Get Help

Request wound care supplies, free of charge, during times of need. 

Our EB Nurse Educator is available by phone or email to provide sound advice for those with or caring for someone with EB.

An EB diagnosis can be overwhelming, but we are here to help you navigate the treatment and care of your newborn. 

Know your rights and combat legal issues surrounding EB.

We fulfill mini-wishes with the goal of bringing joy to those living with this taxing disease.

Our Mentorship Program offers two separate mentorship opportunities for both those living with EB and parents/caregivers.

This multi-day biennial conference is designed specifically for EB families and the professional community to access the best information, discover new ideas, and connect with other EB families from all over the country.

EB Connect is a private, online platform for the global EB Community! Connect with, learn from, and collaborate with others who live with and work in EB. Membership is FREE.

Check out our other helpful resources to assist you in travel, schooling, and more.