Epidermolysis Bullosa (EB) News

Press Contact: aigerim [at] debra [dot] org

Announcements and Press Releases

 

RAWLINES TIMES (WWW)
Ride for Epidermolysis Bullosa
May 31, 2018


GLOBE NEWSWIRE (WWW)
Abeona Therapeutics Announces Opening of Commercial Gene & Cell Therapy Manufacturing Facility in Ohio
May 31, 2018


GLOBE NEWSWIRE (WWW)
U.S. FDA Grants Fast Track Designation for Krystal Biotech’s KB103 for the Treatment of Dystrophic Epidermolysis Bullosa
May 24, 2018


PR NEWSWIRE (WWW)
BERG Announces FDA Orphan-Drug Designation of BPM 31510 for the Treatment of Patients with Epidermolysis Bullosa
May 23, 2018


EPIDERMOLYSIS BULLOSA NEWS (WWW)
Trial Shows Abeona’s Gene Therapy EB-101 Helps Wounds Heal in RDEB Patients
May 21, 2018


GLOBE NEWSWIRE (WWW)
Fibrocell Reports on Interim Results and Progress of Phase ½ Clinical Trial of FCX-007 Gene Therapy for Recessive Dystrophic Epidermolysis Bullosa
May 21, 2018


RARE DISEASE REPORT (WWW)
FDA Grants Rare Pediatric Disease Designation to EBS Treatment
May 16, 2018


RARE DISEASE REPORT (WWW)
Dystrophic Epidermolysis Bullosa Treatment Receives IND Clearance
April 26, 2018


CBS 19 (WWW)
Man bikes thousands of miles to honor son and raise money for rare disease
April 24, 2018


LINKEDIN (WWW)
How a Meeting Between Regulators and the Epidermolysis Bullosa Community Improved Our Understanding of the Burden of a Rare Disease
April 23, 2018


VARIETY (WWW)
Music Attorney Doug Davis Combines Career Success With a Passion for Causes
April 18, 2018


OTTAWA CITIZEN (WWW)
‘I can’t imagine my life without him,’ says Tina Boileau after the death of son Jonathan Pitre
April 6, 2018


JEZEBEL (WWW)
When Butterfly Children Grow Up
March 27, 2018


RARE DISEASE REPORT (WWW)
FDA To Meet with Pair of Rare Advocacy Groups
March 9, 2018


EPIDERMOLYSIS BULLOSA NEWS (WWW)
Dad Who Lost Baby to EB Setting Out on Cross-country Bike Ride to Raise Awareness, Funds
March 5, 2018


LINKEDIN (WWW)
A Common Measure for an Uncommon Disease
February 26, 2018


RARE DISEASE REPORT (WWW)
From the Top Down: Fibrocell Studies Adults with Goal to Treat Pediatric Patients
February 22, 2018


DNA SCIENCE BLOG (WWW)
Gene Therapy for the “Butterfly Children”
February 8, 2018


NATIONAL CENTER FOR ADVANCING TRANSLATIONAL SCIENCES (WWW)
Rare Disease Patients and Families Find Hope in Research
February 2018


FIBROCELL SCIENCE, INC. (WWW)
Fibrocell Announces FDA Allowance to Initiate Pediatric Enrollment in Phase 1/2 Clinical Trial of FCX-007 for the treatment of Recessive Dystrophic Epidermolysis Bullosa
January 30, 2018


GLOBENEWSWIRE (WWW)
Abeona Receives FDA Regenerative Medicine Advanced Therapy Designation for EB-101 Gene Therapy in Epidermolysis Bullosa
January 29, 2018


FIERCE BIOTECH (WWW)
NIH to plow $190M into genome editing therapy drive
January 24, 2018


CLINICAL LEADER (WWW)
Cell Therapy Trial Creates Skin Cells for Rare Disease Patients
January 24, 2018


 


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