Jackie, who stars in the video alongside her daughter Rafi, provides some insight on the impact that Epidermolysis Bullosa (EB) has on the family's life.
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See Epidermolysis Bullosa (EB) up close and personal in the video stories of individuals impacted by EB.
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Learn About EB
Epidermolysis Bullosa (EB) is a rare genetic connective tissue disorder that affects an estimated 1 out of every 20,000 births in the United States.
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