A New Bill Introduced in Congress Could Improve Wound Care Coverage for the EB Community

A new piece of legislation introduced yesterday, March 9, 2026, in the United States House of Representatives could help improve access to essential wound care supplies for individuals living with Epidermolysis Bullosa (EB). 

H.R. 7877 calls on the U.S. Department of Health and Human Services to establish a demonstration program through Medicaid to test mandatory coverage of wound care supplies for EB. 

For individuals living with EB, specialized wound care supplies are essential for managing the daily challenges of this rare genetic condition. However, families can sometimes face unexpected issues with insurance coverage and may not be able to afford these necessary supplies out-of-pocket—costs that can exceed $80,000 per month at retail price. 

This legislation is an important step toward addressing that gap. 

Developed Through Advocacy 

Thanks to EB Community Member, Shane DiGiovanna, for introducing debra of America’s Executive Director, Brett Kopelan, to Congressman Greg Landsman, whose staff helped to author the legislation for its introduction in Congress.  

For years, debra of America has worked alongside patients, caregivers, clinicians, and policymakers to highlight the urgent need for reliable coverage of EB wound care supplies. This bill reflects that ongoing advocacy and collaboration. 

What the Bill Would Do

If enacted, H.R. 7877 would direct the U.S. Department of Health and Human Services to create a demonstration program within Medicaid that tests mandatory coverage of EB wound care treatments and supplies. 

Demonstration programs allow the federal government to test new policy approaches and evaluate their impact. In this case, the program would help determine how expanded coverage could improve care for individuals living with EB. 

What Happens Next

Introducing a bill is the first step in the legislative process. 

Here is what typically happens next: 

1. Members of Congress may join the bill as co-sponsors 

Co-sponsors help demonstrate that there is broad support for the legislation. 

2. The bill will be reviewed by a congressional committee 

Committees that focus on healthcare policy evaluate the proposal and determine whether it should move forward. 

3. If the bill advances, it could be considered for a vote in Congress 

Both the House and Senate would ultimately need to approve the legislation before it could become law. 

Continuing the Work 

While the introduction of H.R. 7877 is an important milestone, advancing legislation takes time and continued advocacy. 

debra of America will continue working with policymakers and the EB Community to help ensure that the needs of individuals living with EB are represented in the policymaking process. 

We will share updates as the bill progresses and as additional opportunities for community engagement arise.