The following organizations provide grief support in the form of counseling, support groups, or resources.

Epidermolysis Bullosa Bereavement

Each organization helps grieving parents, grandparents, siblings, children, spouses, and friends work through the grieving process in their own unique way. These resources have been organized by type of service, but feel free to explore each website and learn if the organization is right for you or your family.

Bereavement Organizations and Groups


The Association for Death Education and Counseling (ADEC)
The ADEC is a membership organization whose members are professionals with specialized education and certification in dying, death, and bereavement. Listed on their website is a searchable directly which lists specialists based upon area of expertise, location, and/or profession. Click here to find a specialist in your area.

Find out more 

Local Support Groups

The National Bereavement Resource Guide
The New York Life and Eluna partnered to provide the National Bereavement Resource Guide. The guide is a compilation of state and local resources which includes camps and grief organizations organized by state and has grief resources. 

Search for Grief Organizations and Camps in your state 

For the Family

The Compassionate Friends
The Compassionate Friends offer over 660 meeting locations across the United States. Bereaved parents, grandparents, and siblings meet to talk, listen, share, and provide emotional support after the death of a child.  Note, these groups are run by bereaved individuals, not therapists.

Search for a group with your zip code 

For Children/Teens

National Alliance for Grieving Children
The National Alliance for Grieving Children lists grief support service providers who serve children and teens specifically. Resources are available for care providers on how to communicate to and support grieving children.

Find out more 

For Young Adults

The Dinner Party
The Dinner Party is a community of mostly 20- and 30- somethings who have experienced significant loss. Groups get together over potluck dinners to talk about how significant loss affects their lives and how to thrive in life after loss. 

Join a Table or create your own 

Creative Outlet

Modern Loss
Modern Loss is a place to share your experience with navigating your life after a death. Readers can find essays from those you have experienced all kinds of loss. Resources range from probating a will, getting your loved one off social media, creative ideas for exploring your own loss, and more.

Find out more 

Grief Camps for Children

Childhood grief is more common than many realize and knowing how to help children cope with grief can be a challenge. Bereavement camps for children help children learn how to heal, grow, and lead more fulfilling lives with their peers who are also experiencing loss. Below are three camps for children and teens that have experienced loss.

Camp Erin

Children and teens ages 6-17 attend a weekend camp that combines traditional, fun camp activities with grief education and emotional support, free of charge for all families. Led by grief professionals and trained volunteers, Camp Erin is offered in every Major League Baseball city and other locations across the US.

Find out more 

Camp Courage

Camp Courage is for children ages 7-18 and allows campers to come together with other children and teens who have experienced similar losses as they learn new ways of dealing with their grief. The weekend camp has many fun activities and has a professional counselor, nurse, and volunteers.

Find out more 

Comfort Zone Camp

Comfort Zone Camp includes confidence building programs and age-based support groups that break emotional isolation. Campers engage in resilience training programs while also having playing games, singing, and doing skits. Camps are available for children ages 7-17 and are offered across the country.

Find out more