Guests posing for a group shot

WHEN: Tuesday, May 24, 2022
WHERE: The River Club, Suwanee, GA

Join celebrity co-hosts and NFL greats Kevin Butler and Brian Finneran at our 6th Annual EB @ RC Golf Classic on May 24, 2022 at one of Georgia’s best courses! Enjoy a day of golf packed with drinks, lunch, prizes, on-course competitions, and an exciting silent auction. 

All proceeds from the event will benefit debra of America, a nonprofit organization dedicated to finding a cure for Epidermolysis Bullosa (EB), a rare and debilitating connective tissue disorder.

The River Club

About the Course 

Opened in 2005 by famed golf course architect Greg Norman, the River Club merges his appreciation of the native landscape with his strategic design skills to create what many are calling the very definition of a true world-class golf course. 

Measuring 7,197 yards from the Championship Tees, the 18 Hole Championship layout plays to Par 72. The River Club's Signature Hole is the 163 Yard Hole #17, which plays from an elevated tee, just behind the clubhouse, to a beautiful island green. 

CLICK HERE TO REGISTER

Mom with baby with EB

What is Epidermolysis Bullosa (EB)?

Epidermolysis Bullosa (or EB, for short) - "The Worst Disease You've Never Heard Of" - is a rare connective tissue disorder that affects 1 in 20,000 births in the United States. There are many genetic and symptomatic variations, but all share the prominent symptom of extremely fragile skin that blisters or tears from minor friction or trauma. 

The burden of EB is immense and drives the need for a high level of patient support. People with EB live with constant excruciating physical pain, emotional distress, and financial challenges.

debra of America's mission is to improve the lives of the thousands living with EB in the United States, through providing free supportive services and funding the research for treatments and a cure.

Join us in the fight against EB!

Thank You to our Generous Sponsors

Bridgestone Golf Logo Coca Cola Logo River Club Logo Tito's Logo

Related Resources

Young boy with EB Our Mission

“Because the cost of doing nothing is too great” is an axiom that defines our mission and directs all of debra of America’s actions as an organization.

Learn More
Young girl with EB Donate

Make a tax-deductible gift that directly impacts the thousands living with "the worst disease you've never heard of."

Learn More
Infant with EB Video Stories

See Epidermolysis Bullosa (EB) up close and personal in the video stories of individuals impacted by EB.

Learn More