Individuals with EB, Caregivers, and Family Members

Epidermolysis Bullosa debra of America Personal Story

Telling your personal story is a powerful way to raise awareness, bolster our advocacy efforts, and break the isolation felt by many affected by Epidermolysis Bullosa (EB). Your story matters because it offers support and understanding to others facing similar challenges.  

Please take a moment to share your story by answering our questionnaire. 

Share Your Story

Donors and Supporters

debra of America Donor Supporter Story

Your commitment to debra of America has a profound impact on those living with EB by providing critical programs and services, supporting our advocacy efforts on Capitol Hill and at the U.S. FDA, and advancing innovative research for treatments and a cure.  

Whether you’ve donated, volunteered, hosted a Supporter Led Event, or run with #TEAMDEBRA, your story is a testament to the power of generosity.  

Please take a moment to share your story by answering our questionnaire. 

Share Your Story

Frequently Asked Questions

Will all submitted stories be published?

While we aim to feature as many stories as possible, not all submissions may be published. Our guidelines can be found at the top of each questionnaire. 
You will be notified via email if your story has been selected for publication.

When will my story be published?

The publication timeline varies. If your story is selected to be published, a debra team member will notify you via email. We appreciate your patience during this process!

How will my story be used by debra of America?

Your story may be featured on our social media pages, website, and email communications. It will be used to raise awareness, build community, and inspire action. 

Is there an age restriction for submitting stories?

No, there is no age restriction for submitting stories. However, if you are under 18, please ensure you have the consent of a parent or guardian before sharing your story. If you are under 18, we may follow up to confirm consent of a parent or guardian.