debra of America Supporter Led Events

Check out a list of our upcoming events below!

Nothing close to you? We also have online fundraisers:

Interested in hosting your own event?

Looking for a debra of America event?

Supporter Led Events 2015


Tennessee

3rd Annual Knoxville 5K
Saturday, August 13th, 2016 (8:30am -12pm)
Victor Ashe Park
Knoxville, TN

Join host, Whitney S., for the 3rd Annual Knoxville 5K in honor of her nephew, Asa. Whitney says: "How lucky you are to enjoy a nice morning by having the privilege to run in a park for a 2 year old boy, Asa Madden, who struggles just to stand and walk every day. Asa hurts with every hug, every kiss, and every time he holds your hand, but this brave boy will still reach his hand out to hold yours to show you how much he cares for you. He will lean in for a kiss on the head every chance he gets. If my nephew can overcome his daily pain and struggles we can spend a few hours of our time one morning running and walking to support him. Asa may struggle to walk, but he gives our hearts the strength and dedication that we need to participate in this race. Asa is the sunshine of my life and every time I see his smiling face and those big brown eyes I know I will always happily fight for him. He gives me the strength to overcome all obstacles and fears."

The money earned from this event will go to support research, provide supplies, and help to Asa and families like him. Many patients with EB travel out of state for care and support, and many insurances do not cover the supplies needed for these patients' care. debra of America is the only national nonprofit organization dedicated to fund research and provide supportive services and programs for those with EB.

Click here to participate in the 3rd Annual Knoxville 5K!

For questions, please contact events [at] debra [dot] org


Nationwide

The Give Back Project - Shop for EB!

Visit hilariousmom.com and shop for EB! The Give Pack Project was started by Desiree Nguyen, an EB advocate. The butterfly is not perfect in it’s pattern, it has signs of being torn and broken down, but it is still beautiful and it is strong. Those who have EB deserve a cure. The deserve to live without excruciating pain. They deserve a cure. By purchasing this design YOU will be making a donation to debra.org as I will donate 50% of my profits! YOU will also RAISE AWARENESS every time you wear this design, share this design or use an item with this design on it.

View the "Beautiful Blue Butterfly" Design & Shop

Click Here to Donate

Click Here to Contact the Artist


Nationwide

Rebecca Yount's EB Bandage Bag Fundraiser

Visit Rebecca Yount's fundraising page to sponsor a bandage bag for a new EB family! Rebecca, a grandmother to a young boy with EB is hosting a very special fundraiser to directly benefit new EB families. Rebecca is raising funds in order to supply new families with a bandage bag to hold all of the wound care that they may need - at home or on the go. These bags will be distributed through debra of America's New Family Advocate Program.

Click Here to Support This Fundraiser Today!


Nationwide

Little Sweet Pea Closet : Shop for EB!

Visit littlesweetpeacloset.com and shop for EB! Little Sweet Pea Closet is donating a portion of all sales to debra of America. Stock up on adorable children's accessories, including headbands, tutus, pacifier straps, and mitten clips. All proceeds from the “Little Sweet Pea Closet: Shop for EB!” sales benefit debra of America and its programs/services including its search for treatments (making them commercially viable and available), and research to lead to a cure for Epidermolysis Bullosa, (EB).

Click Here to Shop     Click Here to Donate

For questions, please contact Rebecca at rebeccahbeck [at] littlesweetpeacloset [dot] com


Click Here for Past debra Supporter Led Events



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Related Information/Links
Read about EB in Greater Depth
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Understanding EB