Brett Kopelan

Brett Kopelan
Executive Director

Jeanette Gissen

Jeanette Gissen
Programs Director

Jason Kelly

Jason Kelly
Supporter Led Events Director

Joseph R. Murray, Esq.

Joseph R. Murray, Esq.
Government Affairs & Legal Aid Director

Mike Powers

Mike Powers
Finance Director

Aigerim Saparova-Smith

Aigerim Saparova-Smith
Digital Marketing Director

Nelta Sanon

Nelta Sanon
Special Events & Development Associate

Bethany Tillema

Bethany Tillema
Programs & Development Associate

Emily Griffith

Emily Griffith, BSN, RN
EB Nurse Educator

Lambert Tamin

Lambert Tamin
Bookkeeper

Board of Directors

Andrew Tavani, Chair, Atlanta, Georgia
Robert Rayl, Vice Chair, Atlanta, GA
J Alec Alexander, Treasurer, Gainesville, GA
Angela Christiano, Ph.D., New York, NY
William Cornman, Sewickley, PA
Faith Daniels, New York, NY
Richard Gallagher, Gurnee, IL
Frank Kacmarsky, Anthern, AZ
Brett Kopelan, New York, NY
John Lee, San Francisco, CA
Robert Meirowitz, M.D., West Windsor, NJ
Leslie Rader, Chair Emeritus, Louisville, KY
Robert Ryan, Ph.D., Durham, NC
Jouni Uitto, M.D., Ph.D., Philadelphia, PA
James Wetrich, Dallas, TX

Arlene Pessar, R.N, debra of America Founder
 

Scientific Advisory Board

  • Alan Arbuckle, M.D., Kaiser Permanente
  • Richard G. Azizkhan, M.D., Cincinnati Children’s Hospital Medical Center
  • Eugene A. Bauer, M.D., Stanford University School of Medicine
  • Susan Bayliss, M.D., Washington University School of Medicine
  • Gary Bellus, M.D., University of Colorado at Denver and Health Sciences Center
  • Anna L Bruckner, M.D., University of Colorado at Denver and Health Sciences Center
  • Angela Christiano, Ph.D. (Co-chair), Columbia University
  • Richard A.F. Clark, M.D., SUNY Stonybrook
  • Jonathan Alden Dyer, M.D., University of Missouri Health Care
  • Ervin Epstein, Jr., M.D., Children's Hospital Oakland Research Institute
  • Nancy B. Esterly, M.D., Medical College of Wisconsin
  • Jo-David Fine, M.D., Vanderbilt University
  • Elaine V. Fuchs, Ph.D., Rockefeller University
  • Sharon Glick, M.D., SUNY Downstate Medical Center
  • Paul Honig, M.D., Children's Hospital of Philadelphia (CHOP)
  • Gerald S. Lazarus, M.D., Johns Hopkins University
  • Moise L. Levy, M.D., Baylor College of Medicine and Texas Children's Hospital
  • Anne W. Lucky, M.D., Cincinnati Children’s Hospital Medical Center
  • Joseph McGuire, M.D., Stanford University School of Medicine
  • Laurence Miller,M.D., Potomac, MD
  • Kimberly D. Morel, M.D., New York-Presbyterian Hospital
  • Amy Paller, M.D., Children's Memorial Hospital, Chicago
  • Francis Palisson, M.D., La Universidad del Desarrollo, Chile
  • Neil S. Prose, M.D., Duke University Medical Center
  • Elena Pope, M.D., Hospital for Sick Children, Toronto
  • Juliette Prendiville, M.D., University of British Columbia
  • Dennis R. Roop, Ph.D., Baylor College of Medicine
  • Lawrence Schachner, M.D., University of Miami School of Medicine
  • Tor Shwayder, M.D., Henry Ford Hospital
  • Daniel Siegel, M.D., Dermatologic Surgery Institute & President, American Academy of Dermatology
  • Mary K. Spraker, M.D., Emory University Clinic of Woodruff Medical Center
  • Jouni Uitto, M.D., Ph.D. (Co-chair), Thomas Jefferson University
  • Madeline Weiner, RN, Chapel Hill, NC
  • Timothy Wright, D.D.S., University of North Carolina at Chapel Hill