Simply put, living with EB hurts, but as cliché as it may sound you need to take the good with the bad. My daughter, Sarah, was born with Recessive Dystrophic Epidermolysis Bullosa (RDEB).

Read More


Bruce Gunn, Overcoming an Obstacle
During high school, my classmates were getting ready to take their driving tests and permits. I really wasn't focused on that during high school and I knew I wasn't ready. I have Recessive Dystrophic Epidermolysis Bullosa - Herlitz (RDEB-H) and there are a lot of things I wasn’t able to do.

Read More


Kristin Nugent
Recessive Dystrophic Epidermolysis Bullosa (RDEB) is a relentless disease that does not stop at just compromising the skin. Sadly, it also affects mucosal membranes like the mouth, throat and esophagus which makes eating and EVEN drinking a chore.

Read More