About EB

Epidermolysis Bullosa (EB) is a complex rare disorder, encompassing many types and subtypes.

An accurate EB diagnosis informs appropriate medical care, access to specialized support, and a path forward.

Clinical trials are an essential part of the research process. Your participation can help propel the development of new treatments for EB.

Up-to-date information on U.S. FDA-approved treatments available for Epidermolysis Bullosa (EB).

Read the inspiring stories of the individuals who make up our EB Community.

Watch our videos to see the impact of EB on daily life. 

Catch up on the latest in EB news, including research updates, human interest stories, and more.