Epidermolysis Bullosa (EB) News

Press Contact: aigerim [at] debra [dot] org

Announcements and Press Releases

 

FIBROCELL SCIENCE (WWW)
Fibrocell Receives Guidance from FDA on Phase 3 Clinical Trial Design for FCX-008
October 25, 2018


THE STAR PHOENIX (WWW)
‘It’s a lot of trial and error’: Saskatoon mom shares what it’s like to care for a child with Epidermolysis Bullosa
October 24, 2018


AP NEWS (WWW)
Krystal Biotech Announces Positive Interim Results from Placebo-Controlled Phase 1/2 Trial of KB103
October 15, 2018


PHARMEXEC.COM (WWW)
UK’s Amryt to Open US Clinical Trial Sites for Epidermolysis Bullosa
September 10, 2018

KDLT NEWS (WWW)
The Journey Of Hope
August 25, 2018


NEWS ON 6 (WWW)
Seriously Ill Child Wishes To Meet Travis Meyer
August 15, 2018


JEFFERSON HEALTH (WWW)
Researchers Reveal Cause of Aggressive Skin Cancer in Patients with Butterfly Syndrome
August 10, 2018


RARE DISEASE REPORT (WWW)
Diacerein 1% Ointment for Epidermolysis Bullosa Receives Fast Track Designation
August 9, 2018


EPIDERMOLYSIS BULLOSA NEWS (WWW)
Amryt’s AP101 Granted Rare Pediatric Disease Designation for EB
August 6, 2018


REGENERX BIOPHARMACEUTICALS (WWW)
RegeneRx Licensee GtreeBNT Enters into Joint Venture to Globally Develop RGN-137 for Treatment of Epidermolysis Bullosa
August 2, 2018


KBZK.COM (WWW)
Bicyclist raising awareness for rare skin disease pedals across Montana
August 1, 2018


LIVE FOR LIVE MUSIC (WWW)
Warren Haynes, John Medeski, George Porter Jr., Joe Russo Announce Benefit Concert At The Cap
July 24, 2018


ABC15 (WWW)
Phoenix girl with rare skin condition making progress
July 18, 2018


TEXTILE WORLD (WWW)
Med Tech Company Launches Clothing Line That Protects The Skin of “Butterfly” Children
July 17, 2018


PROQR (WWW)
ProQR Initiates Phase ½ Clinical Trial of QR-313 for Dystrophic Epidermolysis Bullosa
June 28, 2018


CASTLE CREEK PHARMA (WWW)
Castle Creek Pharmaceuticals Announces First Patient with Epidermolysis Bullosa Enrolled in Pharmacokinetics Study of Diacerein 1% Ointment
June 25, 2018


RAWLINES TIMES (WWW)
Ride for Epidermolysis Bullosa
May 31, 2018


GLOBE NEWSWIRE (WWW)
Abeona Therapeutics Announces Opening of Commercial Gene & Cell Therapy Manufacturing Facility in Ohio
May 31, 2018


GLOBE NEWSWIRE (WWW)
U.S. FDA Grants Fast Track Designation for Krystal Biotech’s KB103 for the Treatment of Dystrophic Epidermolysis Bullosa
May 24, 2018


PR NEWSWIRE (WWW)
BERG Announces FDA Orphan-Drug Designation of BPM 31510 for the Treatment of Patients with Epidermolysis Bullosa
May 23, 2018


EPIDERMOLYSIS BULLOSA NEWS (WWW)
Trial Shows Abeona’s Gene Therapy EB-101 Helps Wounds Heal in RDEB Patients
May 21, 2018


GLOBE NEWSWIRE (WWW)
Fibrocell Reports on Interim Results and Progress of Phase ½ Clinical Trial of FCX-007 Gene Therapy for Recessive Dystrophic Epidermolysis Bullosa
May 21, 2018


RARE DISEASE REPORT (WWW)
FDA Grants Rare Pediatric Disease Designation to EBS Treatment
May 16, 2018


RARE DISEASE REPORT (WWW)
Dystrophic Epidermolysis Bullosa Treatment Receives IND Clearance
April 26, 2018


CBS 19 (WWW)
Man bikes thousands of miles to honor son and raise money for rare disease
April 24, 2018


LINKEDIN (WWW)
How a Meeting Between Regulators and the Epidermolysis Bullosa Community Improved Our Understanding of the Burden of a Rare Disease
April 23, 2018


VARIETY (WWW)
Music Attorney Doug Davis Combines Career Success With a Passion for Causes
April 18, 2018


OTTAWA CITIZEN (WWW)
‘I can’t imagine my life without him,’ says Tina Boileau after the death of son Jonathan Pitre
April 6, 2018


JEZEBEL (WWW)
When Butterfly Children Grow Up
March 27, 2018


RARE DISEASE REPORT (WWW)
FDA To Meet with Pair of Rare Advocacy Groups
March 9, 2018


EPIDERMOLYSIS BULLOSA NEWS (WWW)
Dad Who Lost Baby to EB Setting Out on Cross-country Bike Ride to Raise Awareness, Funds
March 5, 2018


LINKEDIN (WWW)
A Common Measure for an Uncommon Disease
February 26, 2018


RARE DISEASE REPORT (WWW)
From the Top Down: Fibrocell Studies Adults with Goal to Treat Pediatric Patients
February 22, 2018


DNA SCIENCE BLOG (WWW)
Gene Therapy for the “Butterfly Children”
February 8, 2018


NATIONAL CENTER FOR ADVANCING TRANSLATIONAL SCIENCES (WWW)
Rare Disease Patients and Families Find Hope in Research
February 2018


FIBROCELL SCIENCE, INC. (WWW)
Fibrocell Announces FDA Allowance to Initiate Pediatric Enrollment in Phase 1/2 Clinical Trial of FCX-007 for the treatment of Recessive Dystrophic Epidermolysis Bullosa
January 30, 2018


GLOBENEWSWIRE (WWW)
Abeona Receives FDA Regenerative Medicine Advanced Therapy Designation for EB-101 Gene Therapy in Epidermolysis Bullosa
January 29, 2018


FIERCE BIOTECH (WWW)
NIH to plow $190M into genome editing therapy drive
January 24, 2018


CLINICAL LEADER (WWW)
Cell Therapy Trial Creates Skin Cells for Rare Disease Patients
January 24, 2018


 


Go Back
Return to Home

Related Information/Links
Sign Up for an Account to Receive our Newsletter
Download Archived Newsletters
Read about EB in Greater Depth
Announcements and Press Releases
Understanding EB