Epidermolysis Bullosa (EB) News

Press Contact: aigerim [at] debra [dot] org

Announcements and Press Releases

 

FIBROCELL (WWW)
Fibrocell Announces Data Safety Monitoring Board Recommends Continuation of Phase 1/2 Clinical Trial of FCX-007 for Treatment of Recessive Dystrophic Epidermolysis Bullosa
May 8, 2017


THE DOCTORS TV (WWW)
Little Boy Blisters When He’s Touched Due to Rare Disorder
May 4, 2017


NASDAQ (WWW)
Abeona Therapeutics Provides Update on EB-101 Gene Therapy for Severe Form of Epidermolysis Bullosa from the Society for Investigative Dermatology Conference
May 2, 2017


LONDON SOUTH EAST (WWW)
Amryt Pharma Enrols First Patient In Epidermolysis Bullosa Trial – Alliance News, London South East
April 24, 2017


WS TALE (WWW)
Los Angeles Woman with Epidermolysis Bullosa Survives
April 6, 2017


AMICUS RX (WWW)
Amicus Therapeutics Completes Enrollment in ESSENCE Phase 3 Epidermolysis Bullosa Clinical Study
April 3, 2017


ABEONA THERAPEUTICS (WWW)
Abeona Therapeutics Receives Orphan Drug Designation in the European Union for EB-101 Gene Therapy Clinical Trial for Epidermolysis Bullosa
March 8, 2017


MORNING STAR (WWW)
Amryt Pharma Gets Go-Ahead For Phase 3 Trial of Skin Disorder Drug
March 6, 2017


PHRMA THE CATALYST (WWW)
Guest Post: debra of America on Epidermolysis Bullosa
March 3, 2017


STAFFORDSHIRE NEWSLETTER (WWW)
Nurse highlights Epidermolysis Bullosa – a condition which causes her baby’s skin to tear
February 28, 2017


ECONOTIMES (WWW)
Fibrocell Announces Dosing of First Patient in Phase I/II Clinical Trial of FCX-007 Gene Therapy for Treatment of Recessive Dystrophic Epidermolysis Bullosa
February 23, 2017


AMERICA’S CHARITIES (WWW)
The Worst Disease You’ve Never Heard Of
February 7, 2017


HEALTH AIM (WWW)
Epidermolysis Bullosa: Boy Grows Up In Danger Of Losing His Skin
February 6, 2017


GOOD HOUSEKEEPING (WWW)
My Son’s Skin Blisters When I Hug Him
February 1, 2017


MEDIA PLANET (WWW)
Research into Blisters Offers Hope for “Butterfly Children”
February 2017


ABC7 NEW YORK (WWW)
Donations providing new bath for teen with excruciating skin disorder in Staten Island
January 31, 2017


PR NEWSWIRE (WWW)
Tarix Orphan Receives Rare Pediatric Disease Designation for TXA127 for Recessive Dystrophic Epidermolysis Bullosa (RDEB)
January 18, 2017


NEW YORK FAMILY (WWW)
Good Cause: debra of America
January 17, 2017


PATIENTWORTHY (WWW)
How One Little EB Super Cutie is Changing Her World
January 11, 2017


RARE DISEASE REPORT (WWW)
Making Progress in Rare Diseases
January 9, 2017


FIBROCELL (WWW)
Fibrocell Announces FDA Fast Track Designation of FCX-007 for Treatment of Recessive Dystrophic Epidermolysis Bullosa
January 5, 2017


 


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