TEAM DEBRA members at TD Five Boro Bike Tour.

TEAM DEBRA brings athletes from across the country to raise much-needed awareness and funds for research. 

Our team is united by a common goal: working to find a cure and treatment for EB. We’re committed to biking, running, swimming, walking, dancing, and doing anything fun and active in support of the EB Community. TEAM DEBRA is for marathon runners, cyclists, and everything in-between!

debra of America is here to assist each and every TEAM DEBRA member reach their goal, whether it’s to complete a marathon, 10K, triathlon, or cycling event.

Want to learn more about how to get involved with TEAM DEBRA? Email or call 833-debraUS (833-332-7287) x102.

2022 Partnerships

Bank of America Chicago Marathon Logo

Bank of America Chicago Marathon

Sunday, October 9, 2022
Chicago, Illinois

The Bank of America Chicago Marathon is one of the most popular races in the world. Runners from across the United States and from all over the globe will hit the historic streets of Chicago for this challenging and exciting 44th annual marathon!

If you are interested in running for #TEAMDEBRA, please email

TCS NYC Marathon Logo

TCS New York City Marathon

Sunday, November 6, 2022
New York, NY

Run with TEAM DEBRA as we join runners from all 50 states and over 100 countries in the 2022 TCS New York City Marathon! Help us fulfill our mission to end Epidermolysis Bullosa (EB), "the worst disease you've never heard of".

The entry fee this year is $295 for non-NYRR members, $255 for members. The event organizers require all charity runners to fundraise for their charity and the fundraising minimum is $2,500. We will provide every runner with an online fundraising page, TEAM DEBRA athletic shirt, and access to running coach Charlotte Gould to help you train!

If you are interested in running for #TEAMDEBRA, please email

TEAM DEBRA Member Benefits

Train for treatments and a cure

TEAM DEBRA members are required to fundraise for debra of America. All fundraising dollars go towards our mission and allow us to provide free programs and services to the EB Community and fund research for a treatment and cure.

Learn more about debra of America’s mission 

Be a part of something great

From NYC to LA, TEAM DEBRA members have the opportunity to join fellow athletes from across the globe in world-renowned endurance events! 

Raise EB awareness

We call EB “the worst disease you’ve never heard of.” By joining TEAM DEBRA, you’ll help raise much-needed EB awareness. debra of America staff provides informational materials to TEAM DEBRA members to help educate their communities about EB.

Get a customizable Fundraising Page

debra of America provides personal fundraising pages for each TEAM DEBRA member. Our staff is available to help set-up, personalize, and promote your page!

Meet the Team

Get to know our passionate #TEAMDEBRA members who train hard to support our mission. debra of America is grateful for their dedication to helping the EB Community.

Read TEAM DEBRA Spotlights on our Blog 

If you are a TEAM DEBRA member and would like to share your story, please email

TEAM DEBRA is proud to have been a part of the following past endurance events:

  • TCS New York City Marathon
  • United Airlines NYC Half 
  • TD Five Boro Bike Tour 
  • Skechers Performance Los Angeles Marathon 
  • Soul Cycle for an EB Cure 
  • Cincinnati Flying Pig Marathon

Related Resources

Volunteer Get Involved

Check out more ways to get involved in debra of America's mission to support those living with "the worst disease you've never heard of."

Learn More
Infant with EB Video Stories

See Epidermolysis Bullosa (EB) up close and personal in the video stories of individuals impacted by EB.

Learn More
Golf More Events

Have a good time for a great cause! Check out our upcoming events—both intimate and large—that take place all throughout the year and across the country

Learn More