debra of America Supporter Led Events

Check out a list of our upcoming events below!

Nothing close to you? We also have online fundraisers:

Interested in hosting your own event?

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Supporter Led Events 2015


Florida

Miami’s Dance for debra
Friday, March 11th, 2016
Florida International University Recreational Center
Miami, FL

Florida International University students are taking the steps to raise EB awareness! This event is the first debra Dance-A-Thon in Miami. The Dance-A-Thon will be held at the FIU rec center on March 11, 2016. Please help us raise the funds for the Dance-A-Thon and to raise money for patients with EB. Share this link with family, friends, and co-workers. Let’s raise awareness and help towards research for a cure!

For questions or volunteer opportunities, please contact miamidebra [at] gmail [dot] com


GEORGIA

10th Annual Butterfly Wishes for Ellie Benefit and Silent Auction
In Honor of Ellie Tavani
Thursday, May 25th, 2016
The Park Tavern
Atlanta, GA

Butterfly Wishes for Ellie is an annual event in honor of Ellie Tavani, a beautiful little girl who was born in April 2006 with Epidermolysis Bullosa (EB). Our 10th Annual Butterfly Wishes For Ellie Benefit and Silent Auction will be held on Thursday, May 25, 2016 at The Park Tavern in Midtown Atlanta. With your help, we will break last years record fundraising event where we raised almost fifty thousand dollars to benefit the Dystrophic Epidermolysis Bullosa Research Association of America (debra). All proceeds from the “10th Annual Butterfly Wishes for Ellie” benefit debra of America and its programs/services including its search for treatments (making them commercially viable and available), and research to lead to a cure for Epidermolysis Bullosa, (EB).

For questions please contact: events [at] debra [dot] org or (212) 868-1573 x101


1,000 Laces - Let's End EB!
Present - March 20th, 2016
Atlanta, GA (you can support online!)

We're selling 1,000 purple shoelaces to bring awareness to EB, a currently incurable skin disease. Ellie Tavani is an 9-year-old girl who was born with Epidermolysis Bullosa (EB). In 2011 Ellie's father, aunt & uncles started 1000 Laces to raise awareness for this horrible disease. They ran the NY Marathon that year as well as in 2013 & 2014. The plan was to sell 1,000 pairs of brightly colored shoelaces for $10 in order to raise at least $10,000 to help end EB. They raised close to $50,000 total! Starting in 2016, 1000 laces will continue to raise money by selling bright colored shoelaces. However, we hope to provide an even greater opportunity for Ellie’s community to participate in.

Click Here to Support the Fundraiser

For questions please contact: events [at] debra [dot] org or (212) 868-1573 x101


New York

5th Annual Rafi's Run
Sunday, March 6th, 2016
Riverside Park at West 103rd Street
New York, NY

The Fifth Annual Rafi’s Run will take place on Sunday, March 6, 2016 at 10 am (Fun Run at 11 am) in Riverside Park at West 103rd Street, New York City. All proceeds raised by Rafi’s Run will go directly to research to help find a cure for EB. The purpose of Rafi's Run is to create an event that brings our community together to help an incredibly brave young girl and her family in their quest to find a cure for EB. To achieve our goal of a world without EB, we as a community need to support the ongoing innovative research in a meaningful way. To do that, we are asking each of you to promote the purpose of Rafi's Run to your friends and colleagues and commit to try and raise $250 for research. We know that raising money can be difficult and we appreciate all of your efforts. As a community we can come together and make a huge impact on the lives of children just like Rafi. Together we can make a difference in the lives of thousands.

Click Here to Register!

For questions, please contact events [at] debra [dot] org


North Carolina

2nd Annual Dig Up a Cure for EB
Saturday, April 16th, 2016
North Davidson High School (7227 Old US Highway 52)
Lexington, NC

Join us for an afternoon of family fun and community solidarity as we play to benefit an organization that brings joy, cheer, and respite to children with Epidermolysis Bullosa and their families. It will be a volleyball tournament. Each team can have six or more players. You MUST come up with a team name. I will have two separate brackets. One for the more experienced teams, and one for the not so experienced but still want to participate. You do not have to actually play to participate or get involved. Any donations will be appreciated just as much as anything else. All proceeds from “Dig Up a Cure for EB” benefit debra of America and its programs/services including its search for treatments (making them commercially viable and available), and research to lead to a cure for Epidermolysis Bullosa, (EB).

For questions, please contact events [at] debra [dot] org


Nationwide

Little Sweet Pea Closet : Shop for EB!

Visit littlesweetpeacloset.com and shop for EB! Little Sweet Pea Closet is donating a portion of all sales to debra of America. Stock up on adorable children's accessories, including headbands, tutus, pacifier straps, and mitten clips. All proceeds from the “Little Sweet Pea Closet: Shop for EB!” sales benefit debra of America and its programs/services including its search for treatments (making them commercially viable and available), and research to lead to a cure for Epidermolysis Bullosa, (EB).

Click Here to Shop     Click Here to Donate

For questions, please contact Rebecca at rebeccahbeck [at] littlesweetpeacloset [dot] com


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Related Information/Links
Read about EB in Greater Depth
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Understanding EB