Health care professionals play a critical role in the health and well-being of individuals with Epidermolysis Bullosa (EB).
To support this work, we offer multiple ways for clinicians to engage, collaborate, and expand their expertise - from accessing direct consultation with EB specialists to joining peer learning networks and participating in targeted educational events. These opportunities are designed to strengthen clinical confidence, enhance coordinated care, and connect providers across the EB community.
Connect & Learn
Consult an EB Expert
Our debra team supports clinicians by providing timely, evidence-based guidance to enhance patient care and improve coordination across specialties. Through our EB Nurse Educator Program, health care providers have direct access to specialized expertise in Epidermolysis Bullosa, including individualized, one-on-one clinical support.
Clinicians can consult on wound care protocols, pain and symptom management, referral pathways, and emerging best practices in EB care.
Contact: Catherine Doernbrack, MSN, RN, CPNP - EB Nurse Educator
- Email: nurse@debra.org
- Phone: 833-332-7287
EB Medical Professionals Network
The EB Medical Professionals Network brings together health care specialists to advance clinical knowledge and strengthen collaboration in Epidermolysis Bullosa care. Key opportunities include virtual learning sessions, sharing clinical experiences and insights, and building connections with colleagues across the EB community to support coordinated, high-quality care.
Currently, network groups are available for Dietitians and Nurses, with additional specialties planned as the program expands.
Each network group meets at sets points over the year on Zoom, offering opportunities for peer learning and case-based discussion.
Contact: programs@debra.org
EBConnect.org
Visit EBConnect.org to access a robust library of professional videos, webinars, and training modules designed to support clinical practice. Our clinician- and expert-led presentations offer timely insights into best practices and emerging standards in EB care and research.
EBConnect.org is debra of America's free, private online platform for the global Epidermolysis Bullosa (EB) community, connecting medical professionals, researchers, industry partners, and families living with EB in a secure, collaborative space.
