"The Worst Disease You’ve Never Heard Of."

Epidermolysis Bullosa (EB) is a group of rare disorders caused by a mutation in one of 18 genes.

EB in Depth

Epidermolysis Bullosa (EB) is a complex rare disorder, encompassing many types and subtypes.

Learn More
Clinical Trials

Clinical trials are an essential part of the research process. Your participation can help propel the development of new treatments for EB.

Learn More
Approved Treatments

Up-to-date information on U.S. FDA-approved treatments available for Epidermolysis Bullosa (EB).

Learn More
Personal Stories

Read the inspiring stories of the individuals who make up our EB Community.

Learn More
Video Stories

Watch our videos to see the impact of EB on daily life. 

Learn More
News & Blog

Catch up on the latest in EB news, including research updates, human interest stories, and more. 

Learn More