Trying new things, developing social skills, building character, and fostering independence are all good reasons to send your child to camp.
For kids with Epidermolysis Bullosa, most importantly, it's a chance for them to make friends with others who have EB while having the time of their lives!
debra of America's resource page on camps provides parents with the information they need to stay informed and learn about the places where children and teens with EB are given the opportunity to experience camp safely. Camp Spirit, Camp Discovery, and Camp Wonder are three of these treasures.
Camp Wonder
The Children's Skin Disease Foundation's Camp Wonder is dedicated to providing a safe and nurturing environment to children ages 7-16 living with a skin disease. Campers can spend time in the sun without judgments and forge lasting friendships with peers who share similar experiences.
Camp Wonder gives campers the opportunity to play sports, go swimming, climb a rock wall, do arts and crafts, go to the "prom" - activities children with skin diseases may not be able to otherwise experience due to discomfort, pain, disfigurement, disability or shame.
Camp Wonder is free of charge. All costs are covered, including round-trip transportation. Give your child a week-long opportunity to be a camper and create memories that will last a lifetime. Take this time to start the application process for Camp Wonder. Space is limited.
2023 Update
Camp Wonder 2022 will be held June 18-23, 2023 at Camp Twin Lakes in Rutledge, Georgia!
If you are interested in receiving an application for Camp Wonder 2023, please click here to fill out the form to be added to their application list. Applications will go out April 1, 2023 and are due May 1, 2023.
If you have any additional questions, please email applications@csdf.org.
Camp Spirit
Camp Spirit Colorado is a Winter Adventure Camp for children ages 9-18 with Recessive Dystrophic EB (RDEB). It was founded in 2008 to allow children with RDEB the opportunity to enjoy winter activities in a safe environment. It is located in Granby at the YMCA of the Rockies/Snow Mountain Ranch, in the beautiful Colorado Mountains.
Camp Spirit Colorado is Free to Participants. The camp is funded through The Butterfly Children Fund. Out of state participants might incur transportation/travel costs. We do have a limited number of scholarships available for air fare if needed.
2024 Update
When: Saturday, February 24 to Thursday, February 29, 2024
Where: Winter Park, Colorado, Lodging at the YMCA of the Rockies-Snow Mountain Ranch
Activities: Skiing through the National Sports Center for the Disabled (NSCD), dog sled ride, sleigh ride at Devil’s Thumb Ranch, snowmobiling in Winter Park, and evening activities.
Transportation: Campers from out of state will fly to and from Denver International Airport and will be met at their gate by camp staff. They will be transported to and from Grand County and back to the airport by camp staff. Local campers will meet at a pick-up point and will be driven to camp.
Participants: Camp Spirit Colorado is limited to 10 children with recessive, dystrophic EB from the ages of 9 to 18. Visit Camp Spirit's website here to learn more about the application, now available in partnership with Camp Doc.
Staff: Physicians, EB Nurses, PT, OT, Music Therapy and others passionate supporters of EB.
Goals of the camp:
- Camaraderie
- Experience winter sports activities safely
- Promotion of independence, self-direction and responsibility, in a supportive environment.
For more information or for questions: Please call Ellen Liu, at (510) 289-2993 or e-mail eliu.campspiritcolorado@gmail.com
Camp Discovery
The American Academy of Dermatology's (AAD) Camp Discovery program is for children ages 8-16 who have a chronic skin disease. Under the expert care of dermatologists and nurses, Camp Discovery gives campers the opportunity to spend a week with other young people with skin conditions having fun and participating in activities such as swimming, horseback riding, arts & crafts, and many more.
There is no fee to attend this camp. All costs, including transportation, are provided by the AAD through generous donations from its members, outside organizations and individuals. All campers must be initially referred by their dermatologist.
2023 Update
Dates:
- Crosslake, Minnesota: July 23-July 28 (ages 13-16)
- Crosslake, Minnesota: July 30-August 4 (ages 8-13)
- Burton, Texas: August 6-11 (ages 8-16)
- Hebron, Connecticut: August 6-11 (ages 8-16)
- Millville, Pennsylvania: August 12-18 (ages 8-16)
To attend Camp Discovery, a dermatologist must first refer the child to the Academy for admission. To refer a patient, simply download the camper referral form and submit it back to the Academy by email/fax. For questions, please contact jmueller@aad.org or call (847) 240-1737.
