Get Help

Request wound care supplies, free of charge, during times of need. 

Our EB Nurse Educator is available by phone or email to provide sound advice for those with or caring for someone with EB.

An EB diagnosis can be overwhelming, but we are here to help you navigate the treatment and care of your newborn. 

Know your rights and combat legal issues surrounding EB.

We fulfill mini-wishes with the goal of bringing joy to those living with this taxing disease.

This multi-day biennial conference is designed specifically for EB families and the professional community to access the best information, discover new ideas, and connect with other EB families from all over the country.

Check out our other helpful resources to assist you in travel, schooling, and more.