Epidermolysis Bullosa (EB) News

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TEVANSVILLE COURIER & PRESS (WWW)
Walk Sunday will educate and raise research money for rare skin tissue disorder
October 30, 2014


CNYCentral / WTVH-TV (TV)
'Hope for Baby Easton' meet a 12-year old with the same skin disease
October 30, 2014


THE VALLEY BREEZE (WWW)
Help raise awareness of rare disease
October 29, 2014


THE FREDERICK NEWS POST (WWW)
'Disease you've never heard of' does not stop 10-year-old and family seek better treatment, cure
October 28, 2014


WCBD-TV MT. PLEASANT, SC (TV)
Living with EB: The worst disease you've never heard of
October 28, 2014


Casper Star Tribune (WWW)
Playwrights earn national recognition
October 25, 2014


FOX 59 (TV)
Central Indiana family of ‘Butterfly Kid’ raising awareness about disorder
October 20, 2014


LOCAL 8 NOW KNOXVILLE, TN (TV)
Show your volunteer spirit for two year old with rare skin disorder
October 17, 2014


The State Journal Register (WWW)
Letter: Support research for rare skin disorder
October 13, 2014


Xconomy (WWW)
Orphan Drug From Scioderm Aims to Treat Rare Skin Disease
October 7, 2014


Tennis World Magazine
Living with the Worst Disease you’ve never heard of – Mats Wilander’s story
October 1, 2014


 


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