12-year-old Daisy lives with Junctional Epidermolysis Bullosa (EB). She is one of many who inspire debra of America’s work. Daisy is a huge music lover; her favorite bands are Led Zeppelin and the Stray Cats!
8-year-old Rafi starred in our 2016 #ItWontHurtToWatch Video campaign. The campaign, produced by our friends at HAVAS Tonic, shed some light on the daily battles that those with EB face.
3-year-old Asa starred in our 2016 #ItWontHurtToWatch Video campaign. Asa sadly passed away in 2019. His sweet spirit will never be forgotten, and he will always be a part of the debra of America family.
In 2017, the Washington Post featured 10-year-old Ella in an article that chronicled some of the challenges of living with EB. In the article, it’s said due to her EB, she’ll never play tag on the playground. Inspired by Ella, we launched the #TagWithElla social media campaign to create a virtual game of tag that Ella could participate in!
Sharing our brochures is a great way to spread awareness and educate others about Epidermolysis Bullosa (EB) and debra of America’s work.
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