Epidermolysis Bullosa (EB) News

Press Contact: aigerim [at] debra [dot] org

Announcements and Press Releases

 

KRCG 13 (WWW)
Volunteers help build fence for Centralia boy with rare skin disease
July 14, 2019


REGULATORY AFFAIRS PROFESSIONALS SOCIETY (WWW)
Epidermolysis Bullosa: FDA Seeks to Help Development of New Treatments
July 8, 2019


THE MIGHTY (WWW)
The Worst Fear I Experienced as a College Student With a Rare Condition
July 1, 2019


CHECKRARE, YOUTUBE (WWW)
Fibrocell’s Gene Therapy To Treat Epidermolysis Bullosa
June 30, 2019


GLOBAL GENES (WWW)
Buoyed by Positive Gene Therapy Results in DEB, Krystal Raises $100 Million
June 25, 2019


YAHOO FINANCE (WWW)
Krystal Biotech Announces Positive Results from Phase 2 Clinical Trial (“GEM-2 study”) of KB103 and Receives Regenerative Medicine Advanced Therapy (“RMAT”) Designation from FDA for KB103
June 24, 2019


COSMETICS DESIGN-EUROPE (WWW)
Social responsibility in dermatology: L’Oréal announces 5 top projects
June 20, 2019


EPIDERMOLYSIS BULLOSA NEWS (WWW)
EB-101, Potential Cell Therapy for RDEB, Seen to Lead to Sustained Wound Healing in Trial
June 14, 2019


INSIDE EDITION (WWW)
18-Year-Old With ‘Butterfly Skin’ Wants People to See Past His Excruciating Skin Disorder
June 12, 2019


TEDx TALKS, YOUTUBE (WWW)
Skin Deep | Lucy Beal Lott | TEDxUniversityofStAndrews
June 5, 2019


THE CHANUTE TRIBUNE (WWW)
Bicyclist rides cross country and back to raise awareness for skin disease
June 4, 2019


EPIDERMOLYSIS BULLOSA NEWS (WWW)
First Patient Dosed in Phase 2 Trial Testing RGN-137 for Epidermolysis Bullosa
May 31, 2019


DAILY EGYPTIAN (WWW)
The Big Ride for EB passes through Carbondale
May 25, 2019


FIBROCELL SCIENCE (WWW)
Fibrocell Receives FDA Regenerative Medicine Advanced Therapy Designation for FCX-007 Gene Therapy for the Treatment of RDEB
May 29, 2019


WDRB NEWS (WWW)
Man biking across the country to raise awareness for skin disease makes stop in Louisville
May 18, 2019


ABC 11 EYEWITNESS NEWS (WWW)
‘So hard to see him in pain:’ Rare skin disorder makes Chapel Hill 4-year-old’s skin as fragile as a butterfly’s wings
May 8, 2019


YAHOO FINANCE (WWW)
Phoenix Tissue Repair Receives FDA Fast Track Designation for PTR-01 for the Treatment of Dystrophic Epidermolysis Bullosa (DEB) and Provides Updates on the Phase ½ Clinical Study
April 30, 2019


WOMEN’S HEALTH (WWW)
Kaley Cuoco Honors Friend With Epidermolysis Bullosa In ‘Big Bang Theory’ Episode
April 25, 2019


WTOL 11 (WWW)
Mercy Health providing full care for young kid with rare condition
April 23, 2019


NEWS CHANNEL 13 (WWW)
Glen Falls man riding bike cross country and back to honor son’s memory
April 18, 2019


TECH TIMES (WWW)
Genetic Test May Reveal Why Texas Baby Ja’bari Gray Was Born Without Skin
April 18, 2019


FIBROCELL (WWW)
Fibrocell Announces Collaboration with Castle Creek Pharmaceuticals to Develop and Commercialize FCX-007 Gene Therapy
April 15, 2019


FIBROCELL SCIENCES (WWW)
Fibrocell Announces Positive Feedback from Type B End-of-Phase 2 Meeting with FDA on Phase 3 Clinical Trial Design for FCX-007
March 27, 2019


NEWSWIRE (WWW)
InMed Pharmaceuticals Announces Transition to a Single Cannabinoid Investigational Drug Candidate – INM-755 – for its Epidermolysis Bullosa Program
March 13, 201


EVALUATE.COM (WWW)
Gene therapies go skin deep to tackle epidermolysis bullosa
March 22, 2019


EURALERT.ORG (WWW)
Potential treatment for cancer in butterfly disease
March 7, 2019


WESA.FM (WWW)
Biotech Company Hopes To Use A Modified Herpes Virus to Treat Rare Skin Conditions
March 5, 2019


PHARMATIMES (WWW)
Amryt’s epidermolysis bullosa trial extended
March 1, 2019


PHARMIWEB.COM (WWW)
Phoenix Tissue Repair Does First Patient in Phase 1/2 Clinical Trial of PTR-01 (BBP-589) for Treatment of Recessive Dystrophic Epidermolysis Bullosa (RDEB)
February 22, 2019


EPIDERMOLYSIS BULLOSA NEWS (WWW)
Mechanism Underlying Fibrosis in RDEB Could Be New Therapeutic Target
February 18, 2019


DAILYMAIL.CO.UK (WWW)
Teenager, 19, wears bandages on her hands because of rare skin condition that causes her to break out in blisters at the slightest touch
January 24, 2019


EPIDERMOLYSIS BULLOSA NEWS (WWW)
Researchers Create Dressing Glove for EB Based on Patients’ Feedback
January 14, 2019


NBC SAN DIEGO (WWW)
Kids Teach Lesson on Acceptance With Simple Invitation to ‘Come Say Hi’
January 11, 2019


INVESTIS DIGITAL (WWW)
Ease Phase III Trial Interim Efficacy Results
January 4, 2019


EPIDERMOLYSIS BULLOSA NEWS (WWW)
Four Patients Treated in Phase 2 Trial Testing Topical Gene Therapy, KB103, for Wound Healing
January 2, 2019


 


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