Epidermolysis Bullosa (EB) News

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NY Daily News (WWW)
Justin Timberlake sends limo, front-row concert tickets to Long Island boy with rare disease
July 11, 2014

NBC Montana (WWW)
Man with rare disease takes extra precautions in heat
July 9, 2014

NBC 11 Alive (WWW)
Cobb Co. baby born with rare skin blister disease
July 9, 2014

York Daily Record (WWW)
'Butterfly child' leaves behind many local memories
July 7, 2014

The New York Daily News (WWW)
Long Island boy’s ‘bucket list’ tapers down to one item as he prepares for surgery
June 17, 2014

Mark Sardella (WWW)
Rare Disease Focus of Documentary
June 14, 2014

Daily News (WWW)
Girl can't hug parents because rare skin condition causes her to blister when touched
June 12, 2014

Yahoo Finance (WWW)
Scioderm Names Ronald Nardi, Ph.D. Chief Scientific Officer
June 12, 2014

10sBalls (WWW)
The 2nd Annual Mats Wilander Foundation Tennis Pro-Am benefiting debra of America
June 4, 2014

Utah Family Builds Family of Adopted Children with Rare Condition
May 26, 2014

debra of America Office in Second Life
May 16, 2014

Butterfly Wishes For Ellie
May 15, 2014

King For A Day
May 14, 2014

Baby Born With Rare 'Butterfly' Skin Condition
May 13, 2014

Winston-Salem Journal (WWW)
Son’s rare genetic condition makes every day a blessing for family
View Photo Gallery
May 11, 2014

Butterfly Children
May 9, 2014

Housatonic Community College: Horizon’s Newspaper
EB: The Quiet Struggle of Butterfly Children (Page 13)
May 2014

North Ridgeville Press (WWW)
Love of Lucas: Family raises more than $50,000 over the years to help those battling EB
April 23, 2014

Scioderm close to fully developing new treatment for connective tissue disorder
April 2, 2014

Local Child Star Shares ‘Heaven Is For Real’ Memories
April 2, 2014

Heaven Is For Real Fundraiser Screening
April 2, 2014

PR Newswire (WWW)
Scioderm Completes Enrollment of Phase 2b Study of SD-101, a Novel Topical Therapy for Patients with Epidermolysis Bullosa
April 1, 2014

North Ridgeville Press (WWW)
Love for Lucas fundraiser to show prescreening of ‘Heaven Is for Real’
March 27, 2014

Local Family Raises Awareness For Rare Skin Disease
March 17, 2014

Miller Place Rocky-Point Patch (WWW)
Rocky Point High's Kelly McCauley Raises Funds for Butterfly Children
March 17, 2014

Cullman Times (WWW)
Eubanks family grapples with 4-year-old son’s rare skin condition
February 5, 2014

Scioderm Initiates Phase 2B Study of SD-101, A Novel Topical Therapy, for Patients with Epidermolysis Bullosa
January 6, 2014

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