Epidermolysis Bullosa debra of America Supporter Led Events

A Supporter Led Event is a fundraising event led by a proud supporter in their U.S. local area to help fund debra of America’s mission to improve the quality of life for those living with EB.

Interested in hosting your very own Supporter Led Event? They come in all shapes and sizes, and can be defined by you, the supporter! We’re here to help you every step of the way. 

Learn more about hosting a Supporter Led Event 
 

Upcoming Events

Butterflies and Bubbles Fundraiser

Butterflies and Bubbles

October 24, 2026 | 9:00 AM – 10:00 PM
Culver’s Liquor and Bar | 364 US Highway 206
Branchville, NJ

Join Culver’s and the Yodice family for Butterflies and Bubbles: “Soaring to Find a Cure for EB,” in honor of Corinna Alice Claire “CC” Yodice.

Now two years old, CC lives with recessive dystrophic epidermolysis bullosa (RDEB), a rare genetic condition that makes her skin extremely fragile. Despite painful blisters and daily wound care, her courage, playful spirit, and joy inspire everyone around her.

Proceeds from refreshments will benefit debra of America, supporting individuals and families affected by EB through programs and services, advocacy, and resesarch.

No RSVP needed. Stop by and show your support!

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2026 Flutter for a Cure 5K

Flutter for a Cure 5K

October 24, 2026 | 9:00 AM - 11:00 AM
Quail Ridge Park
Wentzville, Missouri

Alysha Cannon is hosting this family-friendly event to raise funds and awareness for Epidermolysis Bullosa (EB) in support of debra of America. Whether you choose to run, walk, or cheer from the sidelines, every step helps provide hope and support for individuals and families living with EB. Bring the whole family and enjoy a morning of community, fitness, and fun while making a meaningful difference for the EB Community.  

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Hope in Her Footsteps

Hope in Her Footsteps: Leah’s 2nd Annual Walk for EB Awareness

November 7, 2026 | 8:00 AM
Mary C. Brown Public Library
Lake Butler, Florida

Please join hosts Ashley and Ricky Lynch as they walk in honor of their daughter, Leah, who lives with Epidermolysis Bullosa (EB). Leah’s family is proud to once again partner with debra of America for this special event, bringing family, friends, and the community together to raise awareness, provide hope, and raise vital funds to support individuals and families living with EB.

Registration is FREE, and everyone is welcome to join us in showing their support for Leah and the EB Community. Event T-shirts will also be available for pre-order for $25.

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