This is a photo of a young boy with Epidermolysis Bullosa (EB) eating cookie and smiling.

Why is proper nutrition crucial for people with Epidermolysis Bullosa (EB)?

  • Promotes adequate growth and development
  • Provides nutrients for proper healing of skin lesions
  • Strengthens the immune system to fight infection
  • Provides energy
  • Aids with certain side effects of EB such as constipation
  • Improves overall quality of life

Colleen Vicente, RD, LDN, CNSC the Registered Dietitian at Children’s Hospital of Philadelphia, presented on this topic at the 2018 debra Care Conference. Click below to view the entire set of slides from this presentation.  

Related Resources

This is a photo of a smiling family with a baby with Epidermolysis Bullosa (EB).. EB Nurse Educator Program

Our EB Nurse Educator is available to provide sound advice for those with and caring for someone with EB.

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This is a group photo of 2016 DCC attendees debra Care Conference

The debra Care Conference (DCC) brings together the world’s leading Epidermolysis Bullosa experts with individuals and families affected by EB for 4 days of learning, sharing and fun.

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This is a photo of a young boy with Epidermolysis Bullosa (EB). About EB

EB is a rare connective tissue disorder with many genetic and symptomatic variations. All forms of EB share the prominent symptom of extremely fragile skin that blisters and tears with any friction.

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*Please note that all medical information given by debra of America is for informational purposes only. Our information is not intended to substitute the care and guidance given by a qualified physician. All regimens of care should be discussed with the patient's doctor. Always check with your physician prior to starting any medications or treatment regimens.