debra of America Supporter Led Events

Check out a list of our upcoming events below!

Nothing close to you? We also have online fundraisers:

Interested in hosting your own event?

Looking for a debra of America event?

Supporter Led Events 2015


The Big Ride for EB 2019-2.0
Starting Aprll 16, 2019

On April 16, Robb Freed begins his second Big Rider for EB, a 7-month, 8,700-mile cycling bike tour across the United States in honor of his son, Drake, who lost his battle with EB 9 years ago at the age of 13 months. Robb will be riding to raise money for those with EB, as well as spread EB awareness across the country. Robb’s journey starts in Yorktown, VA and will end in Seattle, WA.

Click Here to Donate


Hope 4 Landon Run & Walk
Saturday, October 19, 2019 (9:00 am)
The Shops at Fallen Timbers
3100 Main Street
Maumee, OH 43537

Hope 4 Landon Run & Walk

Please join us for the 1st Annual Hope 4 Landon Run & Walk at The Shops at Fallen Timbers on October 19, 2019 at 9:00 am. There will be a 1 mile walk to follow after the start of the 4 mile race. This event is to honor Landon Rinaldi and all the others who are fighting this disease every day for hope of a cure or even a treatment to slow the disease down. Come meet Landon ( is his birthday as well) and help us raise awareness for EB.

Click Here to Register


Painting with a Purpose
Sunday, October 27, 2019 (1:00-6:00 pm)
La Fava Restaurant and Bar
1102 Baltimore Pike #101
Glen Mills, PA 19342

Painting with a Purpose

Please join us for Painting with a Purpose at La Fava Restaurant and Bar at 1:00 p.m. on Sunday, October 27, 2019. The event includes a painting class, an open buffet, bar, and a raffle with fun prizes to win. Painting for a Purpose is in memory of Josiah Robinson, a brave EB Angel who touched the lives of everyone who knew him.

Click Here to Purchase Tickets


Butterfly Wishes for Ellie
Thursday, November 7, 2019 (6:30 – 10:30 p.m.)
Park Tavern
500 10th Street, NE
Atlanta, GA 30306

Butterfly Wishes for Ellie

We are excited for you to join us at the 13th Annual Butterfly Wishes for Ellie at the Park Tavern in Midtown Atlanta on Thursday, November 7, 2019. Help us fund resources for patients and finding a cure for EB! Join us for entertainment, a great silent auction, food and drinks. We can't wait to see you there! All proceeds will go directly towards debra of America. Butterfly Wishes for Ellie is hosted by Andrew Tavani, debra’s Board of Directors Chair, and his wife Shawn Tavani, on behalf of their 13 year old daughter Ellie who has EB.

Click Here to Purchase Tickets


The Give Back Project - Shop for EB!

Visit and shop for EB! The Give Back Project was started by Desiree Nguyen, an EB advocate. The butterfly is not perfect in it’s pattern, it has signs of being torn and broken down, but it is still beautiful and it is strong. Those who have EB deserve a cure. The deserve to live without excruciating pain. They deserve a cure. By purchasing this design YOU will be making a donation to as I will donate 50% of my profits! YOU will also RAISE AWARENESS every time you wear this design, share this design or use an item with this design on it.

View the "Beautiful Blue Butterfly" Design & Shop

Click Here to Donate

Click Here to Contact the Artist


Rebecca Yount's EB Bandage Bag Fundraiser

Visit Rebecca Yount's fundraising page to sponsor a bandage bag for a new EB family! Rebecca, a grandmother to a young boy with EB is hosting a very special fundraiser to directly benefit new EB families. Rebecca is raising funds in order to supply new families with a bandage bag to hold all of the wound care that they may need - at home or on the go. These bags will be distributed through debra of America's New Family Advocate Program.

Click Here to Support This Fundraiser Today!


Little Sweet Pea Closet : Shop for EB!

Visit and shop for EB! Little Sweet Pea Closet is donating a portion of all sales to debra of America. Stock up on adorable children's accessories, including headbands, tutus, pacifier straps, and mitten clips. All proceeds from the “Little Sweet Pea Closet: Shop for EB!” sales benefit debra of America and its programs/services including its search for treatments (making them commercially viable and available), and research to lead to a cure for Epidermolysis Bullosa, (EB).

Click Here to Shop     Click Here to Donate

For questions, please contact Rebecca at rebeccahbeck [at] littlesweetpeacloset [dot] com

Click Here for Past debra Supporter Led Events

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Related Information/Links
Read about EB in Greater Depth
Understanding EB