Dental problems can occur with different frequencies and different degrees of severity in many forms of EB. 

In some forms of EB tooth damage is hard to avoid, since genetic enamel defects exist. But even with forms of EB where there are no enamel defects, blister formation or difficulty in opening the mouth can often lead to oral hygiene difficulties, and ultimately tooth decay. 

With appropriate care, a dental healthy diet, regular dental check-ups and professional oral hygiene, damage to the baby teeth as well as the permanent teeth due to caries in many cases may be decreased. debra of America has compiled a list of helpful resources on this subject for both the EB patient and oral health care providers. 

For Patients and Families

READ EB Haus Handbook: Teeth | For tips and guidance by EB type:

WATCH EB Connect Virtual debra Care Conference On-Demand Webinar, "Oral Care for Patients with EB", with dental expert, Dr. Mark Cannon, Professor at Northwestern University, Ann and Robert Lurie Children's Hospital. 

Watch Now

For Professionals

READ Clinical Practice Guidelines: Oral health care for children and adults living with epidermolysis bullosa.

Access the CPG

WATCH EB-CLINET Online Seminar: Oral Health Care and EB with Dr Susanne Krämer, lead of the recently published EB oral health care guideline and associate professor at the University of Chile, give an introduction of the new guideline.

The topics ‘microstomia and mouth opening strategies’ as well as ‘strategies to manage mouth ulcers’ will be covered more in depth.

Watch Now

Families are encouraged to share this information with their oral health care practitioner. If you need assistance finding a dentist or other oral health care professional, please contact us at 

Related Resources

DailyLiving Daily Living

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EB Nurse EB Nurse Educator Program

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EBConnectLogo EB Connect is private, online platform designed specifically for the global EB Community to connect, collaborate, and learn from one another. Membership is FREE for EB Community members.

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*Please note that all medical information given by debra of America is for informational purposes only. Our information is not intended to substitute the care and guidance given by a qualified physician. All regimens of care should be discussed with the patient's physician. Always check with your physician prior to starting any medications or treatment regimens.