When?
Saturday, July 19, 2025
Where?
Columbia University Irving Medical Center
Roy and Diana Vagelos Education Center
Room VEC 401
104 Haven Ave, New York, NY 10032
Agenda
Below you'll find the day's full agenda, featuring a wide range of experts and topics for all ages and EB subtypes!
9 AM - 9:45 AM | Registration
9:45 AM - 12 PM | Programming
Welcome Remarks and debra of America Updates | Brett Kopelan, debra of America Executive Director
Basics of Wound Care | Kimberly Morel, MD, FAAD, FAAP
The Transition from Pediatric to Adult EB | Laura Levin, MD, FAAD
Skin Cancer Screening in EB | Braden Candela, MD
Research Breakthroughs in Gene Therapy | Aimee Payne, MD, PhD
Understanding FILSUVEZ and Its Role in Epidermolysis Bullosa (EB) | Jill Boyett, PharmD, CPh, Medical Science Liaison, Chiesi USA
12 PM - 1PM | Lunch
1 PM - 3 PM | Programming
Toward a Living Skin Glove for Functional EB Hands | H. Erbil Abaci, PhD
Experience with VYJUVEK | Matt Giordano, Senior Director of Patient Access and Advocacy, Krystal Biotech; featuring EB Community Member Myrna
ZEVASKYN: A New FDA-Approved Gene Therapy for RDEB Wounds | Sara Melton, Executive Director of Patient Access, Abeona Therapeutics; featuring EB Community Member Charlotte
Update on Phase III | Dr. Christoph Ganss, Founder and CEO, RHEACELL
Your Cells, Our Science: Gene Therapy for Dystrophic Epidermolysis Bullosa | David Chu, MD, PhD, FAAD, Chief Medical Officer, Castle Creek Biosciences
3 PM - 4 PM | Social Hour
Featured Speaker:
Kimberly Morel, MD, FAAD, FAAP
Professor of Dermatology & Pediatrics at CUMC
