debra of America Supporter Led Events

Check out a list of our upcoming events below!

Nothing close to you? We also have online fundraisers:

Interested in hosting your own event?

Looking for a debra of America event?

Supporter Led Events 2015


12th Annual Butterfly Wishes for Ellie Benefit and Silent Auction
In Honor of Ellie Tavani
Thursday, May 10th, 2018 (6:30-10:30 pm)
The Park Tavern
Atlanta, GA

Butterfly Wishes for Ellie is an annual event in honor of Ellie Tavani, a beautiful little girl who was born in April 2006 with Epidermolysis Bullosa (EB). Our 12th Annual Butterfly Wishes For Ellie Benefit and Silent Auction will be held on Thursday, May 10, 2018 at The Park Tavern in Midtown Atlanta. All proceeds from the “12th Annual Butterfly Wishes for Ellie” benefit debra of America and its programs/services including its search for treatments (making them commercially viable and available), and research to lead to a cure for Epidermolysis Bullosa, (EB). Learn More

For questions please contact: events [at] debra [dot] org or (212) 868-1573 x101


4th Annual dash4debra
Sunday, May 20th, 2018 (8:00-10:30 am)
Lake Forest Academy
Lake Forest, IL

Join the dash4debra team as they race towards the finish line for EB on Sunday, May 20th in the 4th Annual dash4debra! This 5K run/walk promises a fun experience for the entire family. New this year, dash4debra is offering a virtual runner option for participants around the country! Can't make it to Lake Forest? No problem! Sign up online and run/walk in your neighborhood, your favorite trail, or even at the gym. Learn More and Sign Up

For questions please contact: fundraising [at] debra [dot] org or (212) 868-1573 x101


The Give Back Project - Shop for EB!

Visit and shop for EB! The Give Pack Project was started by Desiree Nguyen, an EB advocate. The butterfly is not perfect in it’s pattern, it has signs of being torn and broken down, but it is still beautiful and it is strong. Those who have EB deserve a cure. The deserve to live without excruciating pain. They deserve a cure. By purchasing this design YOU will be making a donation to as I will donate 50% of my profits! YOU will also RAISE AWARENESS every time you wear this design, share this design or use an item with this design on it.

View the "Beautiful Blue Butterfly" Design & Shop

Click Here to Donate

Click Here to Contact the Artist


Rebecca Yount's EB Bandage Bag Fundraiser

Visit Rebecca Yount's fundraising page to sponsor a bandage bag for a new EB family! Rebecca, a grandmother to a young boy with EB is hosting a very special fundraiser to directly benefit new EB families. Rebecca is raising funds in order to supply new families with a bandage bag to hold all of the wound care that they may need - at home or on the go. These bags will be distributed through debra of America's New Family Advocate Program.

Click Here to Support This Fundraiser Today!


The Big Ride for EB

In early 2018, Robb Freed will begin his 7,000 mile bike tour across the United States in honor of his son, Drake, who lost his battle with EB 8 years ago at the age of 13 months. Robb will be riding to raise money for those with EB, as well as spread EB awareness across the country.

Click Here to Learn More or Donate


Little Sweet Pea Closet : Shop for EB!

Visit and shop for EB! Little Sweet Pea Closet is donating a portion of all sales to debra of America. Stock up on adorable children's accessories, including headbands, tutus, pacifier straps, and mitten clips. All proceeds from the “Little Sweet Pea Closet: Shop for EB!” sales benefit debra of America and its programs/services including its search for treatments (making them commercially viable and available), and research to lead to a cure for Epidermolysis Bullosa, (EB).

Click Here to Shop     Click Here to Donate

For questions, please contact Rebecca at rebeccahbeck [at] littlesweetpeacloset [dot] com

Click Here for Past debra Supporter Led Events

Go Back

Return to "Plan a Supporter Led Event"

Related Information/Links
Read about EB in Greater Depth
Understanding EB