Epidermolysis Bullosa (EB) News

Press Contact: aigerim [at] debra [dot] org

Announcements and Press Releases

 

ABEONA THERAPEUTIC INC (WWW)
Abeona Therapeutics Enrolls 5th Patient in Phase 1/2 Gene Therapy Clinical Trial for Epidermolysis Bullosa
September 8, 2016


MONTHLY PRESCRIBING REFERENCE (WWW)
FDA Grants TXA127 Orphan Drug Status for Rare Genetic Skin Disorder
September 7, 2016


THE HUFFINGTON POST (WWW)
When A Child Who Was Supposed To Die Grows Up
August 25, 2016


ORPHANET JOURNAL OF RARE DISEASES
Inherited epidermolysis bullosa and squamous cell carcinoma: a systematic review of 117 cases
August 20, 2016


JOURNAL OF REHABILITATION MEDICINE
Leg amputation and dystrophic epidermolysis bullosa: A case report with 15 years of follow-up
August 18, 2016


OTTAWA SUN (WWW)
‘If I don’t do this, I’ll pass away…’ Jonathan Pitre on way to Minnesota for stem cell transplant
August 17, 2016


ASPIRE MAGAZINE
Members Making a Difference: Brian Raphael, MD
Summer 2016


GLOBE NEWSWIRE (WWW)
Fibrocell Announces First Subjects Enrolled in Phase I/II Clinical Trial of FCX-007 for Treatment of Recessive Dystrophic Epidermolysis Bullosa
July 27, 2016


BROOKLYN DAILY (WWW)
Do-gooders raise cash for sick Dyker teen
July 6, 2016


PR NEWSWIRE (WWW)
Tarix Orphan Announces Positive Results with TXA127 in Animal Model of Dystrophic Epidermolysis Bullosa (DEB)
June 27, 2016


WAYNE POST (WWW)
Assemblyman Bob Oaks to pass epidermolysis bullosa resolution
June 16, 2016


ALBANY TIMES UNION (WWW)
Glens Falls man plans 7,000-mile trip to raise awareness for EB
June 15, 2016


Ottawa Citizen (WWW)
Saving Jonathan Pitre: 'Butterfly Boy' heading to U.S. for therapy that could change his life
June 4, 2016


The Progress News | newjerseyhills.com (WWW)
Ten-year-old Raises Thousands for Friends
June 2, 2016


Science | AAAS (WWW)
The gene editor CRISPR won't fully fix sick people anytime soon. Here's why
May 3, 2016


CNYcentral.com (WWW)
Easton Friedel is getting ready for school
May 3, 2016


Fibrocell (WWW)
Fibrocell and Intrexon Announce Allowance to Commence Phase I/II Trial for FCX-007 for the Treatment of Recessive Dystrophic Epidermolysis Bullosa (RDEB)
April 18, 2016


The Rivertowns Enterprise (WWW)
8-year-old inspires six-figure fundraiser
March 11, 2016


News-Medical.Net (WWW)
Researchers reveal how butterfly disease patients develop cutaneous squamous cell carcinomas
March 11, 2016


CHRIS PEACE (WWW)
Virginia Delegate Chris Peace Recognizes debra of America February 17 2016
February 17, 2016


LEGISCAN (WWW)
Legislative Research: VA HR127 | 2016 | Regular Session
Virginia House Resolution 127

February 17, 2016


HUFFINGTON POST IMPACT (WWW)
Finding a Cure For a Life of Constant Pain
February 5, 2016


SOURCE CREATIVE (WWW)
The Worst Disease You've Never Heard Of...
February 2, 2016


THE DRUM (WWW)
Harrowing ads out of Havas Worldwide Tonic shine light on rare genetic disease
January 14, 2016


HAVAS WW (WWW)
Havas Worldwide Tonic for Debra of America: #ItWontHurtToWatch
January 13, 2016


GREENWICH FREE PRESS (WWW)
Art & Sound Draws a Crowd to Gallery Opening Featuring Paintings by Thomas Misisco
January 10, 2016


 


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