The latest news from debra of America, from organizational happenings and inspiring stories to expert insights and research updates.

debra of America Patient Registry Epidermolysis Bullosa

debra of America Launches Registry for Individuals and Families Diagnosed with "The Worst Disease You've Never Heard Of" Epidermolysis Bullosa

October 04, 2023
debra also announces a new partnership with public relations and creative agency Fearey to raise awareness for Epidermolysis Bullosa and all those who are affected  NEW YORK, Oct. 4, 2023 /PRNewswire/ -- debra of America, the leading patient advocacy organization dedicated to improving the quality…
Dr. M Peter Marinkovich debra of America Annual Benefit Epidermolysis Bullosa

Dr. M. Peter Marinkovich honored with Jouni Uitto Impact Award

October 02, 2023
On Saturday, November 4, 2023, Dr.  M. Peter Marinkovich of Stanford University will be honored as the inaugural recipient of the Jouni Uitto Impact Award at the debra of America Annual Benefit at the stunning Georgia Aquarium in Atlanta, GA. Grab your tickets here!  Dr. Marinkovich is Director of…
The Assistance Fund Epidermolysis Bullosa debra of America

New Financial Assistance Program for EB Patients and Families

September 27, 2023
In partnership with debra of America, The Assistance Fund (TAF) has launched a financial assistance program that will help patients and families affected by Epidermolysis Bullosa (EB).   The Epidermolysis Bullosa Financial Assistance Program provides financial assistance for out-of-pocket costs…
Arlene Pessar debra of America Epidermolysis Bullosa

In Memory of Arlene Pessar, debra of America's Founder

September 15, 2023
Arlene Pessar and Eric LopezIt is with a heavy heart that we announce the passing of debra of America’s Founder, Arlene Pessar. We extend our deepest condolences to the family and friends of Arlene, who sadly passed away on September 15, 2023.  Arlene, alongside her son Eric Lopez, who was born…