Epidermolysis Bullosa (EB) Resources for Professionals

debra of America is committed to providing clinicians with up-to-date information, resources, and opportunities to help you better support your patients.

Need immediate clinical guidance or consultation?

Contact Catherine Doernbrack, MSN, RN, CPNP – EB Nurse Educator: 833-332-7287 | nurse@debra.org

Emergency Management for EB

Our emergency care resource provides essential guidance for healthcare professionals managing urgent situations in patients with Epidermolysis Bullosa (EB). 

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Diagnosis & Testing

Recommended testing methods and where to access them.

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Clinical Management of EB

Essential information for healthcare professionals on EB symptoms, complications, and treatment best practices.

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Clinical Trials & Research

Explore current and past clinical trials advancing care and treatment options for individuals with Epidermolysis Bullosa (EB).

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Approved Therapies

Access new FDA-approved therapies for Epidermolysis Bullosa, including options for Dystrophic and Junctional EB. Learn more about FILSUVEZ®, VYJUVEK™, and ZEVASKYN™, and their indications for clinical use.

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HCP Engagement & Events

Engage with the EB HCP Community, access consultation, and take part in educational events designed for health care providers.

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Order Free Materials

Health care providers can order free printed educational materials to keep in their office and share with families as needed. 

  • Emergency Wallet Cards and Stickers
  • Kids Guide and Coloring Book to EB Doctor Visits 
  • EB Awareness Cards
  • School Guide for Nurses 
  • Starter Kit for Doctors and Hospitals
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Refer a Patient or Family

Connect patients and families directly to DEBRA’s specialized programs and support services, including wound care supplies, nurse consultation, peer connections, and educational resources.

REFER A PATIENT
EB Physician Directory

Join our growing network of clinicians experienced in caring for individuals with Epidermolysis Bullosa (EB). Complete the form below to be included in debra of America’s EB Doctor Directory, a trusted resource for patients and providers nationwide.

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Stay Connected

Stay informed about the latest EB news, clinical updates, and professional resources by joining our email list.

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